Tony Nudds

  • tony changed their profile picture 9 years, 4 months ago

  • tony replied to the topic New look website in the forum Off topic 10 years, 4 months ago

    Hi Susie & Stuart

    I also miss part of posts on the hp desktop PC with 20inch wide screen monitor at work using internet explorer and laptop at home using chrome. I have had no problems with the ipad using safari.

  • tony replied to the topic to SCT or Not to SCT in the forum General 10 years, 12 months ago

    Hi Clare

    I had my SCT at Barts a long time ago in June 2005. The standard of the treatment and accomodation was excellent. The only downside was the traveling time from Colchester. Whether to go for a SCT or not is an individual decission. I definately would go for a 2nd SCT if its needed.

    Best wishes
    Tony

  • Hi Helen & Mavis

    Glad you found my post encouraging. No bone invovement or major infections so far. I try to keep as fit as I can by biking to work,gardening and walking the dog. I had shingles and some major aches and pains after the SCT but soon back to normal. I have a few aches and pains at the moment but thats down to decorating. Looking…[Read more]

  • Hi my myeloma journey so far,

    Diagnosed December 2004 with Light chain myeloma following unrelated urine test in September 2004. Asymtomatic with kidney function deteriating. (creatinine 180 and rising)Age 53.

    Started CTD straight away and had SCT (Barts) June 2005. 8 million stem cells collected but unfortunately none saved. No problems…[Read more]

  • tony replied to the topic Diet Tips in the forum General 11 years, 8 months ago

    Hi Michele
    When I was diagnosed and started treatment in dec 2004 I started taking an apple, pear, banana, orange, dried apricots and walnuts in my packed lunch. I did achieve complete remission so the change in diet did not hurt. I often eat mangoes and regularly drink mango and orange fruit juice. I did take blueberry punch for a while when I…[Read more]

  • tony replied to the topic CTD Second time round in the forum Treatment 11 years, 9 months ago

    Hi Kevin

    I was dianosed with light chain myeloma in Dec 2004 and did CTD Plus SCT in June 2005. Relapsed April 2009 but have managed to avoid treatment so far. The closest I came to treatment was in November 2010 when I actually signed up for Myeloma X and got a phone call 2 days before starting treatment from my consultant to say he wanted to…[Read more]

  • tony started the topic Treatment at Ist relapse. in the forum Treatment 13 years ago

    Hi all
    I am relapsing after my first myeloma treatment and would like your comments on possible treatments.

    History first. At my annual eye test at the beginning of September 2004 my optician spotted, what she thought was signs of a bleed in my retina. This turned out not to be the case, but as a precaution my GP asked me to do a urine test…[Read more]