Hi Gaye,

So sorry to hear you are in so much pain, I guess you must be taking MST? Patrick uses Oromorph for the breakthrough pain which doesn't appear to have any detrimental side effects.
Hopefully the MRI will identify the cause of the increase in pain and something positive can be done. How is your calcium level? Patrick always…[Read more]

Hi MIn

I am sorry that the Co-Enzyme Q 10 did not work for Peter. What strength was he taking? Stephen started out on 120mg which is what I was taking because of cramp due to taking beta blockers. It worked for a while but started coming back. He now takes 200mg and is much better.

Touch wood he does not get cramp in his calf muscles any…[Read more]

Congratulations. Of course you are biased but you are right she is beautiful. Gill xx

Welcome back I do hope you are feeling well and getting back to normal Love from Gillxxx

Dear Bridget AKA Thunderthighs

I have found your will power, well at least I caught sight of it. It was running down my garden with mine. Your will power was covered in roast potatoes, bacon and bread and mine was dripping with chocolate and red wine.

I did give chase but because of the weight I have put on over Christmas the little…[Read more]

I have not read all the postings for a couple of days as we were away so I missed this one from you Min. I am so sorry that Peter's news has been not particularly good.

MM is so hard to track. Stephen was really well and feeling fine apart from a bit of back ache when we were told he had relapsed. What a shock

Gill xx

Good luck with the pomalidomide Gaye. It is so nice to hear that hthere are new drugs coming on line

Gill

Hi

Sorry you had to join us. As other people have said you will get loads of support and friendship here and sometimes a bit of a laugh about other things besides mm.

It is my husband who has mm. He had a Stem Cell transplant in the summer of 2009 He is now on a bucket load of drugs to prepare him for the next one.

He was Ok having the…[Read more]

Dear Gaye,

Very happy to hear you were granted use of the Pomalidomide. Ad=fter one year of partial remission on Bendamustine the devil within has again raised it's ugly head. As you know Patrick is in the same boat as yourself and will be starting Pomalidomide in the next few weeks. His paraprotein and calcium levels have taken a dramatic rise…[Read more]

Good luck Min I hope that you get your redundancy and enjoy more time doing the things that you want to do with Peter

Gill xx

Hi Amelie,

Great news that John is in remission – enjoy every minute.
Patrick was admitted to hospital at 2am Christmas morning with a temp of 39 deg, preceding this he had be suffering with a hacking cough but no other symptoms.The hospital was amazed that he had not been given Tamiflu tablets, the "inoculation" for swine flu and they gave…[Read more]

Hi Roz

Thanks for letting us know how Michael's service went. I suppose it is now one day at a time for you. I think it is a lovely idea to take Michael's ashes to Teignmouth, but don't rush it. You'll know when the time is right.

When my dad died the funeral director had a tick list and automatically went to tick off "ashes = garden of…[Read more]

I do hope erverything went well today Roz
Love from Gillxx

Hi Jenny

I am pleased that your dad feels a little better. I do agree that a care package would help a great deal when your dad goes home but I can understand how fearful your step-mum is.

When Stephen was due to come home after his SCT I wanted to beg the hospital to keep him in. I was terrified that he might get an infection or I would…[Read more]

Thanks everybody for your good wishes. It's another West Highland White Terrier Min They grow to be about 12 inches high and think they are 12 feet. Like Peter our Westie is what gets Stephen out of bed He walks about 2 or 3 miles with her every morning come rain, shine, snow or hurricane.

Roz I know that Michael was confused towards the end…[Read more]

No ofeence Sharon just a scracthing of head (hair!) and wondering what colour would be under there. Even at my age I am still too vain to find out 🙂

Gillxx

Dear Roz

I think you are so brave to keep posting on here I am sure we would all miss you if you were not keeping in touch. Don't forget everybody on here is thinking of you and sending hugs.

Love from Gillxx

So pleased that all is going well. Gill xx

PS to Sharon as a 60 year old that has had her hair faintly high lighted for the last umpteen years I dread to think what colour it would grow into!!!!