[kathleenphillipsParticipant]

That would be great! Let me know the details nearer the time, and we will arrange something!

[kathleenphillipsParticipant]

Way down, in Falmouth. I'm sure there are people in Cornwall with myeloma, but as sufferers tend to be older, they may not be on line! We are about 60 miles from Plymouth.

[kathleenphillipsParticipant]

Hi Annika, you have certainly done the right thing coming to this site, there are so many people to chat to, and get support from. My husband was not half as bad as we expected on his first line of treatment. He is younger that your husband(55), but he tolerated the treatment very well. The steroids made him very grumpy, and shakey, but thats a small price to pay!! Hopefully your husband will continue to do well. I don't think cancer treatments are as bad as they used to be, and the Doctors are more aware of the patients well being. My husband has had myeloma for 2 years now, and the only thing that affects him is fatigue, which we have learned to work around. Of course it will come back, but there are more treatments available, so I try not to worry too much. Years ago cancer used to be a death sentence, but remember, people live with myeloma for years, so try to stay positive! xxxx

[kathleenphillipsParticipant]

Thank you so much for all your replies. It has really helped to know I am not over reacting. I am slowly learning to stop all the "what ifs", and just appreciate that he is well at the moment, and that we still have more treatment options. All in all, we are in a good place at present, even though we have this cruel disese hanging over us. Thank you all, xxx.

[kathleenphillipsParticipant]

Hi Marion. My husband was diagnosed 2 years ago. There are many forms of treatment, and they seem to be taylored to the individuals needs. No two people are the same, and the Myeloma behaves differently in everyone!! There is a lot more hope these days, and with treatment, your Dad should have some time yet. It's a shame about the Doctor though, they should realise that we are not all medics! You have done the right thing coming onto this site, during my dark days I always find someone to talk to. Love to you and your Mum and Dad, I do hope his treatment starts soon, and you get a better idea of whats happening.

[kathleenphillipsParticipant]

Thanks for your reply, I feel positively normal now!!

[kathleenphillipsParticipant]

Hi Clarabell. Fingers crossed for your Dad. My husband had a course of ctd last year. I don't know if it is the case for everyone, but he got very grumpy on it, to the point of being a bit hurtful towards me. Your Dad may not be the same, but be prepared just in case. I think it is the deximethazone the is the cause as it is a powerful steroid. Other than that, it was very sucessful, so it's a small price to pay I suppose!!

[kathleenphillipsParticipant]

Hi! I'm new too. My husband has had myelome since 2009. He had his sct a year ago today! It took him about 6months to feel well again, but he is still very tired all the time. It's a big thing to take in isn't it, and I still have dark days, although I am always reassured by the advances they seem to be making. Hubbys back broke, and that is how he was diagnosed, so he gone through extensive reconstrustion of his spine too. Be gentle with yourself, and remember although your husband has got the actual cancer, you are a victim of it too, just in a different way!

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