Hi to both new posters and sorry you are here. My husband has mm, diagnosed in November 2008 aged 53. He has just had his second Stem Cell Transplant as he relapsed. Fingers crossed for this one.

As for hiccups This stupid remedy works every time but you do need somebody to help you. Drink a large glass of water from the wrong side of the glass…[Read more]

Hi Dai

I am truly shocked at what I am reading, I just can't believe how you have been treated!
Whenever there was the slightest "worry" Patrick had instant access to the Haematology ward or they would be asked to come in straight away to see the consultant who always sorted treatment immediately.
Your post particulary raised an alarm in…[Read more]

I looked up the article that Min mentioned in the Daily Mail. It was interesting, but I was amazed at one of the comments made it seemed, to me, quite vitriolic. I did not realise that you can comment on articles shown on line. I wonder if they are monitored.

As an aside before I had even started to cook the aforementioned chicken etc. Stephen…[Read more]

Hi Sue,

How did you get on Yesterday? Hope it was a positive visit. When I think about it Patrick did have some sleepy days but you are probably right in thinking it could be combination of low red cell count and all the treatments Michael is having.
Hope he is feeling little better.
Regards
TinaX

Hi Susannah,

The PICC line is similar to a Hickman in that it is used to take blood and give chemo etc. It is inserted into a vein in the arm usually just above the crook in the elbow. This is done under a local anaesthetic under x ray guidance. A very small tube is inserted into the vein and guided up into the chest area. I was with Patrick…[Read more]

Sorry your original post past me by somehow. I am so pleased that you seem to be managing a little better now. Belated birthday wishes

Gillxx

Oh Sarah

I do hope everything turns out OK. Stephen was admitted on the quick with an infection and is starting to feel better. I really hope it is the same for Gordon.

I am sure you know that everybody on here is rooting for you both

Love from Gill xxx

Hi Susannah,

I sincerely hope the Bendamustine works for Michael and he doesn't suffer too many side effects. Patrick's infusion only took an hour- guess the time difference must have something to do with the trial.
Have you thought about suggesting a PICC Line for Michael? I really regret not pushing for this for Patrick as it was an almost…[Read more]

My daughter has been known to say, within earshot of people that take up children's spaces, "OOH look kids there are some of those invisible babies again." She no longer needs childrens' spaces for her 2 as they are long out of the pushchair stage. But she has said to me that it is in the interest of others for mums getting prams etc out of cars…[Read more]

Is it just in our area that people take up disabled bays without disabled badges? The other week there was a very large car parked sideways across 2 disabled bays at our cottage hospital. This is a small hospital with no A & E facility tucked away down country lanes. So I cannot believe the person that parked there was an A & E casualty.

I have…[Read more]

So sorry you feel bad I wish that I could remember how long Stephen felt grotty, but he's feeling sort of OK now. Fingers crossed that all goes well Gillx

OK I have to know what is Bara-Brith xx

Lovely to hear some good news Lorraine. So pleased for you Gillxx

What the heck!! Enjoy what you can, when you can xxx

Interesting that it is all females posting on this topic I wonder if the men don't notice or bother about weight. I do hope so then Stephen won't notice how broad in the beam I have become:-)

I have no medical knowledge or training whatsoever but I cannot understand why a picc or hickman line is not fitted as a matter of course. Stephen (mm person) has had a line ever since needing regular bloods taken and medication put in. His current line is attached to his chest with 3 tubes coming out of it (no restriction to any daily task). One…[Read more]

Hi Dai,

Your story brings memories of the many number of times Patrick was admitted with high temps, he was needle phobic and was, so the nursing staff say, thier worst nightmare to cannulise. I would suggest, if you are in a situation where you need regular cannulas to ask for a PICC line. Unfortunately Patrick had his only a week before he…[Read more]

Here Here I was wondering if she is OK I too have tried to contact Bridget away from this site and got no response

Hope all is OK Gillx