[myeloma2016Participant]

Thank you for sharing your experience. It seems they can’t do much for me at this point. I forgot to mention that I had XGEVA 120 injections for four and a half years, initially on a monthly basis, but I gradually transitioned to every two, three, and four months. I had to stop the medication for six months to have one of my wisdom teeth extracted (three months before and three months after the surgery). Following the recent pain, my specialist advised me to resume XGEVA 120 injections monthly. While I can manage the back pain, I cannot deny the negative impact it has had on my well-being.

[myeloma2016Participant]

Good for You. I can say I have lost half of my hair. Probably in my case combination of factors contributed to the hair falls including: taking warfarin

[myeloma2016Participant]

Thank you for sharing. May I know what Rivaroxaban dosage you are taking with Lenalidomide 10 mg?

[myeloma2016Participant]

I don’t have access to the email I registered years ago. So I’m not able to receive voice messages. If you want to send me voice messages please send to my new email address: nedyari75@gmail.com

[myeloma2016Participant]

Hi dennis
I have been on lenalidomide 10ml for 4 years and half after ASCT as mentanance. I’m still taking the medication. After ASCT I have it evey day for two years. After two years My specialist advised me to take it for 3 days and one day off medication to help my WBC. Sometimes im off the pill for a week. I try to be on the maintanance pill till relaps. It seems it works for me. Please Le me know what medicines your specialists prescribed for you.

All the best

[myeloma2016Participant]

Hi Rachel
Thanks dor sharing information with us. May i know when you have your first SCT?
I have mine on 27 August 2020 and now im on maintance medication lenalidomide 10mg.

[myeloma2016Participant]

hi mulberry
Can myeloma patient take any type of vaccine? I read somewhere that we can have Pfizer and Moderna vaccine. I don’t know how far its true.
Can I have vaccine while I’m on maintenance medication therapy (lenalidomide 10 mg)? Please let me know if you have reliable information

Thanks

[myeloma2016Participant]

I was diagnosed with carpal tunnel syndrome for fringe numbness and tingling. Now all symptoms: finger joint pain and numbness are manageable and have been reduced significantly

• This reply was modified 4 years, 8 months ago by  myeloma2016.

[myeloma2016Participant]

Hi Dickb
No, I didn’t have MRT scan recently.

[myeloma2016Participant]

Hi silverlining1967
Your joint pain are not unusual. It’s due to Harvesting stem cells but mine is a little bit strange coz it stated 2 months and half after SCT. So not sure is the side effects of high dose chemotherapy (melphalan) ot it’s something else.

Take care

[myeloma2016Participant]

hi mulberry,
My T2 &T5 vertebra affected. that’s where my myeloma journey began, i was 41 years old when I got diagnosed wiz myeloma I underwent two surgeries: fixation and fusion surgery in 2016 and kyphoplasty for T5 in 2019. I’m on monthly Xgeva since I started having the 4 chemo cycles prior to SCT.
I feel tired the next day receiving subcutaneous injection of Xgeva. After SCT I have been experiencing join pain in my hands fingers. I’m suspicious on Xgeva side effects although I didn’t have this side effect before SCT. That’s why I’m asking what others experiencing with this drug after SCT.

[myeloma2016Participant]

Information on lenalidomide are available online. Each cycle begins with taking 21 day medication and one week rest
Good luck

[myeloma2016Participant]

Hi redlinehigh
Im on the second cycle of lenalidomide maintenance. So far i did not notice any unpleasant side effects.

Stay safe

[myeloma2016Participant]

taking maintenance medication was what my oncologist decided. I started taking lenalidomide 2 months and half after SCT.

[myeloma2016Participant]

hi redlinehigh

the treatment (Lenalidomide 10mg) didnt distrupt my sleep at all. i take it at 9 pm

[Author]

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