[sanParticipant]

Well young Tom you are a brave and super chap, i wish you all the very best and so hope that you feel stronger soon San xxx

[sanParticipant]

Fab news Tom, so thrilled for you and your family i am sure that your positive outlook and great sense of humour are a large part of your success, Tony and Michelle great news too!! San xx

[sanParticipant]

Hello Annette, i am so sorry to hear the news about your Dad, and the next few weeks must feel very daunting for you all, you are right to enjoy every moment with him and have those precious memories. How about talking to lovely nurse Ellen [our myeloma nurse] she may be able to help with your questions now that your Dad has reached the time when chemo no longer works for him, much love to you at this difficult time, and do take time to care for yourself, as you say it certainly is a rollarcoaster for us all, best wishes San xxx

[sanParticipant]

Hi Tom, wishing you well, hope that your dinner was yummy sounded good anyway, good to hear that you grow your own so much better for you great, hey that med cookbook is good too, take care and hope that this rough time ends soon San.

[sanParticipant]

Hi Helen ahh glad that you are having a better day, well dear Mum is still jaundiced and we have a CT scan tomorrow to ascertain what is happening to her liver, we are not sure of the cause but could well be the drugs as she was on an anticonvulsant as well as chemo but is now off all meds and not sure when she will have chemo again and even whether she will continue on the trial, she is very tired, we had a family BBQ today and she so wanted to come but rang to say that she is just too exhausted, we miss her terribly at these things and it is'nt the same without her but she wants us to carry on as normal ands so we try to.We are in limbo at the moment but will know more over the next couple of weeks, thank you for asking, wish i had the answers can just hope that her liver will slowly recover as the drugs leave her body, she was doing really well on her chemo before this so hope that its a blip. take care Helen hope that next week is good for you love San xx Hi Ali so glad to hear that Mum is on her cruise and i would guess having a super time, bet that you miss her too but she will some be home to tell you her wonderful stories, love to you San x

[sanParticipant]

Hi Helen, its so hard to have to wait that long when you feel poorly, must be a better way! Mum's next clinic appt is due soon and usually they want you to have bloods taken before noon and the Dr appt is about 2.30, she is normally running late so last time we went in at 3.15 and the had to wait nearly an hour for the prescribed chemo so gosh we are talking 4 hours plus, and she was so ill, not really fair, i will have to talk to the nurse next week about how we can do this differently as she just can't take it, love to you and so pleased that you are still able to work whilst on the velcade, pleased to hear that you have a lovely Aunty, bet that she loves your jumpers in the winter, but gosh we are having some great weather!! you will have to do the Cornwall hol again soon Helen!, hope that you are feeling okish,San xx

[sanParticipant]

Well Helen you are so talented, a beautiful jumper! if you give up work you will really enjoy learning new woolly crafts and seem to have a real flair for it, great for earning some pennies too! ps where are the handsome hunks wearing your jumpers for us ladies?? ha! take care San xx

[sanParticipant]

Hi Ali, just to say that i wish your Mum the best hol, she jolly well deserves it, bet she has a ball, and they will both benefit from it i am sure, just the ticket! San xx

[sanParticipant]

Hi Helen, sounds like those jumpers are fab, have you tried other wool based crafts like spinning, felting and peg looming, bet you would love it too San xx

[sanParticipant]

Hello Pauline and Marc so sorry to hear your news it must be hard for you both as Marc was you carer, i found this forum so helpful, such lovely people and so much knowledge and support, as you read peoples stories you will learn and of course good advice is given, take care and i so hope that the treatment gets this myeloma under control really soon, San xx

[sanParticipant]

Hi Richard, have you spoken to nurse Ellen about this she may be able to throw light on the treatment for you, i hope to ring her tomorrow re my Mum, still jaundiced and we have to see the gastric consultant tomorrow, guess its her liver as there are no gallstones, and naturally no chemo at the moment, she has had 3 cycles of revlimid cyclo and dexy and appeared to be going in the right direction, but all meds stopped now even her regulars, we will see what this week brings, good luck with your treatment it sounds as though you need this to keep the paraproteins down and give you time to recover from chemo, and then restart when your bloods improve , take care San x

[sanParticipant]

Hello Eve and Slim wishing you the best holiday, take care and yes build up your strength and have great fun, San xx

[sanParticipant]

Hello Chris, is this new one as mentioned on the myeloma website today something that you could ask about, you would need the clinical trial and it is for relapsed myeloma?? best wishes San xx have a good bank holiday weekend everybody x

[sanParticipant]

Hello Dawn, just wanted to send good wishes to you, take care, and i am sure that you will benefit from the help on this forum as you make sense of what is happening to you and your treatment options, San x

[sanParticipant]

Hi Helen i know that Mum feels sick on her cyclo day even with anti sickness tablets and teary after a couple of days after dexy, but it may not affect you in the same way, hope that your energy levels stay ok , take care and good luck on your new regime, and no more poking yourself in the eye!! love San x

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