[tomParticipant]

Ps part post missing lol.

Good luck with yours
Love Tom onwards and upwards. Xxx

Lord knows why it leaves some out ?? Think I might be using the wrong ink lol ha ha xxxx

[tomParticipant]

Hi Carol

Well post SCT I done a few months taking anti virals and anti sick, and Zometa ant ye Zometa was for just two years, apart from that I was drug free

[tomParticipant]

Aww you have my positive attitude am sending a little bit to you today,
Hope ur doing ok ?? We are off to Chester tomorrow for a few days seeing as we can’t get in a plane decided to go in a posh hotel instead ha ha.

Velcade today but think am gonna save those little Dex tabs till tomorrow do I can party all night in Chester he he

Love to you all

Tom onwards and up wards

[tomParticipant]

Hi Vicky and Colin

Your wayy too kind I just do what I feel is best, not just for me and mine but all of us Mm folks, as I have to admire to being a iccle bit selfish

[tomParticipant]

Hi David
Sorry your SCT hasn’t been the success you/ we wanted but I have heard that it can get there in time ?!, good luck with the Maintansnce regime and hope your soon into remission.

Hi Keith

Well hope the throat gets no worse ??, gosh you are brave staying at home I was pleased I was in hospital during all mine and am pleased I will be in for this next one due this year.

Fingers crossed for you both .

Tom onwards and upwards xx

[tomParticipant]

Hi Helen

Ye the Dex has it’s bad bits also lol, ye but I can’t knid of later in the day as I am at work and what will my gaffer think lol.

Yes it would be good to have SCT over and done with and recoupe in the warmth of the summer, mine was winter in 2009 and it weren’t good cos I really do feel the cold now.
Do the race is now on and we are off

[tomParticipant]

Hi Andrea

Well good luck with it I was on CTD in 2009 and had to pack in work half way through my third 28 day cycles as I was wayy too tired by then had about a year off work that let me have my SCT in December 2009, got four years remission out if that. Just take one day at a time it’s a doable but it has it’s moments stay strong and you will crack it don’t try to do too much as your body will tell you to slow down and rest, listen to your body and you will sail through it.

Good luck on your road to remission

Tom onwards and upwards xxx

[tomParticipant]

Hi Keith
Yes the Dex keeps me awake but it will only be for last nite and the Velcade (if it’s same as last five lots) and will need aka ram to wake me up.

The mouthwash like David said should be supplied by the hospital and don’t forget use it near as much as you use the loo and some. That extra extra use helped me no end.
Good luck with it Keith it is a doable just rake one day at a time, when I was on day four/five I slept most of the time used to wake up to find visitors were sat talking to the self as I was sock on he he

David am sure the BMB will just be a formality for you today.

Tom onwards and upwards x

[tomParticipant]

Bloomin half post again but am sure you all get my drift lol xxxx

[tomParticipant]

Your all more than welcome and you all are my inspiration, it’s not easy comming onto a site like this Mm am sure but for me it helps reading your good posts and we have many on here that are Onwards and upwards who also Vabyte and do whatever it takes and also know that every day is a gift.

So you all keep me going also

[tomParticipant]

Morning Helen
As you can see by the time of the list I had my Dex yesterday lol.
I think you would beat me if ur July but am gonna race you anyways it gives us some thing to look forwards to dunt it.

I would think for me more autumn early winter for mine beds permitting.

Now the race us on

[tomParticipant]

Helen
Do you have an idea when you will be doing yours ? Have you done the harvest? I forget too much these days so forgive me if you told me ha ha.

I am building up to my 2nd transplant all being well this year.
Had first in 2009 so remember what it was like and don’t have a problem doing it again as it gave me four years drug free and that made me happy happy x

Good luck
Love Tom onwards and upwards xx

[tomParticipant]

Hi Keith
And all the best for you, don’t forget use that mouth wash like it is going out of date I did with my first SCT in 2009 and South was not too bad, am due another one this year when the Velcade sorts the Mm out.

One day at a time Keith

Tom onwards and upwards x

[tomParticipant]

Hi you all

Don’t know where the time has gone ?? Moved home in December (13th) and it’s been all go one way or another.

Anyway my treatment”…… On my third week of my third cycle and all doing well, just feel tired more than I used to but still manage to clock on at work and go out for a pint or three. Sleep like a log now except on my Dex Mondays ha ha and today is my wide awake nit hehe.

You all take care
Love Tom onwards and upwards xx

[tomParticipant]

Near half of my post missing ??? HELP lol x

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