[mhnevillParticipant]

Hi Helen

Sorry you had all this to cope with just when you were through the worst after SCT. Just hope it all turns out to be a blip. I remember once, on a pre-op session, being told that I had a silent heart attack. Carrying this worry for years, a later ECG showed no sign of it, so it shows they can get things wrong.

Love.

Mavis x

[mhnevillParticipant]

Hi Tony

I agree with Helen, your post was very encouraging. Has your MM had any bone involvement.
Yes, I know how we all worry about the numbers. I find it hard to get results too which is frustrating.

Very best wishes. Don't work your life away, but may your non treatment phase last for years.

Mavis

[mhnevillParticipant]

Hi Tom

Can I add my best wishes to everyone else's.

Very best wishes.

Mavis

[mhnevillParticipant]

Hi Ann

So sorry to have to welcome you to the Forum. As everyone has said, everyone's MM journey is different. If your blood shows Paraprotein, the level of PP at diagnosis, and the rate at which the readings rise will influence decisions about treatment regime. It might be useful to speak Myeloma UK Specialist Nurse with your specific questions.

All best wishes.

Mavis

[mhnevillParticipant]

Hi Jo

You are always such an encouragement to everyone here. So sorry to here things haven't been going so well. Glad you are improving. Do hope things go well with Velcade, but sorry you have to have it. Hope your kidneys cope OK.

Lots of love.

Mavis xx

[mhnevillParticipant]

Hi

Welcome from me. Like everyone else I'd encourage you to continue with CDT. I had a sickness episode and was in hospital for a week and I had shingles, but six months on from the end of six cycles, and still in remission, I am glad I had it.

All best wishes.

Mavis

[mhnevillParticipant]

Hi Gill

Yes, what a lovely picture. Stephen obviously had a lovely friend in his dog!

I was mentioning about talking to a photo, in an earlier post, this would be a lovely picture to "talk" to.

Take care and continue to be kind to yourself.

Love Mavis x

[mhnevillParticipant]

Hi San

Sorry your Mum is having such a hard time. Does your Mum have any arthritis by any chance as my Pain Nurse says the morphine type drugs don't help that pain so I am taking anti-inflamitories as well.

I have also begun to have some physio at home and the exercises are certainly helping my back by strengthening my muscles.

Do keep trying different tactics.

Love Mavis

[mhnevillParticipant]

Hi Gill

In view of the short time since you lost Stephen you sound to be doing well. I used to talk to my Mum's photo for ages after she died. I found it really comforting and often seemed to get "advice"!

Keep doing good.

Love Mavis xx

[mhnevillParticipant]

Hi David

You are always so encouraging to everyone else so wanted to send you my very best wishes. Do hope the Velcade does the trick.

Love Mavis x

[mhnevillParticipant]

Hi Eve and Slim

Can't add anything to what others have said, but just wanted to send my love to you determined pair. Hope you get lots more trips in.

Love Mavis x

[mhnevillParticipant]

Dear Jackie

I'm affraid i don't have any survival techniques for you, but just wanted you to know you are not on your own out there. Do be kind to yourself and don't expect too much of yourself. The grief of daughters and wives is by the nature of things different. Trouble is, daughters still think you are their Mum, the one who should make things right, and in this case you can't – much as you'd love to.

these days just have to be lkived thorugh, but as Tom says, cling to those memories of good times, even if they bring a tear.

Do hope your break with your friend helps. Perhaps you can help the "going home again" by leaving some treats ready, maybe some special chocolates, or bath smellies. Although these are no way a substitute for all you will be missing, they will allow you to pamper yourself a little, which would be what Norman would have done.

Sending prayers and lots of love.

Mavis x

[mhnevillParticipant]

Hi Val

Great news – long may it keep coming! Very best wishes for your move and all your future plans.

Love Mavis x

[mhnevillParticipant]

Dear Sandie

I am so sorry to hear your Mum's bad news. It does seem very unfair doesn't it. I am only glad it is not agressive so you can make the decision to make any treatment low key. I have heard that breast cancers grow very slowly in the elderly so let's hope this is the case with your Mum – she has enough to cope with. I pray you will all be given the strength to cope with all this and that there will be some quality times in amongst.

Love.

Mavis

[mhnevillParticipant]

Hi Babs

Happy birthday to your stem cells! How good you can look so positively on life. May those stem cells have many many more years.

Love Mavis x

[Author]

Posts