Dear Sarah,

I was so very sad to hear of Gordon's passing. At this overwhelmingly difficult time try to take some comfort in knowing that he is at peace now and free from pain. He will never really leave you, you will hear his laugh and see his smile, remember his words and feel his love.

Thinking of you and your family

Tina X

Hi Sue,

Brilliant!!

Yes, the key is recognising the symptoms of an infection and getting to hospital as soon as you can. Unfortunately this may happen again with low neutrophils but best to be prepared.

All my best wishes

Tina X

Dear Gaye,

I was thinking of you only yesterday and here you are. I completely understand your decision and hope you are at peace with it, the hospice will look after you I am sure.
If you would like to talk to me about anything including end of life drugs etc please don't hesitate to contact me at pa.davis@virgin.net.

Strength and…[Read more]

Hi Sue,

I am thinking of you and Michael and know how you both must be feeling. Please don't despair IV antibiotics work wonders and together with a bit of luck Michael will be home soon.
Sending you strength and hugs.

Tina XX

The very best of luck with your lates round of "torture" Do keep us all posted Gill xxx

Realy sorry to hear that your dad died but pleased to hear it was peaceful. It is all we can wish or pray for for at our end. Gillxxx

Sarah I have no idea what to say You have a great many people that you have never met, will never meet but ,like me are shedding tears for you.

Stay in touch if you can Gillxx

I am sure that the tablets that you have been prescribed for cramp are the right thing BUT if they don't do the job ask if taking Coenzime Q10 would harm you in any way.

They were suggested to me by my cardiologist when I started having cramp because of taking betablockers.

When Stephen (mm husband) started getting cramp we asked if he…[Read more]

Stephen (mm person) has very achy legs. He keeps us both awake half the night because he cannot keep them still and I (being a horrid person when I don't get any sleep) want to hit him.

The aches seem to come with this horrid ney ba****d illness.

Gillxx

Hi Helen this is Gill. I really wish I had kept a copy of the diary/blog thingy that I put on the mm uk site when Stephen had his first Stem Cell Transplant. I have asked the web team if they are able to retrieve the old site info but I think they must be busy with other things.

Maybe I'll email them again and request that they search a bit…[Read more]

I have not yet found Laura's post but hope we can all help with some information Gillxx

I am sure that your Dad's medical team will make sure he has no pain. My Dad died quite a few years ago at 75 I was told at the time that "pain is not allowed on this ward" and I was very grateful to hear that.

Very best wishes from Gill

I am blubbing now you lot!!!!!!!! I sit here in the middle of the night/early morning and catch up with all these posts, and feel so privileged and lucky to have so many people to chat to, moan to, share fear with, take from and give too.

A brilliant post heading Eve but you owe me a box of tissues:-( Gill xx

PS to Sarah please keep in touch…[Read more]

No wonder he was missing a tooth He must have bugged someone 🙂

Easy enough to say but I think action is needed a brouhaha (sp? what a lovely word) is needed. Quiet firm words and refusal to leave the hospital just may make them stand up and take notice.

I do hope things improve soon Gill xxx

Hi Gina

My mm husband (Stephen) had terrible breathlessness for a while. They did check it out but were not unduly worried as it seemed to be par for the course. It has now passed and he is not gasping for breath at all. I wonder (no medical knowledge what so ever) if it is the cocktail of drugs that spark it off.

Stephen's drugs have been…[Read more]

Sarah I am so sorry that Gordon is so unwell. You must both be relieved that he is home.

There is so little that the people on here can do for you but I am sure that you know that we are all willing Gordon well. Whether through prayer or kind thoughts.

Gill xxxx

Hi Keith

Stephen (mm husband) has not long completed his second SCT. To be honest it is "one day chicken and the next day feathers" but he is improving all the time. Hope you are back on your feet soon Gill xx

PS for reference I spent some time in Ypsilanti Michigan in the 70s. There were a great many people from Kentucky who had moved to…[Read more]

Hi Amelie

I do wish I had some answers for you I know that you are not resident in the UK. My memory is not good but I think you are in Holland??

I am sure that you would get help from the mm information line which is a freephone number from the UK but I have no idea if you can access it from other countries.

As for attending…[Read more]