Hi Keith,
I think that you suspect what the problem is but cant wait for the bmb and blood tests to prove it. Peter was similar in that he had lots of pains in lots of places just before his relapse.
I think the thing for you now is not to suffer with the pain but to get some pain relief until you get to your next appointment. No one should…[Read more]

Well done on finishing the novel Dai, and on making it to your 57th Birthday. I know some time ago you were so ill your Welsh consultant didn't see this milestone happening so its a double celebration. Peter had his 58th going on 8yrs earlier this month. That Dex has a lot to answer for but I have to say after 3cycles of Velcade he is starting…[Read more]

Hi David
glad to hear your progressing nicely, Peter had really sensitive teeth following his sct, He still cant drink coke from the fridge. Sensodyne do a variety of toothpastes and mouth washes, I don't remember the name of the toothpaste but its top of there range and it worked for Peter along with the mouth wash. The secret of Sensodyne is…[Read more]

Dear Roz,
So sorry that Michael lost his battle, my thoughts are with you at this sad time.
Min

HEAR HEAR GAYE
AND A MERRY CHRISTMAS TO YOU
MIN

Amelie
I spoke to Peters myloma nurse specialist and she said that Revlamid when given is taken continuously after it has worked its magic as a maintenance it is not give as simply maintenance but is a continuous treatment. A lower dose being given as maintenance after it has been used to fight the return of disease. She went on to say it has a…[Read more]

Bridget,
I am so sorry I caught your post as I was about to leave the office and meet peter at the hospital for his clinic appointment.
I was worried about what we were going to hear, but your post was in my mind whist there, I was discussing Revlamid with his nurse specialist and she was saying that it was a much better than velcade, it is…[Read more]

http://www.opera.com/download/get.pl?id=33338&thanks=true&sub=true

I could not open this either in windows and my Apple came up and told me to download Opera and it plays fine on it. don't know if opera works in windows or not as I am not that clever but give it a go. It is a web browser a little bit like Internet Explorer but according to the…[Read more]

Dear Bridget
So sorry to hear you have been laid low. (A pox to myeloma)
Im on my way to hear how Peter is responding to Velcade so fingers crossed
I know how difficult it is to get bad news but ………tomorrows a fresh day with new challenges once you have digested the bad news. We are thinking of you and hoping for the best.
Min

BRILL I love a good belly laugh. Doesnt it make you feel good.
Thanks
Min

Gill,

I know how it is with a husband on treatment again.
Its all too easy to forget how it was, you dont mention what his treatment is apart from dex, and anti sickness. New medications that he is not used to will have new side effects. Peter was found to have bleeding haemoroids at the outset needed the darn camera up there to find out it…[Read more]

Hi Pamela
Im afraid I don't know either but I googles it and it would seam to be a 'splint' though obviously more complex, that sits inside the bone in the space that the bone marrow usually occupies.
It looks really interesting. sorry if that sounds sick.
Have a look at this link. I may be absolutely wrong on this and I know it not good to go…[Read more]

Stuart and Web Team

J[b]ust wanted you to know that the SPEED is back[/b]. thanks a lot guys. No clicking and waiting its click and go again.
Big well done.
Just one more little thing. there was a wealth of information on the old site from old posts. Any chance of an archive?????
MIn

Hi Michelle
Doesnt good news give your spirits such a lift?
Its wonderfull when we hear good news for a change, our good news is that peter is back on the velcade and his platelets went from 40 to 110 by missing one injection. Dont know yet about his light chains, but that fact alone gave me a lift.
Min

Gaye,
Peter and I travelled to Kenya about 15yrs ago. We stayed in a hotel I thought was Paradise, visited the local infant school, and was amazed at how pristine the children were turned out whilst living in such unimanginable filth. You should be very proud to have given her a start she would never have otherwise had.
I am sure she will make…[Read more]

Roz
My thoughts are with you at this very difficult time.
As difficult as it may be, do you have a hospice near to home? It could be so much better for both of you.I hope you and your daughter will find the strength to cope with the days to come and that Michael is pain free and comfortable.
Min

Bar stewards!
What a blow. Did you not tell him that as a tax payer you were now his boss! Or are hsbc one of those that did not get tax payers money to bale them out?
Dont get me going on that or I will blow a fuse.
Awful as it sounds, ask your Macmillan nurse if she can help you out here.
Then write to the financial ombudsman, your local…[Read more]

Moan away Bridget,
I am happy to hear you get it off your chest. Hope your cold goes soon
I remember the good old days when we went on regular holidays coming home with two suitcases full of washing to a dead washing machine. I nearly had an apopleptic fit. Made a hurried purchse on the internet, then discovered it was a fuse!!!!!!!

Wow Gaye,
You have got me thinking. Peter does not suffer from PN.
But as an ex drill instructor….He used to make his recruits pee in their boots and leave it there overnight. They had to wear the said boot wet but emptied the following day but did not get any blisters! The result of which the foot hardened, the boot softened. Im not sure if…[Read more]