Hi Gill
So glad your out of hospital,do not worry about the emotional side .
Just take things slowly and try to do a little bit more each day,if you feel tired give into it your body knows best in this case,you will get on your feet again,just takes sometime.:-)
Make sure your wonderful sister takes a break,she will find it takes a lot out of her as well,as a carer myself I know its hard work,as well as keeping house,shopping and feeling the need to be there just in case!!
Every one will tell you,something has to give,in my case it was cleaning,a friend came and helped me,to get it back on track.
Best Wishers Eve
HI Sarah
Missed the post on Yorkshire did not show on emails either!!!!
Well at least Gordon tried it is very hard for them to admit they can no longer do things,i think that is why we have these battles with them,but it does show they are fighting this b—d Myeloma .
I take Citalopram 20mg,It does work stops you dissolving in tears,or shouting like a fish wife,at first I took one a day,but now its roughly every three days,my doctor would like me to take them every day as thats the way prescribed but i am not a pill taker and it seems to do the job for me.Just need to keep my emotions under control.Worth a go even just to save on G&T,I was the same waking up different hours feeling awful.:'-(
Cannot believe you have not got a blue badge!!!!!.It does take about 6 weeks.Get the forms from local council or county council ring up.fill in then send off,they ref to doctor then sent back to county council,six weeks to prove they are working!!!,I lost my temper with them,aksed had he got to be sitting up in a coffin before he got one:-)!!!!took about 4 weeks.
One of the questions is how far can you walk,when you answer it,think how far Gordon could walk with out,pain killers,sticks ,the answer needs to be O,
Slims hips are much the same both hips both with athritis.one hip done after becoming pain full after fall from van(my fault put step in)has never been a success as never cemented it.other hip shows on exray but not painful,Hip with replacement now playing up,we do not know and at the moment do not want to know what is responsible ,just another thing to add to the list,:-P
I do feel for you Sarah,It does not make life easier when they do not realise how unreasonable they are being,Slims very stubborn,but I do think thats what gets them over the next hurdle.His logic no cure i am going to be the first.
Look after yourself,at least you have the grandkids to take your mind of thing for awhile love Eve
Hi Min
I could not get in to the link,my brainy laptop will not let me access it.
How are things going with you.?
Eve
Hi Jo and jean and you Bridget
Nice to hear from you jean,
Jo I know that area so well,Tyne-E-Pull,spelling not good,use to be outward bound centre for waives and strays like me.:-P lol thats going back years.
Colamundy nr Mold another place.loved Betsy coede,Dai will be able to spell those names correctly. Climbed snowdonia many times I believe there is a restaurant on top. All changed now but you should have a lovely time up there.
My sil has just done the three peak challenge,Snowdonia yesterday,wet windy and hard work on his back to Kent now,team managed to raise £5000 for Demelza and another respite in Kent for children.
Let us know how you enjoyed it when you get back love Eve
Bridget how are you?
Hi Gillian
Good to see your getting there,take any equipment they offer you,as you will need most things for a short while,and you can send them back,when you do not need them.
Slim did 22 days in hospital and was so so so glad to come home,progress was slow but little by little he is much better,and it does take it,s toll on the carer,it becomes a 24 hr job,so take things slowly.It has taken a few months for us,there is also financial help out there,start the ball rolling early as I am still waiting on help with that,and truthfully I needed it months ago.It would have been nice ,to have some help in the house to give me a rest as it is a 24 hr job,
Do you have someone there for you??? love Eve
Hi Min
I am the same,if i do not eat Slim will not eat,hence the weight gain.
Three dogs seems like a good idea,eating waste and all that walking!!!!
Previously to this illness,i shopped once a week,now its every day,it is something that Slims taken over,spending more money and wasting a lot of time,but he enjoys something he has control over:-S my attitude is what the heck lists for everything lol just got to remember were the heck he puts them.:-)
On a serious note just so glad he is eating,you must feel the same.It is the Dex but why does it seem to effect people differently,it effects Slim mentally more,than effecting his body mass is it a good thing or bad.???
Gill,i honestly think men do notice women putting on weight,but it is not important to them,The same with clothes,Slim is down to small,but can I get him to buy clothes!!!!!everything hangs off him,his attitude if you don,t like it don,t look at me!!!!!refuses to buy any at all!!!he is skin and bones in a couple of layers of clothes.wish I had the answer.
love Eve
ps just tried to post this came up in red (your message contains inappropriate content!!!! ) I said H-e-l-l, well team you are going to get a broadside,b-ug-g-er ba..d s–t,get a life will you!!!!
I do not swear they are making me do it!!!!
