[rach1975Participant]

Hi Najmah

I only recognise one of the drugs that you’re taking ie. Dexamethasone. This is one of the ones which I will be having.

Glad to hear that your back pain has improved with Zometa. I’m hoping it will do the same for me.

Best wishes

Rachel

[rach1975Participant]

Hi Najmah

Thanks for your message.

Can I ask what the new treatment you are having is called?

How is your back now you’ve had the Zometa?

Rachel

[rach1975Participant]

Hi Najmah

Thanks for ypur message.

Not getting on to bad but my lower back is the main problem.

I have my first chemo session on 20th August. Not sure whether they will give me zometa on my go or whether I have to wait.

The next hardest thing I’ve found is telling my parents and sisters (did this yesterday).

I have a stem cell transplant lined up in the new year.

All the best

Rachel

[rach1975Participant]

Hi Shaun

I’ll keep you updated as things progress.

Really pleased that you are doing okay now.

Best wishes

Rachel

[rach1975Participant]

Hi Shaun

Got on quite well with it.

The only thing I noticed was that I was still awake at midnight when usually I’d be half a sleep by 10pm.

How long was it after the first 4 days of dexamethasone did you start your treatment?

I’ve been told that I need to have a dental check before I can start chemo. Did you have to do the same?

I tried 2.5ml of liquid morphine at about 2pm but will be trying 5ml before bed.

Thanks

Rachel

[rach1975Participant]

Hi ymca

Have just seen your post.

Did you ever get any help with a back brace or was it not recommended?

I have just been diagnosed on 31st July and have just asked my care team the same question as my lower back feels fragile and I have very little strength in it.

Rachel

[rach1975Participant]

Hi Shaun

Thanks for your reply.

This all very new to me.

I finished my first dose of dexamethasone last week and am now waiting further treatment but have been given liquid 5ml morphine and slow release morphine tablets. Were you given either of these and if so, how did you get on?

Thanks

Rachel

[Author]

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