[myeloma2016Participant]

Hi Rachel
Thanks dor sharing information with us. May i know when you have your first SCT?
I have mine on 27 August 2020 and now im on maintance medication lenalidomide 10mg.

[myeloma2016Participant]

hi mulberry
Can myeloma patient take any type of vaccine? I read somewhere that we can have Pfizer and Moderna vaccine. I don’t know how far its true.
Can I have vaccine while I’m on maintenance medication therapy (lenalidomide 10 mg)? Please let me know if you have reliable information

Thanks

[myeloma2016Participant]

I was diagnosed with carpal tunnel syndrome for fringe numbness and tingling. Now all symptoms: finger joint pain and numbness are manageable and have been reduced significantly

• This reply was modified 3 years, 3 months ago by  myeloma2016.

[myeloma2016Participant]

Hi Dickb
No, I didn’t have MRT scan recently.

[myeloma2016Participant]

Hi silverlining1967
Your joint pain are not unusual. It’s due to Harvesting stem cells but mine is a little bit strange coz it stated 2 months and half after SCT. So not sure is the side effects of high dose chemotherapy (melphalan) ot it’s something else.

Take care

[myeloma2016Participant]

hi mulberry,
My T2 &T5 vertebra affected. that’s where my myeloma journey began, i was 41 years old when I got diagnosed wiz myeloma I underwent two surgeries: fixation and fusion surgery in 2016 and kyphoplasty for T5 in 2019. I’m on monthly Xgeva since I started having the 4 chemo cycles prior to SCT.
I feel tired the next day receiving subcutaneous injection of Xgeva. After SCT I have been experiencing join pain in my hands fingers. I’m suspicious on Xgeva side effects although I didn’t have this side effect before SCT. That’s why I’m asking what others experiencing with this drug after SCT.

[myeloma2016Participant]

Information on lenalidomide are available online. Each cycle begins with taking 21 day medication and one week rest
Good luck

[myeloma2016Participant]

Hi redlinehigh
Im on the second cycle of lenalidomide maintenance. So far i did not notice any unpleasant side effects.

Stay safe

[myeloma2016Participant]

taking maintenance medication was what my oncologist decided. I started taking lenalidomide 2 months and half after SCT.

[myeloma2016Participant]

hi redlinehigh

the treatment (Lenalidomide 10mg) didnt distrupt my sleep at all. i take it at 9 pm

[myeloma2016Participant]

Thank you Rachel for sharing your experience with me. These information are excatly what i wanted to know.

Saty safe
Ned

[myeloma2016Participant]

Hi Marty
hope you are doing fine.
Besides Lenalidomide and anticoagulant, are you taking any other medication for maintenance therapy after SCT?

Stay safe

[myeloma2016Participant]

Hi mulberry
Thanks for your reply. I’m also taking Thyroid medication every day.

Take care

• This reply was modified 3 years, 6 months ago by  myeloma2016.

[myeloma2016Participant]

Thank you very much Rachel for sharing your experience with me. Is the second SCT was different with the first one for you or experienced the same?

stay safe

[myeloma2016Participant]

Hi everyone
Any one is on lenalidomide 10 mg for maintenance therapy? what’s the best time of day to take the medication? please share your experiences.
Any one taking 1/4 warfarin (anticoagulant) with lenalidomide 10 mg after SCT? can be taken together at the same time or need to be taken at different times?

Thanks

• This reply was modified 3 years, 6 months ago by  myeloma2016.

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