Karl Stock

karl66 replied to the topic Recently diagnosed with Plasmacytoma in the forum Newcomers 6 years, 1 month ago

Hi Sam,

Thanks for contacting me. Your experience sounds very similar to mine. I appreciate the information about the IDRIS trial, I’m definitely going to look into it and also speak to my doctor about whether I would be eligible.

The Radiotherapy is going ok thanks, I get some fatigue, as I’m also doing physiotherapy to get strength and…[Read more]

karl66 replied to the topic Radiotherapy Questions in the forum Newcomers 6 years, 2 months ago

Hi Taff

Plasmacytoma was found in collapsed L3 vertebrae bone of my spine, when I had a CT guided biopsy.

Regards

Karl

karl66 replied to the topic Radiotherapy Questions in the forum Newcomers 6 years, 2 months ago

Hi Paula

Thanks for sharing your Radiotherapy experience, it was very helpful.

I’ve got my first session next week on Tuesday 30th Jan.

So hopefully things will all go well.

Kind regards

Karl

karl66 started the topic Radiotherapy Questions in the forum Newcomers 6 years, 3 months ago

Hi

I’ve recently been diagnosed with Plasmacytoma and I’m having 4 weeks of daily Radiotherapy soon.

My questions are:

What does Radiotherapy feel like as it’s done?

Are there any side effects that anyone has experienced?

Are there any feelings of fatigue or pain afterward?

How long after Radiotherapy does it usually take to get the res…[Read more]

karl66 started the topic Recently diagnosed with Plasmacytoma in the forum Newcomers 6 years, 3 months ago

Hi,

I’ve been diagnosed with Plasmacytoma in my spine and want to connect with anyone who has this, or similar, and can offer advise and share information.

My history:

It started last August 2017, I had back pain after working on our new house, clearing heavy rubble sacks left by a plasterer, and was initially wrongly diagnosed as having musc…[Read more]

Forums

@karl66