Hi Keith Im sorry to hear of your news, just wanted to let you know michael was on Bendamustine trial this time last year,his PPs did go down but unfortunately he had to come off the trial because of his platelets and he could not have a transfusion because of a condition of the trial. pomalidomide was never an option. He has just stopped the MUK…[Read more]

Hi Tina its lovely to hear from you,how are you?

I keep thinking im ok and then I burst into tears, my brother sat with Michael today while I went to the dentist, and then to the shops, just wandered round like a lost sole. Ive always been such a strong person were michael is concerned but I can feel myself loosing control.
I have a question…[Read more]

Hi michael home hes very tired but much calmer. You are so right Dai Michael is much calmer when Im around,even before MM we always did things together,perhaps it was the other way round then, I relied on him so much, but that is what you do when you love someone.
Hi mavis yes thats my eldest daughter Emily shes 32 not married or even have a…[Read more]

Hi All didnt drink my G&T, actually Dai Im a bit like Janet I dont very often drink as I to get migraines Its probably a good job as I had a phone call from the hospital Michaelwas having an horrendous panic attack tried to calm him overthe phone but he was in such a state so they asked if iwould stay with him and that they would make up a camp…[Read more]

Dear Dai

What an amazing person you are I cant imagine what you, any of you MM sufferers, are going through I can only see through the eyes of a carer. But you are always there to offer support and I admire you for that. Janet must be so proud of you.
Just back from the hospital seems a long drive in the dark, Michael doesnt seem as well…[Read more]

Hi All Just an update on Michael we had to take him into hospital saturday
evening, no temp, but we thought he was having some kind of stroke, as I didnt have any contact numbers I rang the haematology ward at our local hospital and after a chat with his consultant we took him in. He is still in but i cannot fault the care he has had. They took…[Read more]

Dear All Thank you so much for your kind words they help me such a lot

Sue XXXX

Dear All

Thank you so much for your kind replys, and thank you Dai you have a special way with words.
Its 4am and I sit thinking of all the things I want to say to Michael, but then i just start to cry,how do you say goodbye to your sole mate, the person you have lived with for 34years.
I want to nurse Michael as long as I can, I cant bear…[Read more]

Dear Gill I havent been on the site for a while,until today. i am so very sorry for your loss. My heart goes out to you and your family

Love
Sue x

Hi Eve Im sorry to here about Slim, I do remember Michael having Platelets after his second Sct, I was expecting red in colour and they were more yellow. He had about 3 or 4 bags

Love Suex

Dear Siobhan I am so sorry for your loss, I will miss her so much. Although we never spoke we did exchange emails, she has been such a comfort to me

God Bless
Sue x

Hi Eve So pleased Slim is back home, its onwards and upwards now (as Tom would say)

Love to you both
Suex

Hi Thankyou all for your kind replys I dont post on the sight as often as I should, but I know whenI do I always feel much calmer. I find it hard to share things, open up if you like, but this site does help people do that. Thanks Eve Ive ive had a few of those headaches recently!
Tina ive been thinking about you recently,tried to email…[Read more]

HI Paul Not heard of DT PACE before, but I hope it works for you Have a brilliant week end

Love
Suex

Hi Gill Sorry to hear your news, but dont give up yet Michael came off Revlimid over a year ago, he had Bendamustine but that didnt work for him,theres nothing else for him at the moment, he doesnt fit the criteria for Pomalidomide, but that doesnt mean that one of these wont help Stephen.
Michael has been on chemo and dex now since Christmas,…[Read more]

Hi Keith I remember Michael after his second SCT his pps did go up at first then went down, so fingers crossed

Love
Suex

Dear Michelle Im so sorry to hear about your mum my thoughts are with you

Suex

Hi Eve
Good luck for the week and all the best to Slim for his SCT Sunday

Love
Susannahx