[paul1967Participant]

Hi Rachel

The injection went ok.
I liked that they didn’t need to have three attempts to cannulate me. They always have to use the vein finder and still struggle.

This time they still kept me under observation for 4 hours afterwards but said next time it’ll be quicker. Although I’ll still need to be there for an hour for the pre-med cocktail (paracetamol, dexamethasone & piriton) to circulate.

I don’t feel the needle at all in my abdomen. Even when I used to inject myself with the anti clotting stuff (I can’t remember the name) I didn’t.

I did feel it going in though. Maybe I would have felt saline going in too.

Since Tuesday, I don’t feel any soreness in that area.

I’ve not spoken to anyone yet about the BMT but they did take several samples of blood for type matching.

[paul1967Participant]

My SCT was with my own cells too.

2006 and you are still in remission. That gives me hope for my own situation.

Are you on any treatment at the moment Kevin?

[paul1967Participant]

Thank you

They did ask if I had any siblings, but I don’t.

I am waiting to speak with an Expert. Is an expert better than a specialist? 😀

They told me they do not do that procedure here so would have to go another hospital about 20 miles away.

I’m just waiting for my DVD as I type, and have been told they are trying out a new subcutaneous method of delivering the Daratumumab today. Takes 5 minutes instead of 4 hours. Not actually looking forward to that. I’m already getting sensitive where they inject the Velcade.

I’m not as bad off as many people so I am appreciative of that.

[paul1967Participant]

It is nice to know there are still options after 2 x sct

It is clearly something I need to discuss with my consultant.

I’ll probably be in hospital another night or two so will see him again before I leave.

I’m dreading more SCT but if that is the best then I will do it.

Sucking ice cubes for hours wasn’t a nice thing to do. Especially as they where huge. They must have worked though as I never had any problems with my mouth etc.

[paul1967Participant]

Thanks for the reply. So it looks like mine lasted about 3 months longer than yours so not much in it.

It is good to know there is an alternative.

I’m not keen on the SCT as the chemo prior to that really knocked me out for weeks. I lost so much weight as I was unable/willing to eat then when I did, it went straight through or back up again.

Apparently I’ll be on DVD this time. 1st time was on VCT

Thanks

[paul1967Participant]

I was diagnosed with MM in March this year after arriving at A&E with Pneumonia after a visit to a walk in centre for a cough.

I am just ending course 3 of VDT and have no date yet for SCT although I have an appointment with a consultant after course 5 so I may find out then.

Apparently my blood is responding well and my usual consultant is always amazed how well I am coping. But this is the easy bit isn’t it? Just taking the tablets/Velcade and injecting myself with the Clexane.

I’ll be 51 in the summer so still fairly “young” I guess.

The posts here have been interesting and useful.

I’m, quite a hardy person but the S&D might be the thing I fear most. Before MM I was rarely actually sick.

I’m certainly in the right place here to find out what it’s really like.

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