tom replied to the topic Pete's SCT – so it begins!!!!! in the forum Treatment 13 years, 6 months ago
Hi Every one
First Vicki and Colin, am so sorry your Dad passed away Colin I send my Condolances to you and your family at this sad time, please keep strong and well.
Ann and Pete, well you know we all differ through all the treatments I was on the machine for 3/4 hours (see how fast you forget 😀 } and got enough in one laying (wasn't sat…[Read more]
meganjane replied to the topic Pete's SCT – so it begins!!!!! in the forum Treatment 13 years, 6 months ago
Hi Ann and Pete,
I think different hospitals do have different protocols, at Bart's in London they like to have 4 million for a transplant but I think it also depends on your size/weight. I am afraid I may have posted about Phil's number, he got 7.75 million, I was worried as it was not 8 million but reading about other people's experience I…[Read more]
meganjane replied to the topic Phil's SCT Journey in the forum Treatment 13 years, 6 months ago
Hi Helen – Sadly as you can see from my Day Two post the private room did not last. You only get that if you are sick and need to be kept away from other patients!!
Hello Chris – I don't think Bart's has a counting system, if they do I have never heard about it. We were asked twice by nurses today what treatment we were expecting!! I am sure…[Read more]
meganjane replied to the topic Phil's SCT Journey in the forum Treatment 13 years, 6 months ago
[u]Day Two[/u]
Midnight Phil is given his 9pm meds
8:15am Phil is asked to fill in an Admittance form that should be filled in within one hour of admittance 🙂
11am Phil is moved from his private room (we knew it was too good to be true!!) to a room with three other men
11:30am More blood is taken for tests
1:15pm We are sent…[Read more]
jmsmyth replied to the topic Pete's SCT – so it begins!!!!! in the forum Treatment 13 years, 6 months ago
Hi Ann
Sorry to read of the disappointment. When we saw consultant last week I asked her was it 2 million they had to coolest and she said no it had to be at least 1 million. Maybe different hospitals have different rules. Yes Ann we go tomorrow and Frank has had a terrible day. He has had terrible pain on his chest and back. He phoned hospital…[Read more]
BADGER replied to the topic Happy Christmas and a HEALTHY New Year to you all in the forum Off topic 13 years, 6 months ago
Merry Christmas to you and yours David
I hopeyou have a lovely time with your family
Love Jo
BADGER replied to the topic In Hospital… Again! in the forum Treatment 13 years, 6 months ago
Well Dia
here we go again you certainly dont do things by half this dam cdiff doesnt seem to go away good news about the bendamustamine I do hope you are well for your birthday HAPPY BIRTHDAY FOR XMAS EVE try to get and stay well
BigBig((((hug)))
Love Jo x
jmsmyth replied to the topic Been a bit quiet but just started Cycle 3 RCD Myeloma XI Trial in the forum General 13 years, 6 months ago
Hi Sarah Jane
Great new about the PP's. long may it continue. Sarah Jane a great Christmas and a HEALTHY happy new year
Love Jean x 🙂
jmsmyth replied to the topic Blood reap in the forum Newcomers 13 years, 6 months ago
Hi Rita
Sorry I'm like Tom I cannot help but hope someone will come along soon that will be able too. My best to your son
Love Jean x
SarahJane started the topic Been a bit quiet but just started Cycle 3 RCD Myeloma XI Trial. in the forum General 13 years, 6 months ago
Just wanted to thank you for all the replies I have had to various posts over the last few months. I went a bit quiet just trying to concentrate on the pills, more pills and more pills!
But I have had some good news, after Cycle 1 my PP went down from 38 to 7! I couldn't believe it – I really didn't think it would drop so far so quickly. But my…[Read more]
tom replied to the topic Blood reap in the forum Newcomers 13 years, 6 months ago
Hi Rita
Am sorry to hear about your son, but I can't help you with this one, just wanted to wish your son good luck..
Tom Onwards and Upwards xx
tom replied to the topic My friends got Parkinsons in the forum End of Life and Grief 13 years, 6 months ago
Hi Roz
I am sorry your friend is ill,and am sorry you are having to cope with it so near the date of Michealmpassing away.
It's good that you are helping her at this time and am sure you will make a difference to your friend by your advice and help with the strength you have got (yes you have strength) .
Keep looking at the tree, your…[Read more]
jmsmyth replied to the topic Phil's SCT Journey in the forum Treatment 13 years, 6 months ago
Megan good luck to Phil. Hope all goes great! 🙂
Love Jean x
tom replied to the topic revlimid and vorinostat in the forum Side-effects 13 years, 6 months ago
Hi Babs
I was give anti sick tabs during my CTD and SCT and used them for over a month post SCT.
Good Luck and get some anti sick tabs.
Love Tom Onwards and Upwards xxx
meganjane started the topic Phil's SCT Journey. in the forum Treatment 13 years, 6 months ago
[u]Day One[/u] (or is day one when you get your cells back?): We arrived at the hospital at 2:15pm for blood tests, to get Phil's line put in, a MRI and to be seen by a doctor before being admitted. That at least was the plan.
2:45 blood was taken but Phil was told he would not get his line today as they were too busy.
4:45 more blood…[Read more]
tom replied to the topic Pete's SCT – so it begins!!!!! in the forum Treatment 13 years, 6 months ago
Hi Ann and Pete and all
Am sure I posted here ..?..?
But good luck to you all and Colin I am sorry to hear about your dad.
Love Tom xxxx
tom replied to the topic Cycle 10 in the forum General 13 years, 6 months ago
Hi Andy
Well we are posh ???? IPad mini handy ain't they.
Am same as you Andy hope it's the word getting out and not a rush of poor beggars with MM
Keep well Andy and as you know Onwards and Upwards.
From my IPad 2 😎
tom replied to the topic in hospital for my sct in the forum Treatment 13 years, 6 months ago
Hi Peggy
I bet you find it strange to h
Ave no internet for a few days ???? good luck and take it steady.
Love Tom Onwards and Upwards xxx
meganjane replied to the topic Peripheral Neuropathy in the forum Side-effects 13 years, 6 months ago
Thanks Jo,
We may look into the electric pulse thing if it doesn't get any better. Phil is hoping he will be able to block it out more when he is feeling better and gets busy doing things again. Phil finds it most noticeable when he is sitting or lying and doing nothing so hopefully once he is moving more it will fade from his mind a…[Read more]
meganjane replied to the topic in hospital for my sct in the forum Treatment 13 years, 6 months ago
Hi Peggy,
I hope you start to feel better soon and that the rest of your stay in hospital goes smoothly.
Megan