Hi Deb

I too sm sorry to have to welcome you to the MM Club! Sorry you have got it so young. I am nearly 68yrs!

As others have said, if there ever was a time to have MM, now is the best. There is so much expermentation going on, and, also so many new drugs available.

Very best wishes for the decisions being made for your treatment.…[Read more]

Hi Steve

When are you taking the Dex,should be early in the morning as possible,it did make Slim argumentative,so certain he was right,plus became anxious at my driving luckly he did realise it was the Dex,It gave him a good appetite for a few days,so that was good.
The bad thing about it,is it mask infections,so you have to be careful and…[Read more]

Hi Peter

Well av seen a manky Butchers dog more than once to be fair Ha ha, well you will lose a bit but trust me it will come back with a vengance lol

I hope your Young Bride has a great Birthday and am sure you should be doing something on the 17th that will keep you out of bother.

Catcha Later and Take care

Tom Onwards and Upwards

Not a Problem Lisa hope Hubby (dont know his name? ) is soon better and bear in Mind the treatment and side effects differ from each of us.

Where is Hubby (name) being treated?

Love Tom "Onwards and Upwards xxx

Hi Peggy

Am gonna Google "Smeegle" he he ?

Hope ur home now and all settled in? sorry you had a bad time but am sure you will get better soon, stick with it, it works.

Love Tom Onwards and Upwards xxx

Hi Lisa

Sorry your hubby is not feeling so good and hope he starts to improve soon. When Frank was on CDT for the whole time he had the most horrendous rash in his groin. They tried everything g to get rid of it. It did not go totally away but eased a bit, and then went away when he finished meds. I know it took him some time for him to feel…[Read more]

Hi Keith
Well you like to have a bit of a rough time dont you ? am sure i told you Nice and "Smooth" with a bit of Vodka and a few nuts keeps my Blips (thats what yours is am sure) at bay 😀
Am sure you aint gonna let it beat you Keith am sure you have more fight in you its getting near spring and am sure that helps us all M8.

If you do…[Read more]

Hi Deb

A warm welcome to the "Scary" place ?? well its not that scary its a great place for advice/help and a place to near cuss with all the problems that are thrown at us due to the MM.

I wont ask you not to worry because you will, I will tell you we have loads of Members here that have gone through what you are now going through and…[Read more]

Hi Lisa and Hubby

Am sorry Hubby is having too many infections? (what kind of infection?)
As for the CDT I was on that in 2009 it made me tired that tired that I went on sick during my 4th cycle 🙁

Lisa always keep an eye on his temp and stuff as the Dex can hide an infection, am sure you have been told to ring the ward that he was being…[Read more]

Hi Deb,
Welcome to the site and I hope you find it as useful as I did….it got me through the first weeks and months after my diagnosis.
I would echo what Lorraine has said above. It is scary in those early days when even the terminology sounds scary! But it does all get easier. I smouldered for a year, then went onto the Myeloma XI trial where…[Read more]

Hi Wendy

Nearly missed your post!!! It would be easy to say not to worry,but after enjoying so much freedom from MM,it must be very depressing to think you have to start treatment,lets just hope it's a bit of a blip,if you start preparing yourself for it,it will be like livening on a roller coaster,Slim takes the attitude if you cannot change…[Read more]

Chris, Brilliant, have it somewhere, or will download it,

Jean, no I don't have it but will call them tomorrow, always useful

Peter, I always see it on her computer screen, with numbers in red (guess these are the numbers misbehaving!), will see if she'll print it out for me 🙂

Thank you

Hi Daniel

You have come to a good place for information,and you and your dad can be assued people will give you all the help and support they can.

Please get it out of you mind how long,!!! It sounds bad but there is so much treatment these days,as you know it is treatable but alas no cure,it buys time,your dad had a good response first…[Read more]

[u]Day Twenty Two (Day Eighteen)[/u] The Day Our Hopes Were Raised

Phil's neutrophils were up to 0.4 and there was a rumour he may be allowed home on day twenty three. Phil stopped taking the extra Adcal today as his calcium levels have returned to normal.

[u]Day Twenty Three (Day Nineteen)[/u] The Day the Neutrophils Hit 0.5

Phil's…[Read more]

Hi Deborah

Welcome to a place where no one wants to be I remembered a post of yours some months ago you were smouldering? My husband Frank smouldered for 6 years and in June started six months of CDT and few weeks ago had a stem cell harvest. He's just waiting for a bed for the transplant. As Kerry said it is so hard to get your head round…[Read more]

Hi Sarah Jane

Have you asked for the MM diary. I think it was Ellen (the MM nurse). I find it very very good. It is divided into sections – questions to ask dr Medical terms and a section where you can record all the bloods like Pp neutrophil, white blood count, haemaglobin, kappa light chains etc. I ifnd it very helpful as I can keep a close…[Read more]

Hi Daniel and Dad

Am sorry your Dad is having trouble with his back 🙁 How long are you looking?? well truth is no one can say apart from the Dr who will have a good Idea, But my thinking is that it could be a long time as they are getting your dad ready for a SCT 😀

Stay strong Daniel am sure your Dad will be well looked after during…[Read more]

Hi Wendy
Hey I hope its just a Blip young Lady 😀 and your KL drop to normal, its a worry everytime we go to have bloods checked I worry about it everytime the date comes round :-S

Lets Hope all is soon back ro normal when you go Feb 😎

Love Tom "Onwards and Upwards xxxx

Hi Keith

What a blow that the Bendamustine seems to be loosing its grip. As you say, you are in God's hands – is there a better place? It still doesn't mean we don't have to battle on. I was very impressed by one of the participants on this week's "Songs of Praise". He was a paraolympic who was trying out bionic legs. He said, at the…[Read more]

Hi Peggy

Sorry to hear you ahve had such a bad time and with complications at home -what are they doing!!!! They must be in a sorry state too. Hope both sides soon get the all clear.

At least yu are on the right side of the SCT, even if it has been such a bad experience.

I sympathise about the hair problems. Although I didn't lose all…[Read more]