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Hi Eve

Thank for your posting how do i sleep? seeing the mac nurse tomorrow maybe she has a magic wand!x

hope all is okay slim

sarah x

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Hi Gill

fingers and toes crossed 🙂

best wishes sarah

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Hi all
gordon has now a blue badge, our macmillan nurse got one for us it arrived within 24 hours! used it for the 1st time today, to take gordon to hospital for emergency admission, not too sure if he will get to ever use it again.

best wishes sarah

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Hi David

so pleasedyou had a great time on the rivers i have always fancied doing that. have a lovley time in st ives:-D

sarah

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Hi Sue
thought of you as well in whitby, wondering if you were both having such a great time as us!!! i hope not !!

not sure how about citalopram eve is the person to ask, i am still on wine/rum/ gin whatever is to hand!:-D

gordon now home to have revlamid plus drugs that go with it + gcsf + dxt for his hip. happy days:-(

sarah xx

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Hi Eve and bridget
thanks for your posts i may well try citalopram! i am waiting to hear from the hospital as hope fully gordon can come home for a long weekend. i contacted the blue badge lady at the council, she advised me to ask our mac nurse to phone her and we could get one within 24 hours! Mac nurse is not around until tomorrow, so will let you know how we get on:-D
take care sarah xx

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Hi Eve

What pills are on? Sometimes feel i should be on pills rather than alchol, always feal so dreadful in the morning!!

Gordon had his last dose of dex on the morning we drove to yorkshire, i shut my eyes or read the paper, so i could not see the speedo!! He came down with a bang that night ! I have posted about yorkshire but it has appeared in the middle of this posting!!

all the best sarah xx

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Hi All

what a beautiful place the yorshiren dales are lovley weather , pity gordon saw the inside of Airdale Hospital for three days, we were supposed to be away for only 4!! In hindsite we should not have gone away, he says he will never leave sussex again:- Airdale hosp was very good, there was a very big comfy sofa in the day room with a sunflower on the wall above, have a fealing it was something to do with the calender girls.

Gordon now in our local hospital back on revlamid and the dreaded steroids seems to be responding well,his scan showed his right hip is in danger of fracturing at any time, rather a shock as his left hip hurts due to arthritis, never has had any pain in is right. Not sure how we are going to get him on his big red tractor.

Have any of you lovley people have blue badges and are they lomg winded to get, gordon really does need one, so handy for shopping!!

love to you all

sarah

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Hi Dai

I cannot imagine what it is like to have your daughter and grandchildren so far away mine two little ones are always here!! I have to go away to not see them almost every day!!! I am so lucky.

Chin up Dai you have a very talented and by the sound of your posts loving family.

sarah xx

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Hi All & Sue Min Bridget Dia Eve Joe Mavis Gill and Min

thank you so much for all your posts. to try to answer some of your questions, i dont really know which mm gordon has, but he was dignosed over 9 years ago and after his 1st sct had 6 very good almost pain free years. he does not appear to have any kidney or bone damage and no tumours seem to rearing thier ugly heads. when i read other post here i realize how lucky he is not sure he would agree as he is understably very angry dex really helps, not!
i am not sure what our lovley consultant has decided drug wise we pick them up on sunday!!

I will look out for you sue in whitby if you see two people having a row it will be us and the dex!!!

love to you all

sarah xxx

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hi dai

what a lovley voice your daughter has you must be so proud of her,as joe says majorca is not far away. what a lovley talent to share with amy.

sarah xx

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well i never knew cucumbers were so healthy! how are yours tom? mine are great never had red wine and cue's together, nice glass of rose will do the trick hopefully.

😀

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Hi Liz

Gordon is 7 months post sct his second, he is very tired and has bone pain he takes no meds, but does take tramadol for pain Hope Kev improves soon it does ge better just takes time.

all the best

sarah xx

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Hi Dai

I am so sorry to read about your rough time on velcaide, gordon was lucky he seem to almost sail through the treatment.he/we were very lucky at kings as there was a myeloma specalist nurse called sophie who we could consult at any time, she always came on the day unit. unfortunatly every hospital is different. i do hope your mixing and playing is helping. good luck on monday.

best wishes sarah

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Hi angalina

i do hope you and the girls get daddy home, even though the hospice sounds very caring, home is best:-)

best wishes sarah x

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