[foxy555Participant]

Hi Debs

Just wanted to say, read your article in Myeloma Matters. Beautifully written and you look great!!!!!

Best wishes

Ann and Pete
x

[foxy555Participant]

Hi Jean and Frank

What great news!!! Well done Frank.

Have a lovely Xmas and a very Happy New Year

Best wishes

Ann and Pete

xx

[foxy555Participant]

Hi Jean

Oh thanks for that, hopefully Pete's consultant will say the 1.6 million is enough.

Hope Frank is feeling a bit brighter.

Again, best of luck for tomorrow, let us know how he gets on

Ann
x

[foxy555Participant]

Hi all

Well today was so disappointing!!! They only managed to get half a million cells, a grand, or not so grand total of 1.6 million. They put Pete straight on the machine, without waiting for this mornings blood results??? Probably a good job as his levels had dropped to 8 overnight and so I doubt they would have even tried again today!

Now we have got to wait for a call from his consultant to see when they will try and collect again, so more injections and more waiting!!! With Christmas coming up, I suppose nothing will happen until the New Year.

Never mind – Vicki, Chris to name a few, have suffered set backs and got over it and so we are no different.

Hi Dai, a quick question, how come 1.2 million was enough for your SCT? Does it depend on the person and their medical history etc etc. I read somewhere on this site that someone got 8 million, wow what a difference!

Peter and Megan, hope you both well. Peter, you did'nt say how many cells you produced, unless I missed it!

Jean, it I have got it right, Frank goes for collection tomorrow? If so, I hope he is more successful, best wishes to you both.

Take care everyone, hope you all ok and thanks again for your support.

Love

Ann and Pete
xx

[foxy555Participant]

Hello all

Just a quick update on today at Southmead. Pete was borderline – 9, but they decided to go ahead with the procedure. He spent 3.5 hours on the machine and before we left the nurse did mention that they did not think that he had produced all that many cells. Anyway doctor has just rang and said was just over a million, which is alot more than he or we expected. So back tomorrow, hopefully to get the rest!!!

I thought the staff were wonderful.

Will let you know tomorrow how things go.

Love Ann and Pete
xx

[foxy555Participant]

Oh good to hear from you Vicki and really pleased to hear Colin doing ok, so sad about his dad, but as you say it never rains but pours!!!.

Pete ok, he met Biker Chris and his wife Lena on Friday when he went for his consultation. I was'nt with him, but he did say, got so much info from someone who has been through it all, he really did enjoy meeting up with them.

Pete at Southmead on Monday, so hopefully we shall get all those cells out!!! He had a head shave, number 3 on top and 2 on the sides, just to get used to it, but he did have a lovely head of hair and I suppose he just wants to take it one step at a time!!

Hi Jean and Frank, hope all going well, keep in touch!!

Chris and Lena, thanks again for Friday, Pete came home quite positive. He did learn so much from you both regarding the road ahead!!!

Talk soon

Love Ann and Pete

xx

[foxy555Participant]

Hi all

Yes, do intend to set up a thread, but thought I would wait until 17th when stems cells are hopefully removed successfully etc etc.

You guys have been so helpful, thank you so much!

Pete feels really well, even did some DIY on Friday, could'nt believe it, but then again, everyone so different.

He will go back to work tomorrow, but has to start the injections – GCFS also – 2 a day.

Will he have any side effects????? My Husband is so stubborn, just so laid back. I suppose that is a good thing, but it does'nt stop me from worrying.

Oh, another question! Pete went to barbers and got a close shave on his head, just to get used to what is going to happen!! But silly as its seems, what happens to the hair, ie on the body etc, will it just appear on the bed each morning?? I know it sound a blooming silly question, but your advice would help! Also, after the stem cell removal, how will he feel? We have invited people for Xmas Lunch, but I suppose I need to know if he will be up to it!

He has got an appointment on Friday with Consultant, but would prefer to know from people who have experienced it all.

Sorry, so many questions!

Chris, so glad to hear you are well, 2 weeks eh and already feeling better, really good news. So happy for you and Lena.

Vicki, so pleased all going well, lets hope you are in for a really nice Xmas, OMG, only 2 weeks away!!

Love to all

Take Care

Ann and Pete

xx

[foxy555Participant]

Hi all

Chris, worried about you, not heard from you in a while, hope all going well.

Pete is overnight in Musgrove tonight. Seeing him today after the 2 hour dose of chemo made everything suddenly feel so real!! He looked so washed out this evening, still on a drip, but apparently everything ok, providing he keeps going to the loo to wash the chemo out.

