[mhnevillParticipant]

Dear Gina

Good to hear from you that you are all gradually coming to terms with your big loss. Don't forget, too, that you have also had all the sad hard MM journey to walk with your Mum before this. Coming to terms with loss takes lots and lots of time. Be kind to yourselves and dwell on those good memories. Think often, "what would mum say?"
And, hold onto the Easter hope, death never has the last word.
Lots of love.
Mavis xxx

[mhnevillParticipant]

Dear Dai, Jean, Gill, Helen, Tom, Jo and Paul,

I knew, once I could get on line I would get some nice re-assuring feed-back from "them that know!" Getting over the shock of a;ll this bone damage and trying to put the threat of stress factors to the back of my mind. Like you Dai, I have problems with my shoulders, but they are keeping me in hospital till I have someting to lift me into a more upright position before I get up in the morning so it relieves the pressure. Being a heavy lady doesn't help.

Even when I didn't realise I had a problem, I did notice that the healthy types, like Paul, seemed to be able to push themselves some of the time. (Sorry it's off limits at the moment Paul, but at least you have good things to look forward to, like a wedding!)

I have started on the gentle exercises and am planning for the future. Considering I couldn't hold my weight on my feet at all last Thursday, I felt exaulted to walk to the Nurses' Station with a zimmer this morning.

Apart from not being able to sleep – always a problem with me and hospitals, and no doubt made worse by Dex, I think I'm doing OK. I feel so grateful to have a wonderful medical team here – I really couldn't ask for better, and such great support from Myeloma Chat line. I don't know what I'd do without it. I felt my arm was cut off when I coouldn't get on line.

And Dai, you make your plans for Spain – I'm sure in the end Janet will be thrilled when you both get there and it will be one for the memory box, and you will be surrounded by fantastic music. It's bound to be scary, but I have been reading Jet's posts and she is determined to "go where she wants to go, and has already started!" A real inspiration.

Take care all of you, you are special people.

Lots of love.

Mavis xxxxxxxxx

Mavis xxxxxx

[mhnevillParticipant]

Dear Jill and Stephen

Can't tell you how much it cheered me up to come in on the end of these postings to hear that you are off to France and it was bu__er all! Scary days some are, aren't they.

Go and have some really chill out times, but hopefully not chilly!

Lots of love.

Mavis

[mhnevillParticipant]

Hi Andy

Sorry things aren't going as hoped with treatment. I can understand just how frustrated you must have been to have spent all that time in Hospitasl hooked up on infusion for it not to have the desired result. Might it have a delayed efffect? I am sending many positive thoughts and prayers that things can move towards a SCT soon.

Turn lots of those angry feelings at those perisher pps! If anyone can move it on, you will.

Love

Mavis

[mhnevillParticipant]

So pleased for you David.

Keep on being positive – I'm sure you can have lots of years of remission.

Much love.

Mavis

[mhnevillParticipant]

Hi Steve and Andy.

Welcome from me too. It is good that you are now both on site as I am sure that both of you, with your differering support needs will find the help and information you need.

Wonder what treatment Andy is having? Hope things are moving in a good direction.

Very best wishes.

Mavis

[mhnevillParticipant]

Dear Dai

AS you say in another post, it isn't a walk in the park, but if this maintainance regime keeps MM at bay while you waith fornthe next best thing, it must be good. More time with your lovely family.

Lots of love.

Mavis

[mhnevillParticipant]

Hi Ian

Glad this exceptional procedure seems to be doing the job for you. I am so proud of those of yo who try these new ideas out.

Very best wishes.

Mavis

[mhnevillParticipant]

Hi terry

I think it is marvellous that you felt able to text so soon with the additional problems you have had to deal with. It feels so terrible when folk seem to ignore you because of their defficiencies, not yours. They should know better.

Glad others were ablt to give you advice about the coldness. One thing I'd say is, if yopu start trembling take your temerature. I didn't realise, till I had a reaction to my first zometa infusion, tht shivering courl be a sign of a high temperature. How perverse are we!

I'm glad that Damart, a Bradford based firm making thermals, is getting a kick back from MM sales!!!!

Do be kind to your self. It is very very early days for you.

All best wishes.

Mavis

[mhnevillParticipant]

Hi Kirsty

Soory I missed welcomimg you earlier, for reasons I will be writing about in a minute. Still, as always, everyone else has done a good job of saying hello from the site none of us wanted to join! I find it so helpful and supportive and learn so much.

Of course you will be finding all this hard to take on boeard – who wouldn't! Let's face it, lots of GPs don't really know a lot about MM. As others have said, when you feel up to it, do let us know how you got to here and what treatment is planned. It helps us to get a picture of you in our minds.

Lots of love.

Mavis

[mhnevillParticipant]

Hi Nicola

Like everyone else, I am so sorry your dad lost the battle with MM so soon. Hold onto the fact that the love we have for one another never dies, but carrries on surrounding us with its warmth and protection. This is why memories are so comforting.

Hold on to the fact that death never has the last word. We have hope for a new life beyond this. To put it your way, your dad is an angel now.

My prayers are with you. Much love.

Mavis x

[mhnevillParticipant]

Dear Michelle

Like everyone else i send you my heart felt sympathy. I am so glad Phil had such a dignified end and that all the family could share.

Be kind to yourself in the days ahead and take help from wherever it is offered. It is natural to be sad, and to fall to pieces from time to time.

Love and prayers for you and all the family.

Mavis x

[mhnevillParticipant]

Hi Carol

Glad you've got to this point at last. Have a great break in Spain, then the best possible experience following the SCT.

All best wishes and love.

Mavis

[mhnevillParticipant]

Hi Andy

Great! By the time you read this your drastic treatment round will be over. Do hope that the recovery time isn't as bad as feared and that you keep free of infection. We will all look forward to hearing that those PP levels have shrunk beyond imagining.

Sending you lots of positive thoughts.

Mavis

[mhnevillParticipant]

Hello to another Mavis

So sorry you have had to join us, but do take some comfort from what everyone is saying, that there are lots of options – more all the time. Of course you will all be in shock, but you will be surprised how much courage you find you have.

Best wishes to all the family.

Mavis N

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