pocoloco

  • pocoloco posted an update 1 year, 6 months ago

    Hi does anyone have acute aches in lower back, buttocks, & thighs that painkillers just will not touch. Happens when I lay down in bed & I have to walk about all night as it is unbearable to sit or lie. Currently taking amitryptiline & etoricoxib for nerve pain but once it starts nothing helps. Ok during day when active. Had xray on Thursday…[Read more]

  • pocoloco posted an update 1 year, 10 months ago

    Hi
    My lambda light chains have gone back to what they were at diagnosis 8 months after being on lenalidomide/dexamethasone. I am now beginning Cylophosphamide/dexamethasone/velcade(bortezomib). Has anyone on the forum been given this combination & if so what, if any, side effects you might have encountered? Thank you.

  • pocoloco posted a new activity comment 1 year, 11 months ago

    Is there anyone that can comment on my last post please

  • pocoloco posted an update 2 years ago

    Hi. It appears that my current treatment of lenalidomide/dexamethasone is not working for me after 7 cycles. My lambda light chains are not decreasing as they would like & are looking to move me on to Velcade/Cyclophosphamide/dexamethasone at my next meeting with my haematologist. I am struggling to get my light chain results back in time for…[Read more]

  • pocoloco posted an update 2 years ago

    Hi Terry & David

    Thank you for your kind replies re Zometa infusions. Do you have needle inserted in back of hand for this or can you have it in your arm as my veins are very fine & quite difficult to find?

  • pocoloco posted an update 2 years, 1 month ago

    Zometa infusions
    Had my first one last week but was perturbed that the nurse had to struggle to administer catheter in vein in back of hand. Does anyone have it in their arm as this is not a chemo drug & would be less painful especially if this is administered monthly.

  • pocoloco posted an update 2 years, 1 month ago

    Travel insurance to Jersey
    Have seen myeloma travel insurance website & companies available but just wondered if anyone had experienced good reviews from any company in particular.

  • pocoloco became a registered member 2 years, 1 month ago