Dear Maureen and Ian

I do wish you well in your battle. I'm glad that you, Maureen, have the emotional energy to carry on with it.

I was misdiagnosed for months as worsening arthritis, when the fact I had reported weakening and falling (not results of arthritis) should have alerted GP. I also begged for Private Appointment with Consultant,…[Read more]

Hi Dai

Well you new I would not be able to resist your charms lol (no problems Janet)

I will do my best to put it in some form of order!!!

First Ali,s Revidimide ,the doctor answered her question " if it was your mother" I believe that doctor did the best for patient,but you have to ask yourselves how many doctors would be thinking the…[Read more]

Hi Everyone

Interesting reading different diagnosis,which makes the difference between damage and no damage!!!
Tom you surprise me,I thought you would think doctor know,s best ,learning new things about you,takes something to question a doctor or 2 doctors opinions.

Tom M. I agree completely with you ,you do have to be pro active,in many…[Read more]

Dear Hawkeye

I am so sorry your Mum has passed away, condolence to you and your Mums Family and friends.
Just remember the good time before MM came through the door.

Tom xx

Hi Maureen

Well I was told I had a pulled muscle or a bruised rib when I went to GP, and before I left her I had another Dr brought into the room as I wanted. Second opinion as I knew it want one of those.

And after a bit of a fall out with both Drs I was given a chest X-ray , and as they say the rest is history.

Good Luck with it all…[Read more]

Hi Maureen

I do not know how your husband was diagnosed!! So impossible to comment except to say it usually begins with GP, I wrote to my original GP,asking questions wanting answers and I stated clearly no further action would be taken as I understood in general they do not consider Myeloma they consider back problems.

My most important…[Read more]

Hi Everyone

On reading all comments about maintenance ,I would like to add mine.

As people know Slim only got six months after 100 daysSCT .he was randomised. No maintenance . He had complete remission ,I do wonder if he had maintenance would he have got longer????.his general health,cough colds infection is excellent,and his bloods have…[Read more]

Andy and Steph

Am sure it was a great service, and am pleased He had a good send off.
Thanks for posting this Andy.

RIP Keith sadly missed

Hi Ali and you all

Well I had CTD then onto SCT and now sit here in remission so I cant help here Ali apart from saying, I have done and will do anything to kick this MM into remission, I also remember at the start of the MM discussions that I was told I Might Just Might get a secondary cancer 🙁 But I and my young bride Took it on the chin…[Read more]

Hi Mandy

Sorry for the late Poste re your first 🙁 I must have somehow missed it :-S

But I am pleased the Op went well, I understand the Kyphoplasty is pretty good and am pleased it works for you.

As for the hair loss well am a mere Male Mandy and nearly 58 so it didn't bother me in 2009, am sure you will look beautiful when you lose…[Read more]

Thanks Vicki
I was warned it could fail – didn't realise it could fail twice! I now everything crossed for June. I know my CD34 was 3 and they could only do transplant when it was 8-10, so I was way off. Shame they can't do a test before you have to go through priming chemo/injections.

The funniest thing was it wasn't my head hair that I…[Read more]

Thanks Tom, will also save me lots of money on haircuts/shampoos etc 🙂
Although I am now spending money on scarves and hats – and suncream for my head – a new novelty
xx

rebeccaR

Harvesting for a rainy day sounds like a good idea, if I'd known I could of done that I would of. I was on Cyclophosphomide through my cycles – I was always told hair may stay/thin/fall out, but it stayed. I think the priming CYC is 4 times stronger which is why mine fell out over a few weeks, I also pulled/brushed it out, ironically I…[Read more]

Thanks Ange, sorry things are progressing – but at least you are being closely monitored. xx

Hi Dai

Well you are wrong about one thing,I am not sorry I asked!!! I hope you have a really good summer,I know how much I miss about our life before MM took its toll and living on memories is not the real thing,2. 1/2 years for us,with six months remission when Slim was not great is not enough. You are a lot longer and like us whole routine…[Read more]

Hi Dai

How are things going!!! 10 days is a long time when you are waiting to see what results you will get from GCSF,do you feel good in yourself !!! Are you able to enjoy some free time away from medication!!

Spring is late this year,but it is lovely to see the blossom and flowers in bloom,so looking forward to the heavy smell of the…[Read more]

Thanks for info Andy.
Hope it goes well

Tom x

Your welcome and I hope it soon heals.

Love Tom Onwards and Upwards xxx

Hi Vicki and Colin

Am pleased the Vino is going down ok, and yes the Young Bride and I had a great time, our youngest grandchild Sophie was one year old.
And don't forget we all help each other am pleased to say.

Love Tom Onwards and Upwards xxx

Hi Hawkeye

Belated Birthday greetings to your Mum 😀 same day as our Youngest Granddaughter now age One, so it's a great day all round.

Am pleased Mum is doing better.
Give her a cuddle from me

Love Tom Onwards and Upwards xx