[BADGERParticipant]

Hello Bridget
I was worried we havn't heard from you lately are you ok have they sorted out your pain, its so unlike you not to post. so please let us know if you are fine and how you are getting on
Love Jo:-/

[jmsmythParticipant]

Jo I was wondering the same thing. Hope all is well with you Bridget.

Jean xx

[eveParticipant]

Hi Jo and Jean
I have been thinking the same,Min Angelina Bridget Dai even Tom .May be they have taken a holiday,May be no news is good news!!!!!.Enjoying the summer weather while it is still here.
Nice to hear from you Jean,and you Jo.best Wishes Eve

[MinParticipant]

Hi
Ive just been away on a quick breakaway, to my daughter and grandchildren in Warks. Cant see any activity on Bridgets facebook so sent her a message.
Min

[GillParticipant]

Here Here I was wondering if she is OK I too have tried to contact Bridget away from this site and got no response

Hope all is OK Gillx

[brochoParticipant]

Hi everyone bless you all for caring Sorry I havent been around but I have been struggling with Revlimid and changing these wretched painkillers! Half the time I am out of it and the other half I am asleep Last week I saw a consultant who specialises in palliative pain care and he altered my Oxycontine dose from 70mgs twice a day to 200mgs twice a day !!As you can imagine I was out of it the following day , I have now lowered my daytime dose to 120mgs On top of all this I had a new and really awful new pain in my back , it was very bad !!, seems to be easing now Hopefully I will be able to catch up on how everyone is doing over the weekwnd Lots of love Bridget x ps Gill sorry I will contact you soon x

[eveParticipant]

Hi Bridget
Nice to hear from you,sorry they have not got the pain under control,funny the way some drugs work for one person,but not another,go back to what works,Try to enjoy the day,it is lovely and sunny down here on the coast.
Best Wishers Eve

[jmsmythParticipant]

Glad to hear from you Bridget. I hope they get pain under control soon. I do miss your posts.

Love Jean xx

[BADGERParticipant]

So glad to hear from you Bridget I was really worried for you I hope they soon sort out the pain and you will be back to your cheery self looking forward to you getting back on line will e.mail you when I get back from wales we are taking our grandson for a weeks holiday:-)

Lots of love JO XX

[BADGERParticipant]

Hi Eve

is everything going on ok with Slim at the moment I know you hd a good hospital visit but have they told you if his treatment is working yet I do hope so. Are you feeling not so stressed now i do hope so
Take care regards to Slim
love Jo

[eveParticipant]

Hi Jo
Thanks for asking after Slim.
Bloods,kappa light chains all going in right direction,on 6 cycle of ctd.
So why am I not running round in circles cheering!!!!do not understand it myself,considering the position we were in a few months back.Slims slowly getting stronger.
Appointment end of July with consultant,bone marrow test will be in.Will know more then.
Enjoy your holiday in Wales,what part are you going to jo???? love eve

[jmsmythParticipant]

Hi Eve

So glad to hear that Slim is heading in the right direction. He's had a real rough time. Also good to hear that you had a positive hospital experience. My best to you both. As Tom says "onwards and upwards".
Love Jean. xx

[BADGERParticipant]

Hello Eve

we are going to conwy taking our grandson so not much rest for Geoff as they are best buddys hope we can get him on the beach for a bit but we are taking our waterproofs and there are plenty of castles which he loves , we hope to go up snowdon on the train Regards to Slim
Love JO8-)

[eveParticipant]

Hi Jo and jean and you Bridget
Nice to hear from you jean,
Jo I know that area so well,Tyne-E-Pull,spelling not good,use to be outward bound centre for waives and strays like me.:-P lol thats going back years.
Colamundy nr Mold another place.loved Betsy coede,Dai will be able to spell those names correctly. Climbed snowdonia many times I believe there is a restaurant on top. All changed now but you should have a lovely time up there.
My sil has just done the three peak challenge,Snowdonia yesterday,wet windy and hard work on his back to Kent now,team managed to raise £5000 for Demelza and another respite in Kent for children.
Let us know how you enjoyed it when you get back love Eve
Bridget how are you?

[brochoParticipant]

Hi everyone thankyou again for your best wishes Jo I hope you had a great week with your grandson , I bet he was excited!! I am still plodding on , but my macmillan nurse is back from leave and its been agredd she will make any changes to my drugs It was a real pain being prescribed something only to have it completely changed by the next person I saw , thankfully they have realised how unworkable it was too !! That really bad pain in my back and side seems to have gone into hibernation thank goodness!! Now its just a question of getting used to these new pain relief drugs and finding the right dose for me The local palliative pain consultant that I saw last week incresed the Oxycontin from 70mg twice a day to 200mg twice a day , this was such a big jump but ok at night The morning dose made me feel very wobbly so I reduced it to 120mgs in the morning , Amanda joked yesterday that as I am so used to self-medicating I dont need the professionals !!My legs and feet are very swollen , some days I cant wear shoes at all , so I increased the Ferusamide to 40mgs with little effect .Amanda has told me its not a very effective drug and not worth taking 40mg as there is a risk to my kidneys So the new plan is to ask at the hospice if I can have a leg massage to help shift some of the fluid This plus the excercises whilst I am sitting might help a bit but I think I am stuck with elephant legs whilst on this treatment! Clinic this week I am going to ask them to check out my rib area when I have my next mri in August as usually they just look at my spine . Iam also going to ask for a break from Dex , provided there is nothing nasty showing on the mri , I feel even six weeks might help me to lose some of the weight I have gained as well as these huge legs and feet It will also help me psychologically just to feel normalish for a while , I dont think the docs realise how steroids can affect you emotionally when you are on them long term Sorry for this long boring post , I am trying to catch up on everyone elses posts now lots of love Bridget x

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