Hi sueg, it was if I had written this post ! My 79 year old mum was diagnosed in sept and had 4 x day carers coming in to provide end of life care as she had 12 weeks max. As chemo didn’t work. She detierated quickly and my children and I took her to the seaside in a wheelchair and then started chemo injections ( why ? we couldn’t work out when so preparing to say goodbye) and now she has been getting stronger and stronger on cycle 5 with no hospice support except for lovely pressure mattress and bed to ease her pain. She came to us for Christmas Day and is talking about getting back to gardening, keep fit and shopping with me. She has had a few blood transfusions and on morphine twice daily but seemed to be getting better. This weekend she has slept, gone off her food and in a lot of pain on and off. Her temp has been low and her vision effected. Her speech slurred and Parkinson’s worst. We have a week off treatment with assessment on Thursday. It is such a rollercoaster. She is angry with dad and very forgetful. Now I have flu and I’m their main carer it’s heartbreaking to see your mum going through this.
The best advice I had was to have no regrets so go to the beach, do anything you need to. Keep strong.
Sara