Hi eve
I live in Chester 10 minutes from Liverpool
I was born just over the border in wales.
when we played football against teams in Liverpool they called us woolly backs
I just tried to send Rebecca a message but made a mess of it,
My heart is with you people truly my people we are special
people get a bit heart when they don’t get a reply back but wear not neglecting
each other.
love you all john
Hi Rebecca
Just got back home rained off installing a big waist water tank in
the ground.
SCT 13 December 2012 out on 28 December back to work three weeks
Babington about the same time.
I do agree that you have to listen to your body
but you have to not let the week side of your mined dictate your decision.
It didn’t take me long to say to the lads were not working in this
the week side of my mined made this decision,
Its been 2 years last April 28 since I was diagnosed,
I new I had to go through this on my own
Hooray I think am in
come on lets get this site back to haw it was it has gone flat,
I am probably the worst with email than all of you,
Just a few words of encouragement and reply to say well done,
love you all
john PS Those men and women in the trenches gave there lives
to give us fighting chance we will not let tem down
Hi Karen
I to suffer with back pain I ask the specialist twelve month
ago when will the pain go his answer was never,
I try to keep away from negative people
I say it as it is now cant tolerate bull
When I come out of Liverpool on the 28 of December after SCT
I told my son I am sure I will be hear for next Christmas,
His words were you'd of took that in April.
I will say the same thing to him in December this year
coz I have got things to do.
THATS IF IM NOT ON A BEACH some where
I DO cry some times nothing to be ashamed of.
By the way a PECKER is what I put on my digger to break up
concrete.
JOHN PS WISH EVE WAS MY MUM
Hi sarah
This is my second attempt to send a message,
anyway SCT DECEMBER
maintenance April REV AND VORINISTAT.
Maintenance significantly prolongs remission
Myeloma beacon.
I love my sleep so I keep out of the chair,
Sorry but I go to the pub and have a good laugh
go home and sleep like a log
I would have been disappointed if I had been randomised
with no maintenance.
OK WBC low bone marrow being hammered,
At least I had the choice
VORINISTAT ??
I work seven days some weeks love it,
but some days my mined just can not get my body going
strange this is the battle.
john
PS Went to Germany in June and Portugal last month
just completely forgot about insurance,
Hi Helen
bin to lots of them never met anyone off this site
may be we should get a t shirt.
john.
Hi bev
just read your post.
its right if you can't look after your self you cant look after
someone ells.
That's WY I live on my own.
get the man out. john..
Hi Tom
All the pains are the same but not as bad back and ribs.
Washing dishes is as painful as digging.
I ask the doctor last year when will the pain go away he seed never.
Went to Portugal after the Manchester info day bad pains after
four days in my lower ribs.
Put it dawn to hands on the back of my head for so long.
john.
Hi Rebecca
Just to say am thinking of you and your harvesting is going ok
John
Hi
Just a few questions
Dose cancer fined it hard to survive in an alkaline body.
Do we kill of most of the goodness in cooking our veg over
30 degrees.
And is this a great discussion.
There's more.
well done dawn
Got to go and lay some concrete.
john
Thanks big tom and little tom
John
Hi scott
Good look we are all with you.
john.
Hi tom,
I Have never taken sickness tablets if I had of felt sick
I would of taken them.
DOMPERIDONE. Doctors could say this one if needed
Don't think I could of managed with out that that
drip one when going through my SCT.
I don't think we will have the same energy levels as we did
before,
I fell asleep yesterday watching the lady's word cup final
sssss should of washed the dishes instead, I must keep out of
the chair, nausea must be linked to the mined ??
YOU ARE TOP MAN Had any thought's on maintenance on my 4 month
over and out john. PS 6 PINTS OF FLUID A DAY
cranberry juice
cabbage water
green tea
lemon juice
Guinness
The five pints of Guinness are fine
it they other stuff that takes some getting used to.
Hi Mandy
Well done i was in the royal for my sct over xmas.
They are the best.
I never lost weight but lost my hair it has grown back curly,
I walked round the room as much as I could,
don't stand don't sit if you sit keep your feet elevated
keep the blood flowing
100 days hear come.
well done again john
HI TOM
Top man had a drink on 22nd to you
I will wait till day 7 now
GOOD LOOK
JOHN