maggiemay

  • maggiemay replied to the topic Back again, in the forum General 4 years, 6 months ago

    Hi Richard I don’t post often it is my husband who has myeloma but I remember your posts and know that you live in Germany and have a young child.  You have come a long way with this horrible disease as well as learning a new language.  Hopefully there are lots of options open to you and I hope you get one that works a long time.  As Andy says ev…[Read more]

  • maggiemay replied to the topic SCT in the forum Under 50s 4 years, 7 months ago

    Hi Sabs you are right it is a long haul and every day feels like a week when you are waiting on tests, appointments and treatment.  Six years on and I can’t say you get used to it but it does get easier, the first two years I couldn’t even say the word without crying.  It’s like the elephant in the room won’t go away but we are doing our best to g…[Read more]

  • maggiemay replied to the topic SCT in the forum Under 50s 4 years, 7 months ago

    Hi Guys

    I don’t often post here but felt your situation similar to our own.  My husband was diagnosed in 2011 after back pain, funny enough thought he had hurt it pulling his motorbike onto the main stand.  Took a year of radiotherapy and chemo for him to get to stem cell transplant but he got there and thankfully in remission since.  Advised no…[Read more]

  • maggiemay replied to the topic Zometa in the forum General 4 years, 12 months ago

    Hi

    Sorry you are having trouble with Zometa my husband had flu symptoms after his first couple of infusions, but not to the same extent as you.  I read that if the drug was administered slower it reduced the side effects.  He asked for it to go in slower 15 mins originally to 30 mins and this helped.  You could maybe give it a go.  Maggie

     

     

  • maggiemay replied to the topic Gill and Stephen Nash in the forum Carers 5 years, 5 months ago

    Hi Donna

     

    So sorry to hear the sad news of your Mum I could tell from her posts how much she missed Stephen. I loved her stories about her first trip back to France without him so brave and so sad.  My deepest condolences to you and your brother at this sad time.  Mags