Hi Sarah I wish I had logged on earlier and read your post I would have come along as I am in Westham !! I had a coffee morning at my house on the 19th November raising £430 . I have had mm for 4 years , am 46 and have 2 teenage kids , I am still working and carrying on pretty normally after a stem cell transplant in 08 and one pending for 2012…[Read more]

As usual gang a very mixed bag with different areas , circumstances and results . We certainly didnt get ourselves a predictable disease did we ! Thanks everyone its interesting to see the different journeys . Good luck and best wishes
Sandra xx

Thanks gang for all your replies , I know that 2 or 3 people on the under 50 site have had them and others have been spoken to about them but I was amazed when my Doc almost thought I was mistaken when I said this !

When I was diagnosed in 2008 he automatically tested my sister who was not a match and that was the last time he mentioned it as…[Read more]

Hi Tracey just to add a welcome to the gang , I am 3 years post diagnosis , was 43 when diagnosed and had a very successful CTD and stem cell transplant process 2008 . Loads of good advice and guidance on here
Hope you are feeling ok on CTD Best wishes
Sandra xx

Thankyou guys ,
I just seem to have hit a wall at the moment with the whole bloody lot . Like everyone else life is so busy and I just wish I had the energy to deal with it all . I much preferred CTD which didnt have me tied to the hosp 2 days a week and I didnt look like a pin cushion ! But I am determined to get on with this and enjoy another…[Read more]

Hi all ,

Cycle 4 of Vel/Dex halfway under my belt and feeling pretty p****d off with it so far . Very tired and the taste is disgusting !! After a rapid drop from 20 to 11 the counts are static but my very enthusiastic Doc in Eastbourne still assures me he is not worried by this and its not just the pp,s he is interested in but the whole…[Read more]

Thankyou Min I really lost it at the rectal examination of the thyroid !! priceless :)xx
Sandra

Hi all,
My name is Sandra I am 46 and I was diagnosed in Jan 08 after reporting in to the blood doner people and being refused and sent to my doc . Like the rest of you the rest is history I was given 3 months of iron tablets and then obviously alarm bells rang with my doc ( also your wonderful one at Eastbourne Sarah !)who ordered a bmb and…[Read more]

Hiya ,
I dont post on here much but do a lot of reading , I am on my 3rd cycle of Velcade at the moment and luckily have had no p/n but for me the worst side affect is definately the moon face and very piggy eyes . I am sure that people double take me in supermarkets ! When I was on thal/dex first time round 3 years ago I suffered the same thing…[Read more]