[marianParticipant]

Hello Heather

Thank you for your reply.  It was very useful.  I don’t have severe back pain like you but enough that I’m waiting for an MRI scan and an Osteoporosis test.

I have heard there are some centres that give treatment earlier rather than later, have you or anyone else heard of that?

Anyway Thanks again and good luck with your treatment.

Best wishes

Marian

[marianParticipant]

Hello Smoulderers

I was on here a year ago.  Usually very cheerful but nowf feeling a bit down.  Two years ago my paraproteinss were 25, last year 33 and this year 43.  What I have is Asymptomatiic Myloma, asymptomatic because my other blood results are OK.  HB 117 but not falling.

I get very tired and have back pain and some dizziness.  My GP is very good and that is being investigated.

I think at diagnoses the doctors should be more honest and say that you may have symptoms.

I’m told I don’t need treatment while my main blood results are OK.

Do other people experience this.

Thanks

Marian 74

[marianParticipant]

Thanks for quick reply.  I’m glad you’re not having side effects.  Very reassuring

Marian

[marianParticipant]

Dear Sean

I have just joined this forum.  I was diagnosed last year with Smouldering Myeloma.  Like you I was told no treatment until Myeloma proper developed.  I found all the terms re lab tests confusing, but I got a book from the library 100 questions and Answers about Myeloma and it made things much clearer. The ISB no is 975-0-7637-5707.

Have you started treatment and how are you getting on?

All the best

Marian

[marianParticipant]

Hello Mike

Thankyou for your explanation.  It was all very clear.  I got a bit lost however with the bit  about the ratio.   I havn’t been given any light chain readings readings, so still not sure how that relates to my Paraprotein reading of 26.4 and total IgG 35.5.

Thankyou for your help.  You’ve been very helpful.

How are you getting on with tests and treatment etc?

Best wishes

Marian

 

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