peterneo

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  • #123879

    peterneo
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    Hi Jes  It takes time to get used to a treatment change and a lot of  frustrating patience by the carer. I am on cycle 16/17 of revlimid and drinking water like it is going out of fashion. I will tell you I had a mini stroke (tia) which the doctor said was caused by dehydration. So no matter how much your partner shouts screams or whistles make them have it..good luck…

     

    #123876

    peterneo
    Participant

    Hi Julian I am new to the myeloma web site but not the illness. As David s ( morning David) as stated all your symptom’s are common sorry you are not special just the same as us all lol.. I am at present on cycle 16 and 17 of a drug called revlimid.  I  have struggled to find shoes that fit and only recently after 3 years bought a pair of extra wide size 13 timberland boots (very generous sizes) oh my after wearing open sandals all that time I wanted to go to bed in them. The unsteady we call my wobbling , emotional I think I keep the Kleenex factory in business on my own,  but you will learn to control that when you want a mug of tea or coffee ect.. My wife is such a soft touch when a 6’2 24stone man turns on the waterworks. The blurred vision in my case was linked to the crying all the time. And David s you are right about the sunburn, as I have said I have been wearing open sandals for nearly 3 years and my skin colour on my feet would not be out of place on a man from the Bahamas never mind a man from stoke on trent.. Annlynn I wanted to give everything away also and my wife says I did. But I was fortunate enough to have a private pension that paid out in circumstances of illness even though I am under pensionable age (phew). As stated use your support team but I find the best source of information is people who can wear the t shirt as they say, and remember for warned is for armed. Don’t hesitate to ask for help. Take care and get In touch anytime Pete….

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