[michelleakitt29Participant]

Hi Dai

That is a lovely message to families and friends that have loved and lost.

with much love michelle x x

[michelleakitt29Participant]

Hi Fi

My mum has myeloma diagnosed in july 2009 at the age of 64, I was told then that they dont stage this type of cancer anymore…not quite sure why.
I just wondered why you feel that you cant talk to the consultant? My Mums is fabulous I just make an appointment and he answers all my questions with such honesty, I am also in constant touch with her lead specialist nurse who is also really helpful and honest with me. Have you tried talking to yours Dads Specialist nurse instead of the consultant? just a thought and I hope it helps.

with love michelle x x

[michelleakitt29Participant]

Hello Ali

just wanted to say hello and welcome you to the site……as i say to all the new comers you are not alone, and we all try and do our bit to help.

with much love michelle x x x

[michelleakitt29Participant]

Hello Marian
Just wanted to say hello and welcome to the gang, I dont get on here as much as i would like, but do try and keep upto date and read the posts…..its really hard when you first get the diagnosis, My mum was diagnosed in july 2009 at the age of 64, we have had numerous problems, but mum is still here to tell the tale. You have had loads of advice already, but just wanted to let you know that your not alone in this.

with much love michelle x x x

[michelleakitt29Participant]

Dear Susan

just to say that my thoughts are with you at this very sad time…..cant believe that i have not been on here for a couple of wks and then found 2 very sad posts.
with much love michelle x x x

[michelleakitt29Participant]

Dear Tina

I have just read your post and just wanted to send my love and my thoughts are with you at this very sad time.

with much love michelle x x x

[michelleakitt29Participant]

Thats fantastic new Gill, big hugs and loves to you both.

with much love michelle x x x

[michelleakitt29Participant]

Hi Joe
You are going through a really rough time at the moment, but you have come to the right place for support. I have 2 children one is 18 in August and the other will be 14 in June. To be honest with you i would be devastated if my boys didnt come to me when they had a problem. I see that you have already been to the doctors, have you managed to talk to Your Parents yet? I am pleased that it seems to be a minor problem, but you still need their support. As a parent it doesn't matter what we are going through my children are the most important thing and i would be there for them.
with love michelle x

[michelleakitt29Participant]

Hi Dai

I have been much the same as Debs, just didn't and don't know what to write!!

Do want you to know that I am thinking of you and Janet.

Keep positive.

with much love michelle x x

[michelleakitt29Participant]

Hi

I am so sorry to hear about your loss.

sending you ((((HUGS)))

Yep life is so very very cruel sometimes. I wish I could say more, but nothing I can say will make life easier at this sad time.

love to you and your family, thinking of you all.

with much love michelle x x

[michelleakitt29Participant]

Hi Shirley

What Fantastic news, I am so really pleased for you.

look after yourself

with much love michelle x x

[michelleakitt29Participant]

Hi Roz

There is nothing set in stone about the grieving process, everyone does it in their own time in their own way, dont feel guilty that will do you know good.
Whether you change your home or not Michael will still be with you in your heart and memories.
keep going your doing well.
with much love michelle x x

[michelleakitt29Participant]

Hi Roz

Lovely to hear from you, glad you are ok. I too have been wondering how you are, keep in touch.

with much love michelle x x

[michelleakitt29Participant]

Hi Sarah,
As Bridget says it can be very scary. My mum was diagnosed in July 2009, She was 63, she is now 65, She was in a really bad way at diagnosis and has given us some real scares, She is now doing as well as can be expected, she has a huge amount of bone damage, but she never lets it get her down…..(think they call it bury your head in the sand syndrome lol)Your Mum will be fine Im sure, try to stay positive, I know from experience this is not always possible. The guys and Gals on here have been great, I have had so much support and I will forever be in their debt. There is a lot of great help and support and advise from the members on here, always someone that can help and make you feel like you can deal with the situation. I found it a great help to talk to the specialist nurse and also the professor who Mum is under, I have never felt like I have asked a dumb question, Myeloma is a really hard diagnosis to get your head around, as everyones journey is different. I wish your mum well, and my advise would be to chat to the specialist nurses, who will be able to explain treatments etc to you. Don't go searching the web it can be even more scarey, use this site and the tools available. There is always the specialist nurse on here too.
with love michelle x x

[michelleakitt29Participant]

Hi Jon, sorry that you have had to join the club, however, hello and welcome. I am not a sufferer but my mum is, My mum tends to bury her head in the sand, me on the other hand needs to know!!! I have found great help and support on this site and met some fantastic people, support and friendship….some of us are avid facebookers lol. You do not come across as arrogant and being optimistic is your way of dealing with this, like you say not the way for everyone, wouldn't do for us all to be the same tho. Its great that you have found the support you need in your wife, family and work, and that you can talk through things with them.
My Mum has multiple fractures and 2 compressed vertebrae in her back, she went from being a fit healthy woman to being disabled and in a wheelchair, she is 65 now and 63 when she was diagnosed, she was unable to walk and now she is mobile in the house, and that is with sheer determination that she has been able to do this. I wish you well with your treatment, keep us updated with your progress. There is a couple of people on here on the myeloma X1 trials so I am sure the they will be able to advise you further on that.

with love michelle x

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