kayphillips

  • kathleenphillips replied to the topic cornwall in the forum Off topic 10 years, 8 months ago

    That would be great! Let me know the details nearer the time, and we will arrange something!

  • kathleenphillips replied to the topic cornwall in the forum Off topic 10 years, 8 months ago

    Way down, in Falmouth. I'm sure there are people in Cornwall with myeloma, but as sufferers tend to be older, they may not be on line! We are about 60 miles from Plymouth.

  • Hi Annika, you have certainly done the right thing coming to this site, there are so many people to chat to, and get support from. My husband was not half as bad as we expected on his first line of treatment. He is younger that your husband(55), but he tolerated the treatment very well. The steroids made him very grumpy, and shakey, but thats a…[Read more]

  • kathleenphillips replied to the topic tiredness in the forum Carers 10 years, 8 months ago

    Thank you so much for all your replies. It has really helped to know I am not over reacting. I am slowly learning to stop all the "what ifs", and just appreciate that he is well at the moment, and that we still have more treatment options. All in all, we are in a good place at present, even though we have this cruel disese hanging over us. Thank…[Read more]

  • Hi Marion. My husband was diagnosed 2 years ago. There are many forms of treatment, and they seem to be taylored to the individuals needs. No two people are the same, and the Myeloma behaves differently in everyone!! There is a lot more hope these days, and with treatment, your Dad should have some time yet. It's a shame about the Doctor…[Read more]

  • My husband and I would love to come to one of the Myeloma days, but being in deepest darkest Cornwall, they are all too far away. Is there anyone else on this site that lives down here? As beautiful as it is down here, we are a bit 'apart' from the rest of the uk, so it would be nice to find someone down here to comunicate with, and perhaps meet.…[Read more]

  • kathleenphillips replied to the topic tiredness in the forum Carers 10 years, 8 months ago

    Thanks for your reply, I feel positively normal now!!

  • kathleenphillips started the topic tiredness. in the forum Carers 10 years, 8 months ago

    Do any other carers out there find that they are very tired all the time? My husband has had Myeloma for 2 years and at present is doing well after a sct, but I am constantly tired and on edge. I try to treat him normally, but even if he is in the loo a long time, I call out to see if he is ok! His paraprotein is only 3.1, so we have nothing to…[Read more]

  • Hi Clarabell. Fingers crossed for your Dad. My husband had a course of ctd last year. I don't know if it is the case for everyone, but he got very grumpy on it, to the point of being a bit hurtful towards me. Your Dad may not be the same, but be prepared just in case. I think it is the deximethazone the is the cause as it is a powerful…[Read more]

  • Hi! I'm new too. My husband has had myelome since 2009. He had his sct a year ago today! It took him about 6months to feel well again, but he is still very tired all the time. It's a big thing to take in isn't it, and I still have dark days, although I am always reassured by the advances they seem to be making. Hubbys back broke, and that is…[Read more]