Hi & Thanks so much Helen

As you can probably tell by the time of my reply I am on DEX and wide awake and twitchy!
Keep well you too.
Love Carol xxxxxx

Hi Sue
May be the answers lie in what you did not hear!!!!!

When Slim was being taken to ITU a doctor in front of me said to him,you are being taken to ITU "I cannot promise you,you won,t die",he did nor ask and he cannot remember:-P.

Sue you need to speak to someone may be a consultant or your own doctor,you need to ask for a second…[Read more]

Hi Joe
Many thanks and lets keep thinking that yours is going to go on for years to come so relax and enjoy!!
I have heard from a lady in America who was diagnosed thirteen years ago and is still going strong, so it does happen.
Take good care of yourself
Love Carol xxxxxx

Hi Keith
Many thanks for the prompt reply – especially when you are going through the mill at present and over past years.
The general information is great but I suppose just hearing from someone in a similar position helps me to treat the situation in a calmer fashion too!
I'm very reticent about another transplant as mine didn't go too well…[Read more]

so glad i read your post, I m similar situation, my daughter Tracey is 16, got the pets, business and most importantly Cyril my husband to care for. My parents live sin South Africa and the times I ve tried to speak to my mum we both just got so emotional so know I do the pretend I am ok all the time. But deep inside I am so scared…. A few…[Read more]

hi Kieth

good luck with the BMB i hate them i suppose its parr for the course but i hope its good news for you and they can sort you out to get a bit of normal life I have just started Velcade had 3yrs 6mths remission from CDT hope i get a good one from velcade
love Jo x

Hello Carol

sorry about the relapse I havnt had an SCT but have just started treatment after a 3year 6month remission its a bit of a b***mmer for us we know it will happen but always hope it wont I have started VCT had two injections already with cyclo and the dreaded DEX but only 20mgs two days running last time i was on 40mgs four days…[Read more]

Hi Helen

Thank you for asking! The Ball was absolutely amazing…..the room was fantastic, the people seemed to really enjoy it and there was a lovely feeling around the place. We think that we raised over £22,000!!!

China was also amazing thank you….I wore a mask on the badly polluted days but generally we were quite lucky! It was a…[Read more]

Hi Sue

So glad to hear Michael is now home. I lit a candle for Michael, at church this morning, and prayed for a miracle that you could all have some lovely days together.

Love to you all.

Mavis xxxx

Hi Vicki & Colin

Its Good Colin is out of bed for a time even if he is asleep in chair, I bet he is a great Host before and will be again after SCT
Dai is correct but as for me I went out amongst it all club and walks (short ones)

Hope your counts are good Tomorrow Colin and get you off home where the hard work starts 🙂

Love Tom…[Read more]

Hi Sarah Jane

Hope you are still coping with your treatment. I sent you a little private message, so hope I did that properly! Take care

Andrea xx

Hi Pat

hope you are feeling ok today had a very interesting time at the MM day in London had major speakers from the medical world there was a lot of talk about new treatments which was encourageing we paid £20 for the day there was a nice lunch and really the chance to talk to others in the same boat some people have had MM for twenty years…[Read more]

Hi Phil

This disease has no normality,so one persons story,has no baring on your,s,my husbands neuts and platelets took a long time to become stable.The thing they look for is,although the neuts dip,they look for a little gain each time,my husbands went down to o.3 when he was taken back in,he is now 6 months on and plates are 84 should be…[Read more]

Hi Kerry and Melvin

Sorry it was another Hospital Dash but am pleased That you are now back Home Melvin, this MM is a bloody hatefull thing, but you are both fighting it with all the strenth you can muster keep that strenth going you two.

Love Tom "Onwards and Upwards" xx

Hi Vicki and colin

Well Colin you are soon on the move and sleep is good for you I slept for about 5 days when i had my SCT some times didn't know the young Bride was with me (wot sort of a host was i lol) as for the eating I didn't just water for me I used to order sandwhich for tea and choos it for Elaine so i didn't eat it.

Sleep well…[Read more]

Hi Tina
That long and hard ride you are having will soon be a distant memory for you (mine is nearly lol)
Think if i am correct I was about two months post SCT before I woke up and turned that Corner to being Fixed and that I knew I just felt "Fixed" 😎

Keep Well Tina and it wont be long now before you are "Up and At Em"

Love Tom…[Read more]

Hi you all

Not be long before you are at home Chris 😀 then you can start to get better faster, just keep away from those bugs and you will still need to sleep a lot and if you are like me still keep the bathroom door open Lol.
I was also stil taking the Anti Sick Tabs for a few weeks after getting home so ask for them before you…[Read more]