[fozzParticipant]

Hi Graham, I’ve just had a look on my print outs and the last eGFR was 71 so I guess it’s still pretty ok. Kath x

[fozzParticipant]

Thank you Graham, I’ll have a look for that figure, it’s not one I recognise. I know they do creatinine etc but there’s lots of separate figures for that.

Kath. X

[fozzParticipant]

Thanks Ian. It’s the waiting game that’s hard, the waiting to see if it goes up again and the limbo land of will it or won’t it. I’m happy it’s MGUS and nothing more but there’s just always that possibility of it progressing. I just need to get my head round it which was going ok until this jump in the levels. Now I’m waiting to see what prof cook says and hoping it doesn’t jump up again. Kath. Xx

[fozzParticipant]

Thank you for your reply Mavis,

I’ve not had any x-rays or anything else other than bloods done so far. My bloods showed that I’m slightly anaemic, my white cells are low and my neutrophils are low. There’s no evidence of kidney damage but I do get a lot of kidney infections amongst other infections. I’ve just had 14 days of antibiotics for a chest infection and earlier on in the year I had several courses of antibiotics both oral and IV. I am also getting a lot of pain from my lower rib on the right and pain in my thighs and shoulder on and off.

Do you think I’ll need a bone marrow biopsy?

Kath. x

 

 

[fozzParticipant]

I’ve now had a referral to haematology. I’ve found out that my IgA paraprotein is 12g/L and I believe anything over 10 is for referral. I’m hoping to get the letter with all my results on tomorrow.

What questions should I be asking the haematologist?

Thanks

[fozzParticipant]

Hi again,

I’ve finally got a little bit more information about my blood test results. My iga is unchanged (from what I don’t know and it doesn’t show on screen what level it’s at apparently!), my igg is unchanged (but is apparently low) and my igm has increased by 8%. Does all this mean anything without the actual levels?

[fozzParticipant]

Hi,

I’m still getting no answers. I still haven’t had the results of the last blood test to check the iga paraprotein level. I phoned the doc today and she said he isn’t in today but will get him to chase the results tomorrow and phone me. Meanwhile I’m on my 2nd course of antibiotics for my chest and still no improvement. My full blood count results are back though and showed that my white blood cells and neutrophils are very low, my haemoglobin is still low but hasn’t got any lower. I think the lack of neutrophils and wbc’s explain the inability to fight infection but as yet I don’t know what explains the raised iga, low haemoglobin, low neutrophils and wbc’s. Hoping for answers soon!

Fozz. x

[fozzParticipant]

Thank you for your replies Jan and Eve. I’m still trying to get hold of my results, it’s been a bit of a battle trying to get the iga results out of them. I had the bloods done on Tuesday and by Thursday I was so poorly with chest they admitted me, the hospital sent me home to continue with antibiotics after taking a chest xray and confirming that I had infection on the bottom of my right lung. Phoned for blood results on Friday and the receptionist said she couldn’t give me the results, I needed to speak to the doc and he was in surgery and would ring me Monday. I argued with her but got nowhere. Hopefully I should get the results Monday, if I don’t I’ll be stamping my feet. It’s so maddening knowing my results are sitting in the computer and no-one will tell me them! If I know what my iga level is and know if it’s still raised then I will certainly push for further testing….it’s such a frustrating waiting game!

[fozzParticipant]

Thank you  for your replies. I saw the doc last week and they didn’t have the iga levels on their system and they’re trying to get them. I also phoned my gastro consultants secretary as it was the gastro consultants tests that found the raised iga and I’m still waiting to here from her too. Meanwhile I’m struck with another hideous chest infection so going back to doc tonight.

[Author]

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