not been on for a while as in the deepest of France but how wonderful to log on and hear good newa Well done Carol xxx

I will catch up with all posts when I can Here we are stuck in the last centuary lovely people but nobody is surprised when the water or electricity goes off.

And no we didn't buy in this area because it is quaint the…[Read more]

Hi All,

Pat and I lived, and I still live in Buckinghamshire and love it to bits.
Roz, I can tell you that Vasbyte in South African means "bite down" not sure what Davids meaning is!!

Tina

Hi All

I thought I would post an update on how Stephen is faring on the RCD regime. He seems to be coping with this combo quite well. His pp levels have dropped and the "dexatude" is nowhere near the level it was when he was on a higher dose. It was such a shock to come accross "dexatude" as you could not ever ever meet a more laid back and…[Read more]

I'm so hooked on this silly game I end up like "billy no mates" and play by myself

I did think of putting ave and ave nots:-) but that is silly (even for me so I will go with

VOLATILE

ILE

Dear Roz

So sorry to hear you are having so much trouble getting the help you need. Simlar to Sarah, I was offered councelling by Iain Rennie who's nurses had been visitng everyday to provide medical treatment during the few weeks before Pat died. I turned it down.

Have you tried speaking to the Citizens Advice Bureau? I know it sounds like…[Read more]

Second from the right????

I have heard of the supplement you mention Min I wish I had remembered it before I got this heavy cold. Stephen (MM person) sniffed twice sneezed once gave whatever it was to me and I got the horrrid horrid cold (so pleased it wasn't him that got it)

I digress think of a word ??

ARCHITRAVE

for the next leaves

AVE

OK I am not an mm person, but married to one. He got a "bit of a cold" I was petrified that it would turn in to all the dreaded stuff that goes with mm.

Result ?? He's fine (thank goodness) I have the mother of all colds.

Sometimes life gives one the ablity to moan and moan and moan (gues what I'm doing) HEY I have MAN FLUE and I am…[Read more]

Hi Bridget,

Sorry, I missed your posting.

Patrick never suffered with a rash during his Bendamustine year, but glad to hear yours is clearing up now.
He was having regular platelet transfusions as Sue says – a major side effect.

best wishes

Tina XX

Are we late birds or insomniacs

I am not sure if places are allowed (told you all I had no idea of any rules)

But I will go for an island that for years I thought was in the Channel (my family settled on Jersey years ago and I STILL have no idea of the geographical layout.

OK I now know that this island is somewehere north:-) (OK very…[Read more]

I don't think it matters what has gone before as nobody seems to remember. (I told you there were no rules)

I am not going for ion as an ending but cannot think what else to do!!!

Hold on. Gill puts thinking cap on, wishes she hadn't logged on so late and comes up with??

???

????

OK not that good but

NEEDLEPOINT

[b]INT[/b]…[Read more]

Hi Bridget.

In my life knitting, sewing, embroidery and watching paint dry had about the same attraction for me as poking my eyes out with red hot needles.

[b]BUT [/b]I am [b]SOO[/b] pleased that your particular mojo is working again and you are enjoying doing things that bring you pleasure.

[b]YOU GO GIRL[/b]

TOFFEE

for the next (please no fee fi fo fum:-) )

FEE

3 cheers for Ben and all the others

I am sure that we all apprecitate the webteam for the effort they all make to keep us in touch (if not in line:-) ) and would like to say thank you to all of them,

This site is brilliant. Gill (wife of mm person)

Dai you have certainly saved my (and Stephen's) blushes I have been in fits of laughter since reading your post. I was worried that I would embarass everybody so much they would not talk about it. I am now on the look out for little old ladies. I wonder if we could keep one or two in the garage and wheel them out when needed. HOLD ON I am now a…[Read more]

I attended a memorial service yesterday for my sisiter in law's sister. Three weeks ago she went to her GP with a pain in her shoulder and neck and by day seven she had died of double pnemonia I spent lots of time with her poor husband who was still in complete shock sharing his pain and understanding his grief.
Even with MM there are those who…[Read more]

There is a problem for me there David. I would want to delete the bit about having mm being great, but want to keep the bit about meeting nice people.

Light bulb moment! Can we edit each others' posts? 😀 😀 😀

I could just leave the bit about nice people

Gill xxx

Thank you all for you replies. You are such a great bunch of people when support or a shoulder to lean on or a bit of humour is required.

One thing we have noticed about Stephen's latest drug combo is very unpleasant, frequent and smelly wind.:-S

Sorry to bring up such a horrid subject but it has got to a stage where he exits a shop quickly…[Read more]

I know when Stephen was diagnosed in November 2008 His oncologist told us, with pride, that he had patients who had survived 5 years or more. At the time I wanted to jump out of my seat, shake the man and say "but he is only 53"

I now agree that if you have to have an incurable cancer mm is one that gives you time to reflect and get things…[Read more]

Oh Sarah

I am so pleased that Gordon felt he had done all he wanted and, as others have said, his legacy surrounds you and your family.

I am worried about travelling to France. It is not like hopping over to Normandy It is right in the centre. We used to do it in one go (12 hours from door to door)but now with dogs and Stephen having mm we…[Read more]