10 week check up since STC

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10 week check up since STC

This topic contains 24 replies, has 18 voices, and was last updated by tom 12 years, 6 months ago.

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25th February 2011 at 7:46 pm #89886

Perkymite
Participant

Hi gang, I had my 4 week check up today it is now 10 weeks since my Stem Cell Transplant.

All my bloods are going in the right direction and I am doing really well according to my Consultant. My paraprotien has not gone to ZERO which is a bit of a disappointment but they have reached a plateau at around 2.2. I feel in the best of health so all in all not a bad result. He did send me for an x-ray on my lower back ? I have a stiffness there in the morning, which I had put down to the creaking joints of old age. But, just to be on the safe side, they took some pictures today.

Still taking the; anti-viral, anti-biotic, bone strengtheners and blood pressure tablets but no cancer drugs at the present time. I now have an 8 week break until I see the Consultant again 😀 .

Kindest regards
David

26th February 2011 at 1:42 am #89887

brocho
Participant

Hi David great to hear your results , you must be on cloud nine !!Lucky you a whole 2 months before your next clinic , heaven. I hope your x-rays can put your mind at rest so that you can have some fun and normality after all you have been through in the last few months love Bridget x

26th February 2011 at 8:39 am #89888

michelleakitt29
Participant

Hi David

sounds like your doing really great, especially seeing as no consultant appointments for 8 wks…WOW….fantastic. As Bridget says I hope that your pics show nothing more than creaky bones! Good luck.

with love michelle x

26th February 2011 at 8:59 am #89889

Perkymite
Participant

Thanks Girls for your encouragement.

I would be on Cloud Nine if my PP had gone to zero Bridget but only on cloud 8 for pps at 2.2. I set high standards for my body to achieve.>:-)

Kindest regards

David

26th February 2011 at 12:58 pm #89892

BADGER
Participant

Hello David

great news it all looks positive your consultant must be please if he is only going to see you in two months keep up the good work

Love Jo x 😎

26th February 2011 at 1:06 pm #89893

Elizellen
Participant

Great progress, David, in spite of those paraprotein numbers 🙂

Ain't it great to be told you don't need to see the consultant for that long!! Enjoy the 'holiday'.

XX
X

26th February 2011 at 1:13 pm #89890

DMC
Participant

Hi David,I'm new to the forum, just read about your great progress glad to see its going very well for you. How long have you now been receiving treatment?
I am just starting STC this week. Would love to keep in touch.

Regards Dave.

26th February 2011 at 1:53 pm #89891

Perkymite
Participant

Hi Dave, Welcome(?) to the forum.

If you want to keep in touch you will always be able to reach me on this site, I am a permanent fixture. I have to keep a check on the site to ensure the girls all behave themselves, they can get so unruly sometimes 😀 .

I was diagnosed on the 11th July 2009, collapsed 4th vertebrae in my neck ? pp level 39, aged 66, prognosis 2/3 years. Finally got enough Stem Cells in October 2010 and had my transplant early December 2010. I left hospital on 15 December, home in time for Christmas. I wrote a ?Musings from Ward 9? it is on page 3 ?Treatments? or somewhere around there. If you have not read it you might find it useful.

All the very best of luck with your Transplant, you will find it is mostly waiting for things to happen. I found my laptop computer so useful.

Kindest regards
David

26th February 2011 at 2:32 pm #89894

Min
Participant

David I love a good news story,
the important thing is as you say you feel in the best of health. No one can ask for more.
Curious about the anti biotics? what ones and have you been on them since your sct? Peter only gets them prescribed when he is suffering from an infection. Probably why his sct did not work. Why is the treatment so different all over the country. I know everyone is different but if most patients are getting anti biotics following an SCT why doesn't everyone get them?
I am really pleased for you David.Long may it continue, as I know you struggled to produce those cells
LuvMIn

26th February 2011 at 3:07 pm #89895

DaiCro
Participant

Hi David,

I recall a few occasions where it has taken a few months for the readings to record a true value due to residual leftovers after the SCT's. I am coming up to 12 months SCT (mid-March) and I often have aches, pains and stiffness. My consultant has told me not to worry about such things as they are residual aches and pains due to the damage caused by the myeloma and not evidence of myeloma activity.

I often feel out of sorts, stiff, achey, blooming pn etc., but I am 57 with quite a bit of residual bone damage and limited mobility… so I sort of accept that as par for the course. The rest of the time I feel AOK (ish)… and that'll do for me.

I just want some sun, a few warm days, access to the outdoors and a literal spring in my footsteps.

Don't rush it… 10 weeks is still very early days. 🙂

Dai.

26th February 2011 at 3:13 pm #89897

kaychappers
Participant

I think that is great news for you David. I have only just started my treatment, but it gives me great hope that there is light at the end of the tunnel.
Kay x

26th February 2011 at 3:17 pm #89896

zasrs
Participant

Hi David

Great news! Gordon having another check up in two weeks dont know what is pp is as Kings did not have the result when we went 6 weeks ago. Gordon only taking anti virals when he remebers! I have just has the most horrid cough and cold, gordon shows no signs of catching it,( he realyy is terrible nurse) even though his neutophills are 1.5!

Cannot make head nor tail of this MM:-D

Keep well

Sarah

27th February 2011 at 8:59 pm #89898

shirley
Participant

Hi David,just been reading your post,and well done to you on your progress to getting better, thats really good news,i'm not far behind you on having the stem cell transplant,i had mine on the 20th December,and like you,been told i'm doing really well,bloods are great,paraprotein remain unmoved but they are very low but they don't seem worried. Are you out and about yet,i'm allowed to my local supermarkets as long as i don't over do things,allowed to visit family and friends homes as long as no one is poorly,just getting out of the house for a little while makes me feel so much better,. Well i hope you continue to do well on your road to recovery and take care David,best wishes Shirls x x

28th February 2011 at 8:54 am #89899

Perkymite
Participant

Hi Shirls, I was allowed to "mix with the human race" to use my Consultants words after the 6 weeks period. However I had, and still have for that matter, the same restrictions as yourself; avoid crowded places, people who have colds etc… . It has almost become habit now that I look around for people sniffing or coughing at the supermarket and avoid following them!

Kindest regards

David

28th February 2011 at 9:25 am #89900

Gill
Participant

So pleased that you are doing well. I remember letting Stephen come to Tescos with me when he first ventured out after his first SCT. I insisted that we go very late at night to avoid people, and he was as excited as a child being given a special outing to do something "normal" (didn't last long we have gone back to sqabbling (sp?) over who pops out to Tescos for bread, milk etc)

Gill xx
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