Hi Jennifer

I am sorry you have not had more answers to your post I think it maybe because you have asked questions that us laymen cannot answer. I am sure that the specialist team will be able to help you regarding all your questions and you will certainly get support from the motly crew (me included) that post on here.

Kind regards Gill

Thank you all so much for your kind thoughts and wishes

We are changing [b]nothing[/b]! We are ignorinig the fact that Stephen cannot get out of a chair without crutches and me heaving him up and almost falling over (we laugh! What a pair we have become)

We are trying the best we can to keep life as it was and is and will be for as long as…[Read more]

We are now on the "home run". Stephen's oncologist was shocked at how quickly Stephen has deteriorated. Long consultation tonight meant that Stephen quietly put his foot down with a firm hand (just one of our family's silly sayings)

He had been offered E-hap/Dee hap (I am sure I have spelt them wrongly and/or a very high dose of Bendomustine.…[Read more]

Hi David

I have not logged on here much lately as Stephen is so poorly and needing a lot of care.

I am so sorry to hear your news.

What a bitch this life can be.

Love and kind thoughts to you Gillxxx

Hi Teresa,

I did not reply to your first post as I truly did not have the words to describe what I wanted to sayhowever I have been thinking of you as I often do about those on this forum who have lost loved ones. Whilst Peter wonders through your mind Patrick whispers in my ear from time to time especially when I am doing something the wrong…[Read more]

Dear Gill,

I have not posted before as I did not know what to say. I am hoping that the Wizard has managed to control Stephen's pain and he is comfortable at least. It is good that you were are able to give up work and spend time looking after him, preserving his dignity and generally being together which I am positive he appreciates more than…[Read more]

Hi Scott,

Similar to you my late husband Patrick had a very bad time with Velcade. He used Bendamustine 2 years ago for a year before it ceased to make a difference and suffered no side effects at all. You are right in saying that it is not a new drug and therefore has been well-tested.

Best of luck to you
Tina

Hi Jaqui,

My husband Patrick had IgA lambda light chain myeloma and we [i]were[/i] told it was an aggressive form of Myeloma. Patrick was in remission for only 10 months after SCT and unfortunately did not respond to Velcade very well at all. But after Revlimid failed he did have a very good year on Bendamustine which from what I hear on this…[Read more]

I know my spelling will not be good but sore mouth = corsodyl tooth paste and mouthwash

2 Stem cell transplants and Stephen got one very small mouth ulcer. Helped by Rinstead pastilles.

The old remedies are sometimest the best.

Good luck and good health to all Gill xx

Stephen has had mm since 2008 he was diagnosed at 53 Recently he had symtptoms of brain cancer and his team looked and looked again (I love the team that work on his behalf)

What they have found are 2 little blighters in the base of his skull. Not good but nott quite as bad as in the brain

Now your mum has been diagnosed she will get the…[Read more]

So pleased that your mum is feeling better.

So lovely to hear that some are doing well

Kind regards Gillxxx

Dear Lynne

Sorry and Thank You

I am so sorry that John has gone but thank you so much for your advice. Stephen is on Dex at the moment and can be horrid. Sometimes I bite and sometimes I walk away.

What is hard is that he has always been a laid back pussy cat and now can be a growly cat.

We all need to treat every day as special. Any…[Read more]

Love the quote Dai thank you

Thanks Jean

You should see the pair of us trying to get out of the flippin jag what with Stephen's mm and me just beng too old for such frippary it is like trying to get up off the floor in public and keep a bit of dignity:-D

Hi Everybody

The oncologist looked again and thought it was in the brain (We had a friend who had lung cancer and it went to her brain It was aweful but quick so Stephen's prognosis looked even worse). They scanned Stephen again MRI, PET anything else that gave a chance of having another look.

All hail the wizard of oz. We went to see him…[Read more]

Your lovely posts have made me cry in the nicest way. Thank you

Stephen is enjoying the olymics and sleeping through most of it 🙂

His specialist phoned this morning (11 am on a Sunday how dedicated is that man) to say he had spoken to the radiotherapathy wizard last night and they think between them they can ease Stephen's pain.

That…[Read more]

Dear Gill,

I am so very sorry to hear of your news, I know what a very difficult time this must be for you both. Following your posts for so long now I know that you will be strong and will cope with everything to come. Stephen's journey may be nearing the end but it's not here yet – so enjoy each others company each day even Stephen's short…[Read more]