susannah.

  • Gill replied to the topic Lost in the forum End of Life and Grief 12 years, 3 months ago

    I am not here much at the moment and did not know how near the end it was I am so sorry to hear of your loss

    Gillxx

  • Gill replied to the topic 100 days. in the forum Carers 12 years, 4 months ago

    I cannot speak highly enough about Kings (Stephen had both his SCTs in there) but what a hassle for Slim to have to keep doing that journey.

    We are lucky in that Stephen sees his consultant at a small local hospital near us an there are two chemo nurses there who we speak to. Stephen gets "discussed" with Prof Skye at Kings when the doctors…[Read more]

  • Tina replied to the topic Kyprolis… in the forum General 12 years, 4 months ago

    Hi All

    I may have posted this before but – I have been following the fantastic trials and tribulations of Lonnie Nesseler for many years. He is an American suffering from Myeloma and has come back from the brink on more than one occasion. He has survived an allogenic transplant from an unrelated donor and is currently doing well. A great blog…[Read more]

  • I am so, so sorry

    Gill

  • What lovely posts

    I agree with Dai Bridget will not be resting on her laurels but making friends and welcoming everybody. She will probably make people some very angel like brocho hats.

    Thank you so much Bridget for your support, words of wisdom advice and, sometimes, just some silly fun.

    With much love and sadness from Gill xxxx

  • Gill replied to the topic Seriously concerned in the forum Carers 12 years, 4 months ago

    I have my fingers crossed for you both, and hope Howard picks up soon. Have the hosital offered him any build up drinks? You can buy them from the pharmacy as a food substitute.

    Kind regards Gill

  • Gill replied to the topic Some good news in the forum General 12 years, 4 months ago

    Lovely to hear good news Good luck Gill

  • Gill replied to the topic Holiday Insurance in the forum Off topic 12 years, 4 months ago

    As David said things get lost so I will put in my tuppance worth again. We used MIA the first time we went away after Stephen was diagnosed. Then we discovered we were covered for travel on our health insurance policy. So we had paid twice for the first trip >:-(

    Do check your existing policies before you pay out.

    Bon Voyage Gill x

  • Tina my advice would be [b]Don't[/b]. If you are desperate for money you may not have a choice, but if you can trim down your living costs then just cocentrate on getting better.

    It's my husband that has mm I signed off work with stress when he was first diagnosed as he was so ill then. After an exemplary record of attendance and decades of…[Read more]

  • Gill replied to the topic restless feet in the forum Side-effects 12 years, 5 months ago

    Have you looked up neuropathy That can be caused by treatment. Tingly feet and hands and aches

    Gill

  • Gill replied to the topic PLATELETS in the forum Treatment 12 years, 5 months ago

    I am so pleased that Slim is a little better . Stephen had platelets too it seemed to be the norm. I know that I get boring with my home spun ideas (couldn't spell phylosophy) but food is best served very little and often. Served on a tea plate it gives the illusion of tiny and doesn't overwhelm I am sure that Slim will go from strength to…[Read more]

  • Gill replied to the topic And yet another 3 months! in the forum General 12 years, 5 months ago

    Well done you. Don't forget to check your existing insurance policies (we found Stephen was covered for travel without any extra premium) If not try MIA they covered Stephen before we looked at our existing policy :-/

    Gill

  • Gill replied to the topic Back home in the forum General 12 years, 5 months ago

    Here's hoping that the rev and the dreaded dex do the trick

    Dex for breakfast? I think I would rather stick to my toast and chunky marmalade washed down with a strong cup of coffee

    Love from Gill

  • Gill replied to the topic Good News X Two in the forum General 12 years, 5 months ago

    So pleased to hear your news Good luck yo you both
    Love from Gill xxx

  • Stephen (my Husband) has had 2 transplants and is now on Bendomustine with a hope that if it fails Pomlidomide may help.

    He has had some (not huge) reactions to all the drugs that have come with this latest stage of treatment (some of the drugs are old horrid friends eg Dex)and we both found ourselves wondering what the affects were last time.…[Read more]

  • Gill replied to the topic Second SCT in the forum Treatment 12 years, 5 months ago

    I wish you both huge luck I know well the journey to Kings I went from Orpington to Denmark Hill and trudged down that blooming hill to Kings with all the "tempting goodies" I could think of. Trudging back was lighter with dirty washing, mainly PJ bottoms (too much information.)

    Stephen had both SCTs in Kings a great,wonderful and caring place.…[Read more]

  • Gill replied to the topic Charity Chosen in the forum Under 50s 12 years, 5 months ago

    Hi Avis,

    Firstly congratulations on being in remission and long may it last. Secondly thank you so much for managing to get your company to sponsor mm uk. What a great achievment. I hope you keep in touch

    Kind regards Gill

  • Gill replied to the topic SCT Colin in the forum Treatment 12 years, 5 months ago

    Hi Vicki

    Stephen had 2 SCTs the first gave him 16 months. He sailed through it and felt quite guilty that others seemed to suffer. His second failed and he then was sorry that he had "wasted" some of the time he had left by being in hospital and feeling a bit weak. Hindsight is a wonderful thing:-| Obviously if the second SCT had worked he…[Read more]

  • Dear Siobhan

    Although I spoke to your mum on the phone I never met her in person.

    You have thanked people on here for being her friend but believe me she was a true friend to all of us and will be sadly missed.

    Like others I have cried buckets since hearing of your mum's death. She was always one of the first to greet you when you…[Read more]

  • Gill replied to the topic Bridget in the forum Off topic 12 years, 5 months ago

    I am shocked and saddened to hear of Bridget's death. She was a friend to all of us, an avid poster and will be sadly missed.

    We maybe saying goodbye to her but I am sure that we will always remember her. I know that she was an avid knitter of headgear and crotchet She made hats for many people on here for when their hair was not their…[Read more]

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