[sanParticipant]

Hello, i know what you mean Jill and Sandie, my mum is 76 and came home from hospital today hurrah!! but gosh the tablets!! i have spen't the afternoon helping her sort them, and as you say the treatment makes you feel so poorly but she needs them,Mum has Dad helping her with carers now also, i did feel for your Mum Sandie living on her own she is a star as you are helping her, may all of our Mum's keep well and enjoy life day to day San xxxx

[sanParticipant]

Hello Terry, thank you for the information, and good luck with the trial, hopefully soon there will be good news re improved treatments for all, my Mum is on the RCD clinical trial as her first treatment after diagnosis, not sure if thats good or not!! there are so many combinations out there, best wishes San.

[sanParticipant]

Hello Helen, just wanted to wish you a lovely holiday in Cornwall, we live in Devon and its warming up here now and so you should have a super time down here, esp with all those good pasties!! take care and hope that all goes well for you now, San xx

[sanParticipant]

Hello Dick, ahh at least you know what caused your increased liver enzymes now so thats good. Hope that you can restart your chemo soon, best wishes San.

[sanParticipant]

Hello David, wishing you a wonderful trip, and so hope that you are able to get on top of the pain soon, my mum is doing well on oxycontin small doses regularly, the palliative nurses can help with pain control , but you may have already seen them? take care San xx

[sanParticipant]

Hi Ali, thank you for asking, Mum should be coming out of hospital in a day or two, she had her assessment with the OT at home yesterday and did well, she tried so hard and after 7 weeks in hospital well i am so excited for her but with some trepidation hoping that Dad can cope and the unknown and he is just recovering from a chesty cold!!, she is on her 2nd chemo cycle two weeks in so lots of medication and is practising giving herself fragmin injections so lots to consider and new experiences, not particularly easy ones either for them in their later years. Ali how are your Mum and Dad doing? hope that your Mum is ok, now i know what you mean about Mum's not wanting to go into hospital its hard to make decisions with them re when to call the hospital when they would rather not go anywhere near them!! which is understandable. Take care San xx

[sanParticipant]

Hello Ali, i am in a similar place regarding who to contact when things go wrong as Mum will be coming out of hospital soon and its a bit worrying for us all, i understand that we contact our oncology ward rather than the GP if Mum has a temp and they decide on what is needed ie to come in for i/v antibiotics, and wonder if you need to do the same, can you ask your Mums haematology nurse? i imagine that there are lots of different ways to get help quickly and every hospital is different in this, i do hope that she enjoys her lovely holiday and gets better soon , take care San xx

[sanParticipant]

Hello Ann, so sorry to hear your news, yes its hard to believe how quickly this illness comes on, my Mum has MM and has bone damage, she is on oxynorm as she was sensitive to morphine but there has been no mention of help for her damaged vertebrae. We also knew nothing about MM until 6 weeks ago and this has been a fast learning curve but still have lots of questions however i guess that overtime we will learn how to manage and it helps to talk to the lovely people on here, lots of good wishes to you and your husband,
San xxx

[sanParticipant]

Hi Ali, sorry to hear that your Mum is in hospital hope that she recovers soon, my Mum is still in hospital too but slowly getting better and on her 2nd cycle of chemo, she has come a long way and we hope that she can come home soon, yes the risk of infections will decrease when the better weather gets here and we all open those lovely windows they won't stand a chance then ha! best wishes San x

[sanParticipant]

Hello Tanya, thinking of you and your Dad, take care San xx

[sanParticipant]

Hello Terry, i am new to this as a carer for my Mum recently diagnosed and still poorly in hospital, i certainly agree this myeloma is such a yo yo illness with no certainty, its hard living with an illness when you cannot know the future, all that i can say is i worked for 34 years as a mental health nurse taking slightly early retirement, my husband supporting me to leave as he could see that we could manage and that the job was taking its toll and i could spend more time with the family, well i am so glad that i went as these last two years of retirement have been invaluable i have spent time with my Mum who was well enough for us to go out with my nephew her grandson and enjoy life before this horrid illness came along those days are now so special for us both and would not have happened if i had been working, i too thought that maybe i was taking the easy option getting out of the day job, wondered if i was doing the right thing and if i could indeed fill my time usefully, well i did from voluntary work with domestic violence sufferers to learning different skills to walking with some lovely new dog walking friends,spending time with family and friends and having energy for them, can i say that though you do a super job working in social work you also need energy for you and maybe its your turn to follow your dreams and interests, listen to you loved ones and you will make the right choices for you, restoring classic cars sounds great !!take care and i hope that all goes well for you re your bloods, best wishes San x

[sanParticipant]

Hope that you feel better really soon and take care of yourself, where do those bugs come from!! the sneaky things, and so many still about but the summer is coming and the bugs will reduce hopefully, best wishes San.

[sanParticipant]

Hi Mavis, thank you for replying, dear Mum has had her pain relievers[opiates] reduced and she is coming around, more alert and stronger in hospital the side effects had really affected her badly, sadly she has quite a bit of bone pain in shoulder and hip and has had one course of chemo but on hold until she is stronger, no arthritis but my goodness she is going through the mill, i tell her about the lovely people on here who have chemo and are getting along well, she so wants to come home asap, i am hoping that she will start to get back on her feet soon with physio help, it is such a shock to her and just 5 weeks since diagnosis so early days, thank you for your support Mavis, great to hear that you are doing well with physio at home too, take care, love San.

[sanParticipant]

Hello Ella, i am new to this with my Mum but i would have thought that you need to mention this to your consultant and then they might bring your appt forward for you hopefully all will be well, take care San

[sanParticipant]

Hi Gill,a lovely photo indeed, a treasured moment, take care San x

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