[nickinooParticipant]

Hi guys,

Again, I haven't been on here for a while as I have been so busy with work and the new house but it doesn't mean that I don't frequently think about fellow members of this site.

How is everyone doing?

So sorry to read about the recent losses, I am thinking about their families.

All is well at this end, life has returned to normal after Sam's SCT in November, he is looking and feeling very well, his hair has grown back dark and curly (it was mousy brown with a wave) and he is back at work part time, he is leading the life he had before diagnosis practically except for working fewer hours. I hope this gives some reassurance to people just about to go for a SCT.

We went to see his consultant two weeks ago, his bone marrow is now normal (30% abnormal at diagnosis last May) and his light chain ratio is now 3.4/1, aparently the ratio of a non Myeloma sufferer is 3.1/1 so he is now in a virtual complete remission, hopefully when we go next time he will be in a complete remission. His light chain ratio was 245/1 at diagnosis.

He only has to see his consultant every 8 weeks now, and goes for the Zometa injection 4 weekly, he has had this twice now and has had no side effects at all from it.

Life is good right now, we are happy and living life to the full, we go away again in just over a week to my parents' property in Spain which we are looking forward to. In those bleak days when Sam was in hospital having his SCT, sleeping 22 hours out of every 24 and exhausted for the remaining 2, weak, thin and very low, we never imagined life would ever be happy again, but it is, again I really just hope that this can give some hope to those just beginning this awful journey in particular, not knowing what to expect.

Dai – if you do read this was so nice to see you and Janet the other week, and to introduce you to Sam. Hope the velcade didn't have too many unwanted side effects. Brill news about the tumour xxx

Take care all.

Nicki xx

[brochoParticipant]

Hi Nikki its lovely to hear things are good for you and Sam As you said its hard to imagine that it could be that way when you are facing the worst myeloma can throw at you!! Enjoy your holiday love Bridget x

[MinParticipant]

I am so very pleased that life is back to 'normal' for you both.. Good news is always a boost for those in utter turmoil. Long may it continue for both of you. Nicki,
Love Min

[DaiCroParticipant]

Hi Nicki,

It was good to see you again at the clinic and to finally get to meet Sam. He looked extraordinarily well and seemed to be bouncing with energy and life – long may it last!

Sam has responded well to his treatment and his SCT and if he gets a good length of top-end remission then who knows what will becoming available down the road.

All these new developments we hear about are exciting… but they are only the forerunners of those that will derive from or be inspired from those in turn. By the time Sam needs to address his next line of treatment I imagine that there will be a virtual arsenal of choices and chances. 😎

Take every one of them. 😎

It did our hearts good to see Sam so matter of fact and ready to get out and on with the day. 😀

Hope to see you again soon.

Dai & Janet xxx.

[eveParticipant]

Hi Nicki

I just want to say it is lovely that you posted how well things are going for your husband,it gives everyone a boost.

I look sometimes at so many young people with this horrible myeloma and think how sad,lives not lived,so you post must be such a big boost.
I wish you both a long and happy life. eve

[PerkymiteParticipant]

Hi Nicki,

I am about a month behind Sam, I had my STC early Dec, and I could take your post, alter the names and it would be the same for me, even down to the hair. My mousy brown hair is now black. Mo wants me to grow it a bit on top, I normally keep is short. I think she has got a thing about curly headed men (she has never mentioned it before 😉 ).

When I do too much, like planting 250 Geraniums in my garden in an afternoon, I still get a ?Power Down? PLUS a right dressing (cannot use the correct phrase here >:-( ) down from Mo

Kindest regards ? Vasbyte
David

[DizzylizParticipant]

Hello Nicki,

Just read your post my hubby kev is now in his 7th week post sct, had a few hiccups (didn't seem it at the time)
But after reading how well Sam is doing it's just loverly to hear and gives us the boost we need, hope you have a great holiday! That's what we looking forward to.

Love liz xx

[nickinooParticipant]

Hi guys,

Thanks so much for all of the good wishes.

It was so lovely to see yourself and Janet and it was really nice for Sam to meet you both as I have told him all about you. David I am so glad to hear that you too are feeling mostly well after your transplant, long may it continue.

Liz, glad to hear that my post has given you a boost, and I hope that your hubby continues to make a speedy recovery.

Take care all.

Nicki xx

[JetParticipant]

Hi Nicki

Like the others, thanks for your uplifting post. I do find it hard to come on the forum some times, as reading about the suffering others are going through is too depressing. But as I am facing the stem cell harvest and transplant process imminently and have just been asking my specialist nurse loads of questions about it and about the 'afterlife', it was so good to read your post about Sam.

I wish you both continuing good health and happiness.

Thanks again!
Jet

[nickinooParticipant]

Hi Jet,

Thanks for your kind reply, and I am glad to hear that you found my post uplifting.

I didn't actually speak to you on the day but I did see you at the Myeloma UK Infoday (I recognised you from your pic on here and also your name badge), I hope you found it as interesting as I did xx

[Author]

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