gina45 replied to the topic Not Good News in the forum Carers 13 years, 2 months ago
I am sorry about your news Gill. I really hope its wrong and that there will be something that comes up. There are new treatments on the horizon, so hopefully one will be here for Stephen very soon.
You take care
Gina xx
gina45 replied to the topic New Discussion Forum Category in the forum General 13 years, 2 months ago
Hi Ellen, as you know its my mum that has mm. i think its a good idea to have this new category as like others have said it then gives people the choice to look or not as for some it may be too soon or too hard to face it.
Gina x
gina45 replied to the topic More good news! in the forum General 13 years, 2 months ago
Excellent news Jet!! keep on being positive good for you.
Take care
Gina xx
gina45 replied to the topic Help me finding information in the forum General 13 years, 2 months ago
Hi Amelie, i hope that you get the information you need, sorry i cant help. But wishing you and John good wishes.
Take care
Gina x
gina45 replied to the topic Good news x in the forum General 13 years, 2 months ago
thank yo so much for your positive replies, you always raise my spirits and i know you all know what you are talking about.
we have spent the day with mum today and even got a few smiles off her,so result :-).
i will pass on what you have all told me.
thank you again.
Gina xx
gina45 started the topic Good news x. in the forum General 13 years, 2 months ago
Hi Everyone, Just thought i would share that mum went to see the consultant and he said he was pleased with mums results from having the revlimid. Her proteins have come down and so has her kidney function so he is happy with that. Mum still feels unwell tired and down and wonders why she isnt feeling better if this is the case. We are positive…[Read more]
gina45 replied to the topic Hello Everyone in the forum Newcomers 13 years, 2 months ago
Hi Graham, sorry you have had to join the forum but welcome.its my mum who has the mm and i am her carer with my sister.
I hope your count raises and everything goes well for you.
Take care
Gina x
gina45 replied to the topic manchester infoday in the forum General 13 years, 2 months ago
Hi Eve, we don't go to the support group as the nearest one is Bury. So this website is a godsend. Like you said it gives you a bit of hope going to see others who are going though mm and how well they are doing. Mum isn't too bad, still very shaky and cant get out and about much. She had her bloods done on Friday and is at the hospital on…[Read more]
gina45 replied to the topic Count has dropped in the forum General 13 years, 2 months ago
Hi Ivan, my mum went down to 19 when she was having treatment and i think they called it partial remission she did really well and didn't need treatment for another 12 months because of this. 6 is a really good number.
Take care
Gina x
gina45 replied to the topic manchester infoday in the forum General 13 years, 2 months ago
I totally agree, mum gets the same. But we all have to stay positive dont we and you are always very positive 🙂 x
gina45 replied to the topic manchester infoday in the forum General 13 years, 2 months ago
Hopefully you will go to one one day Tom. You are right it was a very long day, well worth it but very long 🙂
Hope that you are doing ok
Gina xx
gina45 replied to the topic Minor Op next week in the forum Treatment 13 years, 2 months ago
Hi Gill just want to wish you both good luck. You are right about the space on your calender its never ending. Please keep us posted on how everything goes
Gina xx
gina45 started the topic manchester infoday. in the forum General 13 years, 2 months ago
just thought i would post and say what a great day we had. Lots of information and people to answer questions. We had a lovely lunch and tea and coffee when we needed a brew(werent sure about all the cakes though,especially when on a healthy eating plan lol) But it was nice to meet likewise people and the staff were brilliant and made us feel very…[Read more]
gina45 replied to the topic mums appointment in the forum General 13 years, 2 months ago
Hi, thank you again for your replies.
Mum doesnt want to go to the info day Eve she said she is not up to it so its just me and my sister,it will be good to meet likewise people and also speak about myeloma with the experts to see what they say. I will let you all know how it goes. We are just taking each day as it comes,mum is just very upset at…[Read more]
gina45 replied to the topic mums appointment in the forum General 13 years, 2 months ago
Hello again, thank you all for your replies,
Mum isnt doing too bad she is feeling tired but thats not bad compared to how she has been feeling. Still taking revlimid and having injections to keep the blood clots at bay. Mum has had a set back. My gran (mums mum) has been diagnosed with bowel cancer being 92 they arent giving any treatment or…[Read more]
gina45 replied to the topic Velcade 6 – Yippee! in the forum Treatment 13 years, 2 months ago
I am really pleased for you Dai, here is to a long remission. I always look forward to reading your posts, here is to many more. Stay positive Dai and take care.
Gina xx
gina45 replied to the topic mums appointment in the forum General 13 years, 2 months ago
Mum is going to see the consultant next wednesday so fingers crossed this treatment helps.
Thank you again
Gina xx
gina45 replied to the topic Advice Please! in the forum Newcomers 13 years, 2 months ago
Hi Nadine, sorry you have had to join the site, but you will get lots of support from these lovely people. My mum is now 71 and has had mm since 2009. At the moment mum is on revlimid, but she has had the cdt. She cant have the sct but we are hoping that this treatment helps. I hope that your mum is ok,please keep us posted on how she and you are…[Read more]
gina45 replied to the topic mums appointment in the forum General 13 years, 2 months ago
Thank you again for your support ,it does give us hope that you have all been there and look and feel better for it. Mum has now recieved her revlimid and steroids so fingers crossed that it works and mum starts to feel better in herself.
Gina xx
gina45 replied to the topic mums appointment in the forum General 13 years, 2 months ago
Thank you so much for your replies,when you are all going though the same battles you still have time to help and support each other.
We are just taking each day as it comes now. I have stopped looking up about the nodules as i only seem to see bad things, so i will speak to the doctor when we go back to the hospital. We are hoping that mum may…[Read more]