I too lost my best friend my husband in nov 2014.  He was 46 no age. Diagnosed in jan 2014 and all set for his sct, and out of knowhere and with no prior warnings he was taken …….. My life has been completly shattered i feel numb and helpless. We have 3 children aged 9,15 and 18 … My son is in a bad place very angry and the youngest girl…[Read more]

Hi,

my husband passed away  last week. I was at his side, this happened so quick. His myelma was aggresive and we couldnt seem to gain control of it.. I wish each and everyone on this journey hope and strength.  I will contnue to support myeloma  and hope one day a cure can be found xxxxx

Hi all,

Hubby has discussed options with specialist- and agreed to stay on lenolidimide for 2wks then hv pp checked mid cycle! The dose is only at 15 not 25 so hopefully even with a reduced dose it will still have an effect.

if this doesnt go his way then he will unfortunatly have to go through dt-pace.

He hasnt had very good hospital…[Read more]

Thank you everyone, he still doesnt know what to do, like you say it must be his decision, we have devised a list of questions to be answered……. Maybe that may help,, we  have hosp apt for platlets tm and see specialist after. I personally feel the whole hospital experience  has left hubby  with little strength. Maybe  if we could bide a few…[Read more]

Hi chris,

My husband has mm diagnosed january this year….. The journey has been a rollercoaster of emotions. We started on ctd he had stem cells harvested…pp started rising so treatment swapped. This site is great, lovely people  giving their stories and lending a lstening ear ….. Just what you need sometimes x

Where would i find  the blog please

thanks

Thank you for the replies:

we dont want to swap our consultant at all….. Its just sometimes we see different and get a completly different view on things

alot of the problem from our perspective is TIME ….. There never seems enough to explain things and the reasoning behind them . We know because hubby is only 46 he fits criteria for DT…[Read more]

Hi bryn,

My husband is 45 diagnosed early this year with mm. He had been having back pain until one day he sneezed and i found him collapsed on the floor unable to move. We discovered soon after he had spinal chord compression caused by a tumour on his spine.this was what was causing his back to spasm.

5 days radio and with help of a zimmer…[Read more]

Hi all,

things  are not looking promising with sct !!! Husband had check up last thurs asked what bloods were from  june 2nd when he was last in brum…… They were 8.3 !! The previous one was 2.8 !!!!!! Bearing in mind he was due in at qe ths weds. Hes annoyed and really frustrated as no one picked this up in 3 weeks, if he hadnt of asked i…[Read more]

Hi,

hope you dont mind me asking Richard, how come you havent used your own stem cells ? My husband has a brother not tested at present. And we got the impression it was better to use your own stem cells……. We have done so much reading that we still really dont understand which is the right direction we should be going in. We have good…[Read more]

Thanks Mavis and everyone else… Meeting went ok came away much clearer and hv read through the sct booklet tonight. its a lot to take in ATM but once we know how things are working in the cycles we will be faced with where to go next x