My dear Roz,
Your posts have shown us all how good and strong a human being that you are. Your troubles are shared by us all and I wish I could take some of the pain from you. I am not a particularly religious type. I just want to do some good during my time on this Earth, and not offend or hurt anyone else. I can see no harm in you saying a prayer to Whoever you might believe in. Furthermore, if you feel that a few words from a Parson, Priest or someone in that "Line of Work", then do so.
What harm can come of it?
We are here for you, even if only in spirit.
Love,
John
Thanks for that info Roz. I'll pass on the msg to my friends.
Gosh Lynn, what can I say?. As a fellow Carer I know that there can be times when everything seems to be pointless. However, just do your best for John, because he needs to know that you are there for him. I am pretty hopeless at saying the right thing, but I am sure that there will be many more replies to your posting,and they will be a lot more constructive than mine.
Try and be positive and perhaps read that lovely poem(prose?)"Desiderata" by Max Ehrmann. It will give you some encouragement, I'm sure.
John
Hello Gill,
I'm a bit uncertain about the term "Consolidation Trial", but my wife has had three cycles of Valcade since October and, despite some side-effects, seems to be managing so far. Perhaps this "Consolidation" tning is a different type of treatment?.
Best of luck, whatever your decision.
John
Hi Min,
Thats good news about the breathlessness. Since Cecila has been off Vecade (for 2 weeks now) she too has recovered from that problem. I'm sure that after a while, Peter will develop a sleepng pattern, although it may not be similar to yours – ie again like Cecilia, he may be awake all night but sleeps during the day.In time, things will settle down. The good thing is, when he does sleep, you can then remove the batteries from his tank and WHOP him when he wakes up!8-)
Keep well,
John
Flippin' brilliant!. Welcome to the club.:-D
Brilliant. LOL:-D
[b]This one is for you Jean.[/b]
Last week was my birthday
and I didn't feel very well
waking up on that morning.
I went downstairs for breakfast
hoping my wife would be pleasant
and say, "Happy Birthday!", and
possibly have a small present for me
As it turned out,
she barely said good morning,
let alone "Happy Birthday."
I thought…
Well, that's marriage for you,
but the kids….
They will remember.
My kids came bounding down stairs to
breakfast and didn't say a word.
So when I left for the office,
I felt pretty low and somewhat despondent.
As I walked into my office,
my secretary Jane said,
"Good Morning Boss,
and by the way Happy Birthday! "
It felt a little better that at least someone had remembered.
I worked until one o'clock,
when Jane knocked on my door
and said, "You know,
It's such a beautiful day outside,
and it is your Birthday,
what do you say we go out to lunch,
just you and me."
I said, "Thanks, Jane,
that's the greatest thing
I've heard all day.
Let's go!"
We went to lunch.
But we didn't go
where we normally would go.
She chose instead a quiet bistro
with a private table.
We had two martinis each
and I enjoyed the meal tremendously.
On the way back to the office,
Jane said, "You know,
It's such a beautiful day…
We don't need to go straight back to the office, Do We ?"
I responded,
"I guess not. What do you have in mind?"
She said, "Let's drop by my apartment,
it's just around the corner."
After arriving at her apartment,
Jane turned to me and said,
" Boss, if you don't mind,
I'm going to step into the bedroom
for just a moment.
I'll be right back."
"Ok," I nervously replied.
She went into the bedroom and,
after a couple of minutes,
she came out carrying a huge birthday cake .
Followed by my wife, my kids,
and dozens of my friends and co-workers, all singing "Happy
Birthday.
And I just sat there…
On the couch…
Naked.
That is a wonderful posting Dai. I wish I had such an ability with words and sentiments as yours. Well done.
John
Dont let it worry you Bridget, because I'm pretty sure that when you finish with the Dex, you will return to your former glory. (dont get rid of the bikini just yet!). Cecilia, as with David, also piled on the weight, but now that she is off the Dex for the past 2 weeks,she is already slimming down. Mind you, her appetite has increased, but this is a good thing because for many months she was not eating properly at all.
Be happy.
Kindest regards,
John
Hi Min,
I'm so glad that Peter feels a good deal better after a good sleep. Like you, I am convinced that the Valcade, although very good, causes a lot of other problems. Go on and get him the tank (you can always threaten him with it if/when he becomes canTANKerous again!!
Keep well,
John
Hello Bridget'
Thanks for the reply. Could you please tell me what GSCF injections are?. Also, I'm uncertain what Bendamustine is (ie what is the "unmedically sounding" name for it?.
As I consider you as one of the pillars of this website, I value your advice and admire your fortitude.
Kindest regards,
John
Thats a good one alright, David. Yep, I think this thread has potential for lightening up a dark evening.
How about this:
A man walks into the street and manages to get a taxi just going by.
He gets into the taxi, and the cabbie says, "Perfect timing. You're just like Frank."
Passenger: "Who?"
Cabbie: "Frank Feldman. He's a guy who did everything right all the time. Like my coming along when you needed a cab, things happened like that to Frank Feldman every single time."
Passenger: "There are always a few clouds over everybody."
Cabbie: "Not Frank Feldman. He was a terrific athlete. He could have won the Grand-Slam at tennis. He could golf with the pros. He sang like an opera baritone and danced like a Broadway star and you should have heard him play the piano. He was an amazing guy."
Passenger: "Sounds like he was something really special!"
Cabbie: "There's more… He had a memory like a computer. Could remember everybody's birthday. He knew all about wine, which foods to order and which fork to eat them with. He could fix anything. Not like me. I change a fuse, and the whole street blacks out. But Frank Feldman, he could do everything right."
Passenger. "Wow, some guy then."
Cabbie: "He always knew the quickest way to go in traffic and avoid traffic jams. Not like me, I always seem to get stuck in them. But Frank, he never made a mistake and he really knew how to treat a woman and make her feel good. He would never answer her back even if she was in the wrong; and his clothing was always immaculate, shoes highly polished too – he was the perfect man . He never made a mistake. No one could ever measure up to Frank Feldman ."
Passenger: "An amazing fellow. How did you meet him?"
Cabbie: "Well, I never actually met Frank. I just married his flippin widow."
Yes I can concur with Bridget and Michelle. As I had mentioned some weeks ago, when Cecilia started on the Valcade, she experienced some frightening attacks of breathlessness although we assumed it was more to do with a flu that she was suffering from. She subsequently improved and has now learned to use her Nebuliser more often (4 times a day). Since she stopped her Valcade treatemnt mid-cycle two weeks ago, her aggravating cough has gone although she did become very tired and week. We discovered yesterday that her Platelets have increased (from 10 to 23) but her white cells are still very low. Valcade seems to be very good but, just like this flippin disease, its effects differ from person to person. I am sure that Peter will improve after his first cycle of treatment, just tell him to take his time while using the stairs and do exactly what his wife tells him!! LOL.
Kindest regards,
John
That was very interesting Kevin. Thanks. My wife, Cecilia is currently on Valcade/Dex (two and a half cycles completed then had to stop until her white blood cells come back up from 7.6. Yesterday she got 2 units of blood and is feeling a lot stronger today, so we are hopeful that her next blood test on Fri week will permit her to re-start the treatment. Unfortunately she has a record of failing each treatment regime after 2-3 cycles (Thalidomide, Revlimid, Cyco etc), so we are a little concerned that we are running out of ideas. Hence the importance of your post re Pomilidomode.
Thanks again.
John