Hi Sue,

Yes I am working full time. I spent approximately 7 months looking for a role nearer home after evaluating what was important to me moving forward in my new life. I used to work in the City & West End of London but just didn't want to do that anymore. I have to work as I still have a mortgage to pay but I have also been lucky enough to…[Read more]

Dear Sue, Hope you have a nice break with your daughter fingers crossed for nicer weather for you both.

Keeping busy has definately worked for me I would have gone to the dogs [i](only way I [/i][i]could get the word dogs into this post)[/i] if I hadn't started my photography and windsurfing. At times I do feel terribly alone and quite often…[Read more]

Dear Ann

Like you and Eddie Stephen and I were soul mates, best friends, joined at the hip as the kids used to say. Stephen had had to stop work quite a while before he died. He was a carpenter and builder but of course the mm took its toll and he could not do the physical work that it entailed. I retired a year early so I could stay at home…[Read more]

D ear Sue

I am sorry for my late message but I don't often come on here. I am glad that Michael's funeral went well. I found it quite difficult after Stephen's funeral once it had all settled down I think the reality hit me. Nearly 6 months later I still miss him like crazy but I suppose I have settled into my own routine.

I have decided…[Read more]

Dear Sue,

I am sure Michael was a much loved man and friends and colleagues supported you saying your last goodbyes.

You are now at the begining of a whole new life. But for now just take each day as it comes, no doubt it will be tremendously hard at times but you just like others left behind on this site, have the opportunity to live – and…[Read more]

I would like to know what you and your dog deal in….

Dear Sue,

If you need help with anything at all please let me know.

Thinking of you

Tina XX

Oh Sue,

So very very sorry to hear your news, God bless you both. If you ever want to to talk please contact me at any time. I wish I was there to give you big hugs and the assurance that you will be ok. You are so strong and like me our husbands were everything to us and your feelings of loss will take you through a myriad of emotions – it is…[Read more]

Dear Sue,

I am so very sorry that you are going through this pain. Somehow you need to think of the tiniest positive thought to get you through. Michael is no longer suffering pain and believe that he is no longer feeling fear or worry. He is being looked after and at the very least his final days will be calm and with you at home.

I wish…[Read more]

Dear Dai,

I think you are right to be concerned about your cocktail of meds especially if they are coming from different sources. Your consultant however should be aware of all the drugs you are being given and should be available to explain everything you need to know, unfortunately it seems you don't get told unless you ask. I would be…[Read more]

Dear Sue,

I am so glad you now have support from the district and Macmillan nurses. Although I feel you should demand an explanation for Michael's treatment (which you are surely owed) I feel you are doing the right thing focusing your attentions on Michael. You will benefit from this in more ways than you know.

Love Tina X

So glad to hear you are not suffering too many side effects from the Bendamustine Dai.
Onwards and upwards!
Tina X

Dear Grayham

This is not a club that anybody wants to join but if you have mm it is the best place in the world to get support and friendship.

The treatment for mm and the drugs that are coming on line are getting better and better and I cannot wait to see mm getting kicked into touch once and for all. Too late for my husband who died aged…[Read more]

Hi Sue,

As Gill says it's great that you are getting some help the Mac nurses are just the best.
I am sure you will find you are not as stressed now that you do not have to worry about work. I gave up work to look after Patrick when given his prognosis and I am so grateful for those three months with him.
Sue it makes me so angry that…[Read more]

Dai,

I have been thinking of you on the Bendamustine treatment and have my fingers crossed for you and all others on this journey.
It's strange to think that when Patrick was having Bendamustine treatment 2 years ago it was not very well thought of. In fact I remember suggesting it to one of our gang and she said that her Doctor had told her…[Read more]

A huge Welcome Home from me Gill x

Hi Sue I am so pleased that you are both getting some help at last your Mac nurse sounds wonderful.

It is good that you may be able to take a break from work. With Michaels DLA allowance and you not working for a while it may give you a chance to see if you could manage on semi retirement money and Michael's benefits.

I retired at 59…[Read more]

Has anybody heard from Sue? I have been thinking of her and wondered how Michael is Gill xx

Hi Heather

One more tip take a pad and pen when you visit the consultant. Even with 2 of you listening carfully it is easy to not remember it all

Godd Luck Gill

Sue,

Mainly because of Patrick's ulcer caused by what turned out to be a terminal bacterial infection District Nurses visited every other day. I will say this reduced the strain and worry I was goibg through – they were just so helpful and understanding. They supplied me up with end of life drugs which were to be used, by them, when Patrick was…[Read more]