[shirleyParticipant]

Hi Angelina,this disease has alot to answer for hey,i'm a mm patient,so i can sympathise with you and your husband,not a very pleasant ordeal to go through hey. But i must say i love the idea of the memory book and i think when the girls are ready to read it they would love and cherish what everyone has written about their dad,i know i would've. And i think i would start on the book now,cuz i think after losing him i would be to upset to write,but thats me,(such a soft touch lol)but honestly i think its wonderful idea,let us know how you get on,take care and stay strong Shirls x x

[shirleyParticipant]

Hi Roz,lovely to see you back online,your period of mourning will take time and with time it does get better,your pain will never go away but you learn to deal with it better,remember all the brilliant and good times you had. I too agree with Bridget on the idea of the rose garden,sounds really beautiful,and then on lovely sunny afternoons(thats if we get any sunshine haha),you'll be able to sit and reflect on all your good times,hope your daughters are looking after you and spoiling you too,keep your spirits up and take great care Shirls x x

[shirleyParticipant]

Hi Bridget,sorry to hear your in alot of discomfort with your back,really do sympathise with you there. I haven't taken Oxycontin before,i normally take 30mg a day of morphine MST,if i know i've a busy sort a day ahead of me then i take a dose of Oramorph,. I do hope you start to feel comfortable again once you get the right medication take care and best wishes Shirls x x x

[shirleyParticipant]

Oh poor old you,you've had a right a poopy time hey,glad its all sorted and your comfortable again,certainly a lesson learnt,and something i won't rush into doing myself ha ha,anyway you take care best wishes Shirls, P.S… I'm glad your taste buds are back,mine is still gone and my sense of smell too,oh well hopefully it won't be long before its back,take care for now Shirls 🙂 🙂

[shirleyParticipant]

Dear bridgett, my sincere condolences to you and your family,thinking of you,take care Shirley x x x

[shirleyParticipant]

Bridgett and Tom,loving your sense of humour ha ha,keep it going.I'm not doing to bad,although i now have blistered lips and a very sore mouth,went to my hospital to have it checked out,and i'm glad i did as i might have a very bad case of thrush or it could be graft verses host in which they want to happen,they gave me anti fungal tabs to clear the thrush if it doesn't start clearing up then they are almost sure its graft verses host,they took swabs but won't know results til Wednesday,i don't know seems to be one thing after another ha ha,but i'm ok other than that. Have a good weekend folks take care Shirls x x

[shirleyParticipant]

Hi Ian,i had an allo-graph back in December,like you i had all the test done,and i'm doing really well. Hope your mini allo goes really well,stay strong and positive and you'll be fine,take care and good luck Shirley x

[shirleyParticipant]

Awe thanks Jo,just very grateful that it was just a fracture and nothing else,. It really did shake me up,i don't even remember going up the stairs let alone coming down them ha ha. But i'm doing ok,best wishes Shirls x

[shirleyParticipant]

Thanks everybody,i'm getting and feeling better each day,just doing gentle jobs around the house,and Steve bless him has been fantastic,really looking after me and the family come up when Steve is working,so everybody has been great. No more diving for me,begining to think i've more lives than a cat ha ha ha anyway all have a good sunday,take care Shirls x x x

[shirleyParticipant]

Hi its me again,i didn't read further done the page,well done you,bet your glad mum & dad know now,just remember your never alone ok take care Shirls x

[shirleyParticipant]

Hi Arthur,i'm not a mum myself but i am a stepmum to a 16yr old and a 14yr old,and i know that if i was a mum,i would be totally devasted that they couldn't talk to me or their dad,but at the same time i can understand your dilemma,sounds to me you have a great relationship with your parents and do understand you don't want to burden them with more worry. This is a great site to be on and we'll always here to offer help and advice,so feel free to ask anything. But in answer to your question,well i would tell them,i think they would be more hurt if they found out you were doing this alone,be strong,and let us all know how you get on,take care Shirls x x

[shirleyParticipant]

Thats great news,hope all goes well for Stephen,i'll be keeping a watch out to see how he's doing take care and be strong x Shirls x

[shirleyParticipant]

Missed out day in late in the day sorry x x

[shirleyParticipant]

Hi Gill,has most people have said everyone is differant,when i was diagnosed almost 2yrs ago now,i was so poorly,my paraproteins was at a high of 66.3,when i had my sct i went down to 8.4,then on my 2nd sct which i had in december my paraproteins went down to 2.2,last week i got told my last paraprotein count went undetected,so i'm now in full remission and doing really well. If i was you and not sure whats what then i would ask my doctor,hope you find the answer you were looking for,best wishes Shirley x x x

[shirleyParticipant]

Thanx everyone,Min last time i was in the big market i had such a blast,but because the damage the myeloma has done to my back means my wild dancing days are over,play safely now i love eating out,so looking forward to going up. And hiya Myra seems ages since i last seen you,thankyou for your kind visits when i was in hospital it really meant alot,hopefully i'll be at the next support group meeting and we can catch up with each other. And Roz i was only thinking of you the other day,wondering how you were getting on,hope you are well. Well its medication time and i can here my lovely bed calling me,so nighty night night everyone and take care love Shirls x x x

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