susannah.

  • Gill replied to the topic Good news x in the forum General 13 years, 2 months ago

    Plaesed to hear your news Gin. Give you mum best wishes from all of us Gillx

  • Hi Bridget,

    Good luck with your Bendamustine treatment you are surely due some respite after all the pain you have been in lately. As I recall, at least with Patrick, there were very few undesirable effects with this drug.

    Tina X

  • Dear sue,

    Great to hear from you but so sorry you are being challenged in every which way, you must be mentally and physically drained. After Revlimid it appears that most MM sufferers are more prone to infection and I am sure you are very vigilant in looking for signs in order to act quickly.

    Good to hear Michael is about to finally recieve…[Read more]

  • Gill replied to the topic I LOVE in the forum Off topic 13 years, 2 months ago

    Dai you have put all of that in an incredible way. I so hope that Min reads your message, and all of the other posts and stays in touch.

    I feel that, although it is this b****rd illness that brought all of us together in the first place, we have all become friends. As well as discussing mm we go further. Whether it is stories of our children,…[Read more]

  • Here's an earth mover for you all (Groan)

    SEISMIC

    MIC left

  • EMBERS

    ERS passed on to you wordies

  • Gill replied to the topic I LOVE in the forum Off topic 13 years, 2 months ago

    Dear Min

    I have no idea of how you feel right now and for me to say sorry is pointless. I think that is a given statement anyway.

    Please don?t leave this site. We all need people to ?prop us up?. None of us are so misguided to think that the ultimate end is not going to happen to us. I, for one, lay awake at night and try to believe that…[Read more]

  • OK Tom I meant a place that is further North but not as far as my waist;-)
    but I didn't think the naughty word police would let it get through.

    Love from Gill xx

  • DETAILS

    Off on a tangent in the early hours of the morning and seeing Roz's word JIFFY which left FFY I was reminded of the fact that I have always been useless at spelling but could spell 2 words with complete ease. You will have to get your own rhythm

    Mrs d Mrs i Mrs ff i Mrs c Mrs u Mrs l t y [b]difficulty[/b] and

    Mrs m Mrs i Mrs s s i…[Read more]

  • Gill replied to the topic I LOVE in the forum Off topic 13 years, 2 months ago

    Dai Thank you so much for the poem. I never could get into the Lord of the Rings books so I would never have seen this.
    Gillx

    Min. What a wonderful discovery that was and probably painful too. I have read your post over and over again and, although it has made me cry buckets, thank you so much for posting your find.

    After 40 years he is…[Read more]

  • Gill replied to the topic I LOVE in the forum Off topic 13 years, 2 months ago

    Dear Roz

    I am so pleased that you have some good memories coming back.

    It sounds as though you were very much loved

    Gillx

  • Tip for ranting Sarah.

    Go for it with which ever unfortunate person you get on the other end of the phone. Just a few very angry always acceptable words and just do it.

    Only a few seconds. Then take a deep breath and calmly apologise for ranting at that person. Explain that you realise that it is not their fault but you are so upset at…[Read more]

  • Gill replied to the topic Minor Op next week in the forum Treatment 13 years, 2 months ago

    Thank you all so much for your good wishes it really is a boost. Stephen had the lump removed today. He had opted for having it done under a local rather than a general anesthetic.(Is the man mad as well as having mm?) The operation took about an hour and we won't know just what it is for about a week.

    His neck is aching and very sore and he…[Read more]

  • Gill replied to the topic 28 days post SCT in the forum General 13 years, 2 months ago

    Cheers for, and good luck to both Helen and Debs, I hope everything continues to go well.

    As for hair It seems to be a riddle for women or is it just me? Nothing to do with medical treatment but the older I get the thinner the hair on my head becomes. My eylashes become thinner and thinner and as for my eyebrows???

    Sooo how the heck do the…[Read more]

  • Gill replied to the topic Hello Everyone in the forum Newcomers 13 years, 2 months ago

    Hi Graham and Welcome. If you want to join the under 50s I am sure you would be welcome. I didn't realise that so many of the old duffers on here had snuck in:-)

    YOU ALL KNOW WHO YOU ARE:-S

    You have had mm for a long time and I am sorry that you have to go through treatment again. Good luck with your Stem Cell Harvest I hope it goes…[Read more]

  • Gill replied to the topic New to Forum in the forum Newcomers 13 years, 2 months ago

    Hi Aileen

    I am sorry you find yourself using this forum. It is a huge shock to get the diagnosis isn't it? My husband has mm.

    He went for Xrays as the orthopaedic surgeon he was referred to by our GP thought he had a trapped nerve. A phone call from the said surgeon at 7.30 a.m on the day Stephen was due to go back to get the results should…[Read more]

  • A very late welcome to both of you from me. Sorry for my tardiness but I have been a bit busy lately. It is my husband Stephen who is the mm person (diagnosed aged 53 in 2008)

    You will find nothing but help on support on here. I am, like everyone else, just sorry that you had to join us.

    Gill x

    PS Don't believe a word that Tom says. Shy?…[Read more]

  • Dear Sue,

    I haven't seen you posting recently and wondered how Michael was doing?

    Love Tina X

  • ENDANGER

    Gill xx

  • Gill replied to the topic I LOVE in the forum Off topic 13 years, 2 months ago

    I love being able to back track on this thread for the posts that I haven't had a chance to catch up with when, like tonight, I cannot sleep.

    I could be quite evil and post an I hate thread >:-( !! I would be interested to know what others think. It could be fun if kept very light
    eg Tina posted that she loved cute puppies. With tongue in…[Read more]

  • Load More