susannah.

  • Gill replied to the topic Peter in the forum General 13 years, 2 months ago

    Dear Min

    I am saddened and completely shocked to know that Peter has died. I really thought that they would find an antibiotic that would knock back his infections and he would recover.

    I, like others on here, will be thinking of you in the days to come. Please keep in touch when you feel up to it.

    Much love Gill xxx

  • Tina replied to the topic Peter in the forum General 13 years, 2 months ago

    Dear Min,

    My heart goes out to you. I know only too well how you must be feeling especially when your darling Peter was taken from you so unexpectedly. As Eve says Peter probably would not have known what was happening to him and now at the very least you may be able to take a little comfort that he is free from pain.
    Trying to make sense of…[Read more]

  • This becomes addictive.
    How about onomatopoeia from Eve's woman (clever one Eve considering your name is classed as the first woman:-)

    I did think of the above word and know what it means but had to check the dictionary for the correct spelling. Is that cheating? It's getting the Os and As in the right place that I struggle with.

    Gill…[Read more]

  • Gill replied to the topic Macmillan Nurses in the forum Treatment 13 years, 3 months ago

    I am so pleased that you are more comfortable Bridget. I hope you are now managing to sleep and get some well earned rest

    Love from Gillxx

  • Thanks Dai you are a good teacher

    I did not explain the game very well. The only thing I would add is that the word can be as simple or as complicated as you like

    I'll take Dai's word and put

    Mischief

    ief is now up for grabs

    Gillxx

  • For others out there who are not asleep in the wee small hours I thought I would tempt you all to put your thinking caps on. Somebody started this word game on a French forum that I belong to and it seems to be popular. It is called the last three letters.

    You have to put up a word that contains the last 3 letters of the previous word. The word…[Read more]

  • Gill replied to the topic Who the heck are you. in the forum Off topic 13 years, 3 months ago

    Good luck for September Fingers crossed that you hear the magic words and your husband enjoys a long remission Gill

  • Gill replied to the topic A Right 2s/6d… in the forum Side-effects 13 years, 3 months ago

    Yep a tanner in London too. Anybody remember the threepenny piece? and if you were lucky you got a silver joey in your change (small silver coin worth 3d 4 farthings (small copper coin) added up to 1 old penny (1d) and you could by a licorice black jack sweetie (wrapped) or a mint chew for a farthing.

    There is a website called "a quarter of"…[Read more]

  • Gill replied to the topic Niggle, Niggle in the forum Side-effects 13 years, 3 months ago

    Get on your way for that holiday quickly Dai Bon Voyage Gill xx

  • I am so sorry that Peter is so poorly. When Stephen was at his worst in hospital I took him in some tenna pants He only used them once or twice but it gave him the confidence to relax a little. His greatest fear was soiling the bed and watching a nurse having to change it.

    Telling him that they were used to such things happening was no comfort…[Read more]

  • Hi Debs,

    I often think of how you are and have wanted to give you a call but have lost your number.
    Your symptoms sound familiar but unfortunately PN with Velcade is pretty common but a bu**er to deal with. Sounds like Gill's suggestion of Coenzyme Q10 is certainly worth a try, Patrick tried Gabapentin without success, he used my TENS with no…[Read more]

  • Tina replied to the topic No more Velcade in the forum Treatment 13 years, 3 months ago

    Hi Gina,

    Sorry the Velcade is not working for Mum, like Susannah Velcade was the only treatment that never worked for my husband Patrick. By the sound of it your mum will be having a blood transfusion soon which will give her a boost.
    I hope new treatment is sorted soon, your mum sounds like a strong lady.

    Best Wishes

    Tina X

  • Gill replied to the topic Levels back up… 🙁 in the forum Treatment 13 years, 3 months ago

    Figers crossed for you and your husband that it is indeed a blip xx

  • Hi Debs

    I think I have said before that Stephen does not visit this site but is always interested in whatever is posted. He has always sufferred from PN and the when on Velcade it became unbearable

    He aked me to tell you that his PN reduceed significantly once he started taking the food supplement Coenzyme Q 10 (obtained from Healthspan…[Read more]

  • Well Stephen's specialist had good news and bad. The mm is not measurable in his blood any more. Unfortunately he has quite a few other bits plasmasytomas seem to be popping up everywhere, and after me pushing for an explanation Dr. S said "yes the easiest way to explain it is secondaries"

    But hey partial remmission is more than we hoped for…[Read more]

  • Gill replied to the topic The Under 50s Group in the forum Under 50s 13 years, 3 months ago

    Hi I hope in the nicest possible way that Russell and Andy end up not joining us as you do not have mm just a slight blip in perfect health. Good luck Gill

  • Gill replied to the topic Trip Down Memory Lane in the forum Off topic 13 years, 3 months ago

    What a fantastic thread. Memories? Too many to know where to begin. The smell of roasting peanuts being cooked in Woolies (woolworths to you young uns). Players number 6 cigarette vouchers (stopped smoking years ago but back then when old enough we smoked ourselves to death to get enough vouchers for a genuine teak coffee table for our first…[Read more]

  • Gill replied to the topic itchy legs in the forum Side-effects 13 years, 3 months ago

    Hi David

    Are you sure your itchy legs are not caused by the "no see ums" :-/ I only popped out to the garden briefly towards dusk and the little blighters got my legs, back (under baggy t shirt) and the tops of both feet.

    Why Oh why did we ever put in an 8 foot diameter fish pond in our garden the no see ums thrive around it at this time of…[Read more]

  • Dear Bridget, and the rest of you all

    Let's get this straight. In my view (and I can be very self opinionated!) this site has many facets, and uses. It is full of information, it puts us all in contact whether mm people or their husbands, wives, children, parents, friends, secret lovers?? (that would be fun:-) with others that this wretched…[Read more]

  • Just to say fingers crossed that he turns the corner soon adn thinking of you both Gill xx

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