[eveParticipant]

Hi Everyone
Am I happy YES,
Saw Slims consultant yesterday after 14 week,not knowing if the 80 % of Myeloma Cells were being reduced by the Velcade because Slim has become Non Secretor,well as you can guess they have been reduced to 10% in marrow,still along way to go,at least 2 more cycles possible 4.After 10 months of treatment with no break through,this to us is wonderful news.
We did not break open the champagne,are bodies just seem give up we were so tired,I can only put it down to the strain of not knowing for such a length of time.
If Sharon is looking in,let us know how you get on,know your having PET scan soon,will be thinking and wishing your results are good.
Love Eve;-) 😎 😀 :-)nothing can wipe that smile off my face,and this time it,s real.

[brochoParticipant]

Hi Eve great news it was a long wait but bet it feels worth it now!! Hope you and Slim have got your mojo back today and go and celebrate and RELAX a bit love Bridget x

[MinParticipant]

Hi Eve and Slim,
I can just imagine the relief you both must of felt and big deep breaths and sigh's of joy all round.
Woud I be right in assuming that these results are some months old or are they the latest results? Iether way its very good and heartening news that velcade is doing its thing for him. I hope you can enjoy the rest of the weekend and a few days of peace of mind for a change.
Told you not to give up and I was right!
Love Min

[jmsmythParticipant]

Eve so happy for you both. I know the relief that you are feeling. Long may it continue. As Tom says "upwards and onwards".
Love Jean x

[DaiCroParticipant]

My Dear Eve,

Wonderful news… at long last you have something tangible and long term to celebrate. I say long term because I know how worried you have been for such a long time without any real encouragement from treatments. Well now you have and it proves that Slim's body is fighting this d**ned disease… fighting and winning.

I appreciate that he has a long way to go but now he has a platform to fight from… if his body can respond to this treatment then it can respond to others… the final 2 cycles may well put him in an even better position to ready him for the road ahead… I hope that it is a long road and while it is never easy it at least proves he is fit enough to travel.

I am so very pleased for both of you. 😎 😀 🙂

Much love,

Dai.

[RozParticipant]

Hi Eve and Slim

Congratulations some good news at last!:-D You keep smiling Eve I would.
Save a glass for me when you crack open the champagne.

Keep up the good work you deserve it.

All the best
Love Rozxx

[mhnevillParticipant]

Hi eve and Slim

What a hard road you have both travelled to get to this point. What a relief, at last, to hear some good news that makes all the difficulties of the Velcade treatment worthwhile.

Here's to the next two rounds really knocking this dreaded MM on the head.

All best wishes to you both.

Mavis

[tomParticipant]

Hi Eve and of course Slim

Congratulations to you Both, Slims Dr's and all the Nurses that has crossed you and Slim's Path a well done to you all.

Keep up the great work and you know that Slim and yourgoodself are an Inspiration to others.

Please see the attached Photo its your own Smily face for you Hope you like it.

Tom "Onwards and Upwards" xx

Ps you can all have and use the "Smily" face add it to your Emails and stuff 😎

[susannahParticipant]

Hi Eve Its so good to hear good news!

Love to you both
Sue x

[eveParticipant]

Hi Everybody
I am on a bit of a high at the moment,slept well for the first time in ages.mind you G&T wine an d baileys helped.LOL but feel wonderful this morning and its such a lovely day the sun shining,and everyone seem to be out walking this morning.8-)
Min you were right about not giving up,and with out your support,i think i might have,this is the first time since starting treatment 10 months ago we have positive news,when Slim finished CTD,told it had increased in bones to 80%,2line of treatment Velcade started,has had 4 cycles,but unable month by month to tell how myeloma was going as no longer giving true readings,so BMB taken end of 4 cycle and received results on Friday.Has been a long 14 weeks.
Like Bridget says if she feels well,that,s her bench marker,so we have been just doing the same.
So glad your doing so well Min,you have a year ahead of you of first,s,first christmas,first birthdays,without Peter,and it is lovely to see you,taking holidays and enjoying your grandchildren, Love Eve

[GillParticipant]

Eve That is fantastic news I am so pleased for you. I am glad you celebrated after the news we need more celebrations methinks

Love from Gill xxx

[MariParticipant]

Dear Eve

I am delighted to hear your news. I hope you were both able to enjoy this sunny Sunday with your a load off your mind,

Love Mari x

[eveParticipant]

Thanks again for all your wishers,yes I did over do it a teeny bit!!!,i had Slims share as he does not enjoy a drink!!!.
He over did it by not resting enough,found all this energy,and paid the price on Sunday after the walk,has been sleeping most of the day and night,making up for not sleeping well on Velcade.
2 week of 5 cycle this week.
On Friday as well as having such good news,I wrote a letter of complaint as we are waiting hours in hospital,we do two trips in one day 60 miles for bloods then come back for Velcade,always have a little wait,but the big one is the 1st day of cycle we now go in the day before for bloods,so they have 30 hrs to produce Velcade and chemo drugs,guess what!!!went in had 3 second injection of Velcade and waited 3 hours for chemo tablets.

I was calm,letter of complaint went in on Friday morning,turned up early on Friday afternoon as we had 3 app,that day so stayed in Canterbury,Velcade on time,but atmosphere not great,(cut it with a knife),my complaint was not against this department,or staff who do a wonderful job,and I. just wanted corrected what ever was going wrong.

IT was worded a complaint about,non co-operation between departments!!!,because results and medication go through at least 4 departments,and something goes wrong in the process,resulting in long waits for patient.
So did not expect this atmosphere( I have broad shoulders) and considering the bad treatment received in A&E and on a general ward,but marvellous treatment he received on ITU and Brabourne,I never complained so was shocked. I told the sister it was no reflection on her or here staff.:-(
So it did dampen our good news a bit. Love Eve

[HelenParticipant]

Hi Eve
I can totally sympathise, the long waiting in various places is outrageous. Particularly when you and Slim have been through such a difficult time. I really feel for you, it only adds insult to injury.
I've been trying to frame a complaint that sounds more like positive feedback,:-/ because I don't want to alienate people. Now that I am more recovered it doesn't look like a big problem in the scheme of things but when I was very ill, frightened and extremely vulnerable it was another area of my life over which I had no control, was uncomfortable and sensitive. Now I know I need to say something but I don't have the anger left in me and feel like leaving it well alone. It's a bit like poking a wasps nest!
Helen

[eveParticipant]

Hi Helen,
I felt the same way as you when Slim was in hospital and thought wait until he came home,but I was so busy,bathing and looking after him day and night,the complaint never got done,and my verbal complaint never was dealt with,he will never go on that particular ward again,and now I stand my ground I take the view I know when he is ill.
It took a lot to complain because the nursing staff are excellent,but I have spoken to a number of different staff members to try to resolve the problem,after Tuesday I felt I had to do something as it was obvious something was going wrong with the system.10 months and only once drugs have been on time it is a long time to get chemo drugs up to wards on time.
I was not looking to blame someone just resolve the problem.

IT was such a little thing staff not saying hello,no eye contact,no good bye see you Tuesday,I thought they would be more professional,it did spoil are good news a bit.:-(.
Tuesday is another day,so see what it brings.Love Eve

[Author]

Posts