eve replied to the topic Low Blood Counts in the forum Treatment 13 years, 8 months ago
Hi Keith
When you feel well the last thing you want to do is spend time in hospital,it was always a fight to get Slim there when I thought he needed to be checked over,you tend to think you know what is best,but I know from Slim there is a fine line between being well and being confused and he crossed it many a time.
The platelets below 20 is…[Read more]
BADGER replied to the topic Public Swimming Pools in the forum General 13 years, 8 months ago
Hi NETTIE
I have been swimming a lot at my local pool go early in the morning before all the kids get in got a throuat infection once I thought it could have came from the pool but not sure just try not to get water in your mouth its a bit unconfortable but I do breast stroke with my head out of the waater
Love Jo:-P
tom replied to the topic So What Magic Happened Here? – Wedding Poem for Becky & Liz in the forum Off topic 13 years, 8 months ago
Dai Why oh Why do you seem to do it most of the time????? Yep I had a tear in one of my eyes you burgar 😎 its great dai and much too good to be spoilt by adding my name to it.
I Know you will be well for the big day and am sure every one will loove it.
Tom xx
tom replied to the topic Public Swimming Pools in the forum General 13 years, 8 months ago
Hey Nettie
I wasn't told to avoid it but I did (aint too good in water lol)
My Young Bride was told to avoid indoor pools (for 121 months) after she had Radio therapy when she had her op for breast cancer but wal Ok to go in the sea.
Keep well
Love Tom (cant swim well) "Onwards and Upwards" xxx
tom replied to the topic It's not the cough etc etc in the forum General 13 years, 8 months ago
Thank Ali I am doing Ok not coughing as much but think I am losing my Voice (am sure I heard my young bride say "cant wait" lol)
I was told I dont need to redo mine?? but am sure it will help if you E mailed the Nurse on here 😀
Love One Getting Better Tom "Onwards and Upwards" xxx
tom replied to the topic We lost our dad. in the forum End of Life and Grief 13 years, 8 months ago
Dear Vicky
I am so sorry about your loss but am pleased your Dad was at home with you all.
Love and Hugs to you all at this sad time
Tom xxx
tom replied to the topic Traipsing (Not Tripping) Down The Aisle in the forum Off topic 13 years, 8 months ago
Dai and Janet am sure you will have a great day and dai you will be spot on as I know you have rested up and saved your strenth for this wonderful day, Have a great time and Love to you and all yours on the great day, you may add me into your speach I dont have a problem with that Lol.
Love to you all
Tom "Onwards and Upwards" xx
tom replied to the topic Just Diagnosed in the forum Newcomers 13 years, 8 months ago
Hi Charlie and Mary
Well am Pleased you are both well 😎
Am sure you know that I am now Drug Free 😀 but what I read on here the Velcade sounds like a good one and good for us humans 😎
I am with you re that hot beach and a few Vodka's thrown in also.
Our week end away was great we had a bril time and sent kids home on Sunday…[Read more]
tom replied to the topic It's not the cough etc etc in the forum General 13 years, 8 months ago
Hi Helen well am pleased I am reading this as it makes my bad chest seem a lot better, and trust me I dont think you could get "Grumpy" 😉
I asked about child hood jabs and was told i dont need them?? we will wait and see Lol.
Now waiting for Dr's to get more Flu jabs in they have run out??
Love Tom "Onwards and Upwards"…
tom replied to the topic SMM has become Myeloma – immediate treatment in the forum Newcomers 13 years, 8 months ago
Hi Sara Jane
A warm welcome and I would like to wish you well on your road to remission. I hope the road is a smotth one ? I felt mine was smooth after reading some posts on here later on? or is it that the mind can blank things out?? nope I had a easy run thats for sure.
Stay Strong and stay well and follow what your body tells you, I know…[Read more]
eve replied to the topic It's not the cough etc etc in the forum General 13 years, 8 months ago
Hi Helen
Well you must be feeling rotten ,I asked should Slim have all his childhood injections again,and was told,only needed them if he had donor cells,sounds if there might be a case for having boosters.
At least you now know what it is,which must give you some peace of mind,are you having to have a lot of time off work,this cannot go down…[Read more]
eve replied to the topic SMM has become Myeloma – immediate treatment in the forum Newcomers 13 years, 8 months ago
Hi Sarah Jane
It,s all a bit mind blowing at first,and naturally you are worried about your child.Try to take one day at a time,and get help to sought out your problems,the easiest way to do it,is contact the Mac Millan Nurses.
They can help you with all forms,get things in place now because you will not feel like doing it later,blue…[Read more]
eve replied to the topic Just Diagnosed in the forum Newcomers 13 years, 8 months ago
Hi Charlie and Mary
Glad to hear Charlie,s at home,not a bad thing to start on Velcade. I think it it is about time they used it as a first line drug,rather than second.
We all know everyone is different with all the drugs ,so I can only speak for Slim,Velcade worked,less side effects plus felt much better in himself,unable to sleep much,but…[Read more]
SarahJane started the topic SMM has become Myeloma – immediate treatment. in the forum Newcomers 13 years, 8 months ago
Hi, rubbish news this week, my MRI showed I have a tumour on a vertabrae and I have had to start treatment straightaway. At least it explains the back pain and I am greatfull for the support from Stoke Mandeville where I will get all my treatment.
I decided to go on the Myeloma XI trial – and got RCD. Although I had a few days just on DEX (I'm…[Read more]
jmsmyth replied to the topic We lost our dad. in the forum End of Life and Grief 13 years, 8 months ago
Hi Vicky
Min is involved in widows groups. If you do a search on the site for her posts or even send her a private message. Full name is Min Cato and she is very helpful
Love Jean x
jmsmyth replied to the topic Public Swimming Pools in the forum General 13 years, 8 months ago
Hi all
Just putting my penny worth in. Years ago I was told about what was in public pools (maybe I'm paranoid) but I will not go into a public pool or jacuzzi. Now in saying that my sons do tell me "get a grip mum'. But that's me
Love Jea x
jmsmyth replied to the topic Traipsing (Not Tripping) Down The Aisle in the forum Off topic 13 years, 8 months ago
Dai and Janet I hope you have a fantastic day tomorrow and my love to the happy couple – Becky and Liz cheers!! Enjoy and have a ball and make fantastic memories.
Love Jean x
jmsmyth replied to the topic We lost our dad. in the forum End of Life and Grief 13 years, 8 months ago
Dear Vicky
Sorry you dear dad lost his battle with this horrible disease. My deepest sympathy you, your mum and all your family. Take care of yourself and especially your mum as she has lost her life partner and will need all your love and support. Take strength from each other
Love Jean xxx
BADGER replied to the topic velcade in the forum Newcomers 13 years, 8 months ago
Hi Michael
sorry to hear about Jo same name as me I had cdt when first daignosed in jan 2009 could not have SCT due to renal failure it actually worked for me I was in full remission until the beginning of this year my PP's are still very low but my light chains are rising so due to my damaged kidneys I will have to start Velcade sooner than most…[Read more]
tom replied to the topic My 39 year old Melvin's MM Journey……. in the forum Newcomers 13 years, 8 months ago
Hey Kerry Happy Birthday Young Lady Hope you have a good one 🙂 xxx