[myeloma2016Participant]

Thank you for sharing. May I know what Rivaroxaban dosage you are taking with Lenalidomide 10 mg?

[myeloma2016Participant]

I don’t have access to the email I registered years ago. So I’m not able to receive voice messages. If you want to send me voice messages please send to my new email address: nedyari75@gmail.com

[myeloma2016Participant]

Hi dennis
I have been on lenalidomide 10ml for 4 years and half after ASCT as mentanance. I’m still taking the medication. After ASCT I have it evey day for two years. After two years My specialist advised me to take it for 3 days and one day off medication to help my WBC. Sometimes im off the pill for a week. I try to be on the maintanance pill till relaps. It seems it works for me. Please Le me know what medicines your specialists prescribed for you.

All the best

[myeloma2016Participant]

Hi Rachel
Thanks dor sharing information with us. May i know when you have your first SCT?
I have mine on 27 August 2020 and now im on maintance medication lenalidomide 10mg.

[myeloma2016Participant]

hi mulberry
Can myeloma patient take any type of vaccine? I read somewhere that we can have Pfizer and Moderna vaccine. I don’t know how far its true.
Can I have vaccine while I’m on maintenance medication therapy (lenalidomide 10 mg)? Please let me know if you have reliable information

Thanks

[myeloma2016Participant]

I was diagnosed with carpal tunnel syndrome for fringe numbness and tingling. Now all symptoms: finger joint pain and numbness are manageable and have been reduced significantly

• This reply was modified 4 years, 6 months ago by  myeloma2016.

[myeloma2016Participant]

Hi Dickb
No, I didn’t have MRT scan recently.

[myeloma2016Participant]

Hi silverlining1967
Your joint pain are not unusual. It’s due to Harvesting stem cells but mine is a little bit strange coz it stated 2 months and half after SCT. So not sure is the side effects of high dose chemotherapy (melphalan) ot it’s something else.

Take care

[myeloma2016Participant]

hi mulberry,
My T2 &T5 vertebra affected. that’s where my myeloma journey began, i was 41 years old when I got diagnosed wiz myeloma I underwent two surgeries: fixation and fusion surgery in 2016 and kyphoplasty for T5 in 2019. I’m on monthly Xgeva since I started having the 4 chemo cycles prior to SCT.
I feel tired the next day receiving subcutaneous injection of Xgeva. After SCT I have been experiencing join pain in my hands fingers. I’m suspicious on Xgeva side effects although I didn’t have this side effect before SCT. That’s why I’m asking what others experiencing with this drug after SCT.

[myeloma2016Participant]

Information on lenalidomide are available online. Each cycle begins with taking 21 day medication and one week rest
Good luck

[myeloma2016Participant]

Hi redlinehigh
Im on the second cycle of lenalidomide maintenance. So far i did not notice any unpleasant side effects.

Stay safe

[myeloma2016Participant]

taking maintenance medication was what my oncologist decided. I started taking lenalidomide 2 months and half after SCT.

[myeloma2016Participant]

hi redlinehigh

the treatment (Lenalidomide 10mg) didnt distrupt my sleep at all. i take it at 9 pm

[myeloma2016Participant]

Thank you Rachel for sharing your experience with me. These information are excatly what i wanted to know.

Saty safe
Ned

[myeloma2016Participant]

Hi Marty
hope you are doing fine.
Besides Lenalidomide and anticoagulant, are you taking any other medication for maintenance therapy after SCT?

Stay safe

[Author]

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