[jmsmythParticipant]

Vicki I was just thinking about you and Colin this morning. Hope all goes well. Best to Colin. Keep us informed when you can. Hope Frank will be having his soon – 😉 everything crossed
Love Jean xx

[jmsmythParticipant]

Welcome Lisa, sorry you had to join us. My husband I'd just finishing 6 cycle of. CDT with the hope of getting a stem cell transplant. As Peter said the steroids react differently in people and he is right – don't troll the net, I did when Frank was first diagnosed and it scared the life out of me. This is the place to be to ask questions and share your worries. They are a great bunch of people.
Take care and regards to your dad
Love Jean

[jmsmythParticipant]

Thanks for that Jill. When I saw his legs I nearly had a fit. An elephant had nothing on him!! I remembered reading some time ago on the forum that someone had had swollen feet and legs during treatment. I hope your mum is doing well
Love Jea x

[jmsmythParticipant]

Hi Emma

Fantastic well done. How is you dad. Hope things are going well for him

Jean

[jmsmythParticipant]

Hi Nicola

Thanks for that and I will have a look. I have been massaging his feet with cocoa butter. He is in good enough form today but feet and legs are badly swollen. Frank finishes his 6 cycles of CDT in three weeks and if they suggest more treatment – don't know what he will say.

Hope your dad improvement increases every day.
Best wishes to you and your dad
Love Jean xx

[jmsmythParticipant]

Thanks for the info Eve. I have coco butter so will give that a try. As far as the scrabble – I am playing with an old school friend who lives in Australia, and that is where I get some of the weird words. One game was so unusual I took a photo of it and sent it to my son in Kent. He also had never heard of some of the words. I used to look the weird ones up in the dictionary but have given up now. I have nothing vowels left in our game (I think) so I take chances and try my luck
.

My best to Slim
Take care love jean

[jmsmythParticipant]

Vikki best of British luck for Colin on Monday. Hope all goes well. Will cross everything

Love Jean xx

[jmsmythParticipant]

Mary I cried most of the way through the counselling. I couldn't (and still can't ) cry in front of Frank. He has enough to worry about without seeing me upset. So when I talked to the counsellor it all just came flooding out. It's great to talk to someone who is not affected with Franks illness who will not judge me about anything that I say. I used to get so angry when I talked to him and was able to vent my frustration and anger on him., He understood what was happening to me. Mary if you are thinking of going down that road, make sure you like the counsellor. The first one I went to was a woman and I just could not take to her. Then I got another one, Robin and he was great I could just talk and tell him everything that was in my head – things I would never have said to my family, as I did not want them to worry about me.

Hope you get something that suits you
Take care
Love Jean x

[jmsmythParticipant]

Hi Mary

I have been screaming and ranting for 6 years. I have been to counselling twice and it really helped me. As Frank hopes to start STC soon I am feeling it all build up again (he's had a bad time with the CDT) I will be making an appointment to see one again. Don't know if you have been offered or even tried it but I felt it was a life saver. I think Min mentioned a few weeks ago about Reiki (think that's how it's spelled) I did research on it and it did mention relief of stress. Maybe I will ask for a session for a Christmas present.

Anyway scream and break as many plates as you want if it gives some relief. My best to you and Charlie
Love Jean x

[jmsmythParticipant]

Hi Chris

Great to hear that things aren't too bad. Hope it continues ad you are up and running soon

Vikki and Colin good luck for Monday. Sending you good vibes

Love Jean x

[jmsmythParticipant]

Hi Chris

Good to hear from you and glad that you are feeling 'pretty good'. Hope everything goes great for getting the cells back. Oh Chris I have recorded Dallas and was saving it for bed tonight!!!never mind will still enjoy it. I'm old enough to remember the original Dallas and trying to decide who is the meanest the younger original JR or the elderly mature JR. Will have to wait to we get more into it.

take great care and hope things go well and you Re home quickly

Love Jean x

[jmsmythParticipant]

Kerry Frank would not go to the counsellor. He won't go to Info days – just wants to know what his consultant tells him. It is good that Melvin will go and talk to someone. I think it would do frank good but when I bring it up it causes a row. So I don't talk about it. I had to go back to the counsellor about 18 months ago as things were getting on top of me again. It has only been in the last two years that I can go out at night with friends. I just could not leave him. Even now when I go out I torture the poor man with texts.

I hope the children get to counselling soon. I think it will be good for the to talk to so done beside you and Melvin. They probably wouldn't tell you things as they would a stranger. I hope your session goes well and Melvin and yourself take car

Love jean x

[jmsmythParticipant]

Hi Kerry

I am also a carer (how I hate that word) to my husband Frank and I know exactly where you are coming from. Please, you are not being selfish and do not beat yourself up. Myeloma causes an enormous upheaval in you and your family's life. I have had 6 years to try to get my head round it and believe me I'm still not there. It's the first thing that I think of when I wake and the last before I go to sleep. I can only go on my own experience. Someone suggested that I see a counsellor. Has it been suggested to you? I was very sceptical the first time I went. But I did not like the counsellor so never went back. Then a friend put me in touch with one through Macmillan and I can honestly say that Robin saved my sanity. I talked to someone who did not know Frank and I was able to rant,rave cry and talk out loud about all my fears. Kerry I know it's not for everyone but it truly helped me. Im sure someone else who has been through similar experience will have other advice for you. Try and keep positive and believe me what you are feeling is normal

My very best to you and Melvin
Take care
Love Jean xx

[jmsmythParticipant]

Welcome to the site Polly. My husband is on his 6th cycle of CDT. He injects Clexane every morning. At first it was a bit of a hassle for him but now it's 'old hat'. I hope things go good for you. Do keep in touch to Let us know how you are getting on

Jean

[jmsmythParticipant]

Hi Chris

Just want to wish you all the luck in the world for tomorrow, will be thinking of you. You will need the rest after the rest after the weekend you've had!! Good luck and the best of wishes

Love Jean x

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