Hi Eliz
I know it is unbelievable,nearly said some (miracles do happen) but thought better not.Called Slim in with bag of drugs in hand,saline drip first then Zomita,and while that was working,went over drugs with me,gave me blood results asked if any problems,even had a cup of tea!!!!!.that,s what i a service.
it took us both by surprise.eve
Hi Jo
Thanks for asking after Slim.
Bloods,kappa light chains all going in right direction,on 6 cycle of ctd.
So why am I not running round in circles cheering!!!!do not understand it myself,considering the position we were in a few months back.Slims slowly getting stronger.
Appointment end of July with consultant,bone marrow test will be in.Will know more then.
Enjoy your holiday in Wales,what part are you going to jo???? love eve
Hi Everybody
I agree ,go with the flow,but what do you do when,you are a carer???
Slims lost so much weight with being so ill,it is very hard to feed him up,I buy all this lovely food,the fridge is so full with tasty morsels and he eats a bit and says (I have gone off this),I think to myself I cannot waste this and eat it,tried giving it to the dog,but Oscar,s coming out in sympathy with Slim 😛
So ladies Eve,s putting on weight,lol
So I am going with the flow,waste not want not,
Gill2 you enjoy your food,and do not think about the weight it only takes one hiccup and it will drop off you,Slim started at 13st8lb and 6ft 1in now he is 9st8lb and 5ft8inches ,so enjoy.
Gill do you use a dongle for your computer in hospital???,the reason I am asking,is Slim spent 22 days in hospital,and I felt if I lived there as well,it would have been nice to have internet connection.???
best wishers Eve
Hi Dai
There,s me thinking you had gone off on holiday and not told us,in case we were jealous 😉
Glad your back,you have been missed(a little bit).:-)
These things do not go unnoticed when are lyric and musician man goes missing without a telling us:-( as they have chucked you out,bruised and batted, but fit for duty,we hope to be hearing more of you. best wishers Eve
Hi Bridget
Nice to hear from you,sorry they have not got the pain under control,funny the way some drugs work for one person,but not another,go back to what works,Try to enjoy the day,it is lovely and sunny down here on the coast.
Best Wishers Eve
Hi Gill20
May i just say everyone seems to suffer with bowel problems.You have to make sure you take a laxative on a daily bases otherwise you have a build up,even then you will find yourself needing a toilet very very quickly,after awhile it becomes the norm.part of the course with the medication.
Gill the one in hospital,my husband has been in your position,I was worried for him,such a proud man,but do not worry,they will sought you out.he has no problems now,except,when he needs a toilet,it has to be that second!!!!.
I think poo is one of the subjects thats aired a lot on this sight lol:-)it,s become the norm.
Hope you are out soon Eve
Hi Jo and Jean
I have been thinking the same,Min Angelina Bridget Dai even Tom .May be they have taken a holiday,May be no news is good news!!!!!.Enjoying the summer weather while it is still here.
Nice to hear from you Jean,and you Jo.best Wishes Eve
Hi Gill
I have to say as a carer I have mellowed,may be it is my age rather than Slims condition,to me this mm just puts things into perspective,life to short.So i have learnt to count to 10 before I speak.
Slims a different kettle of fish,has never suffered fools,when he comes off dex,it is highlighted a lot more ,not nice i find myself apologising for him,he does not see it as a problem,even when I point out how rude he sounds.I thought it was the grumpy old man syndrome,but I do believe it,s his condition,plus medication,plus the loss of all the things he enjoys doing.Tolerance levels very low!!!!
Will I ever get the man back who has a dry sense of humour,could always make me laugh,and spent a lot of time looking after me.!!!
Time will tell,Eve
Hi Everybody
Sarah you seem to be going through the mill at the moment,were will you be going from here,is dex to build Gordon up for next round of drugs?.
Keith you sound if the whole lot is getting you down,but as you say there is always someone worse off than you,its just trying to put everything in perspective,Do we build are hopes up,to have them come crashing down,or do we try to stay on the side of(it might work) so not to down when it does not,Wish I had the answer?I do believe if you stay positive you enjoy everyday a little bit better and its not wasted with negative thoughts.Your second sct gives you another good chance and that must be a bonus.
My downer is when I see all these camper vans heading for Dover,and I think you lucky b…..s,but are turn will come.
The dreaded dex thought Slim was doing well on reduced dose,take it all back,started to let him drive again,BIG mistake,F1 driving round roads created a nodding dog syndrome my head felt it was falling off,did not listen to me,had to step in big time,has gone into sulking mode,he just does not see,he is being irrational,so I know how your feeling Sarah.
At least I had a nice man back for a short time.
Sue when I get low I find it helpful to think of all the things we have done,but I must admit popping pills have helped to keep my emotions under control because people,do not understand the emotions we are going through
it does help.
My thought are with you all eve