To get some practice for the GCFS injections which start on Monday, the nurse let him inject himself tonight, he did well, and so another worry out of the way – I certainly could'nt do it!!!

I must admit, that by reading other people's experiences, it helps so much, at least you know what to expect, albeit does'nt make it any easier -it is just the start of a very long journey! Stem cell harvest still on schedule for 17th!!!

Vicki, I hope your return to work yesterday was ok, it must have been a wrench to leave Colin. How is he, progressing well I hope?

Love to all, take care, speak soon – keep us posted!

Ann

xx

[foxy555Participant]

Hi Chris, Vicki and Tom

Oh thanks so much for your comments, so much great information, really feel more at ease now, knowing what is ahead. Despite reading through all the literature time after time, so much better talking to you guys who have been through it all!!

Yes Chris, Pete sees Dr Bolam, lovely chap as you say, can understand why he is so respected, abit brief with his answers, but then again I don't suppose he has the time to be able to answer everything that patients throw at him.

Hope you don't mind but I will be asking you all lots more questions after 5th December, just relying on the experiences you all have been through.

Chris, yes we have escaped the flooding, but so bad down here in the close surrounding areas isn't it! You take care and let us know how you are getting on.

Vicki, I hope Colin is back home by now, keep us posted.

Tom, your posts are always so amusing, always lovely to hear from you!

Thanks once again all!!!!

Speak soon

Love Ann and Pete

xx

[foxy555Participant]

Hi all

Hope you all keeping well!

Just a couple of quick questions if you don't mind.

Pete is going into Musgrove on 5th December overnight for a line to be fitted plus some chemotherapy (Is'nt is strange, you sit through a consultation and come out not knowing anything!!) The Consultant also mentioned that Pete would have to inject himself!! What with!!! Can anyone shed more information?

Again, we feel really silly that we did'nt ask all the right questions, but sometimes I think you just want to get out of the consulting room.

Anyway my other question is, will I be allowed to be with him on the 5th or do I just visit later in the day. This is his first hospital treatment after finishing CDT and then he will go to Bristol on 17th for the stem removal.

I am sorry to bother you with such trivial questions, but I need to know to book time off work if necessary .

Regards

Ann

x

[foxy555Participant]

Vicki

Oh hang in there, I hope it won't be long before Colin comes home to stay!!! You really have been through the mill, so too speak!

Hope Colin is on the mend, keep us posted!

Love Ann and Pete

xx

[foxy555Participant]

Hi Tom

Sorry to bother you, but just a few questions as you have been through the process!!

Pete has got a date for 5th December, overnight stay in Musgrove Taunton for what we believe to be a blast of Chemotherapy and a line fitted??? Still not got our heads around all the terminology!! (You read all the posts, but when it happens to you, completely different).

He then has to go to Bristol on 17th December for the stem cells to be removed and harvested.

I know every case is different, but can you give any advice on how he will feel after the first appointment???

Getting nervous now!!!

Love Ann and Pete

xx

[foxy555Participant]

Hi Chris

Well done, so pleased to hear your news. Hopefully my husband Peter will be taking your place on Ward 9 at Musgrove in a couple of weeks time, I just hope he does as well as you. We have obviously been reading your posts, as well as Vicki and Colin's and it does help, albeit no-one is the same!! I suppose the record to beat being hospitalised is Tom – 16 days!! Good on you Tom. Pete said he was going to go for 14!!! Well no harm in being positive!!!

Have a great week-end Chris and Lena and keep us posted on your progress

Take care Vicki and Colin

Love Ann and Pete

xx

[foxy555Participant]

Oh Vicki

Really thought by your posts that Colin would be home this week-end, but as you say, this Myeloma is a blooming roller coaster, everyone's symptons/recovery modes – so different. Then again you say more positives than negatives, so really wishing Colin the best!!!

All ok here, Pete has a stinking cough and a really bad cough, but glad it is here now and not in a few weeks time.

He will hopefully get his date for SCT on Tuesday, but not relying on it, so many issues may be involved (from what I have learnt from you on Colin's journey and indeed alot of people on this site). Anyway, fingers crossed!

Take care, thinking of you!!!

Love Ann and Pete

xx

[foxy555Participant]

Hi Vicki

Lovely to hear you sounding a bit brighter.

Take care and love to you both!!

Ann and Pete

xx

[Author]

Posts